My Daughter's Story

Posted On Sunday, November 14, 2010  by shadow205

I first came here in 2004 and found the friendliest, most compassionate and helpful people that you could find anywhere. I was concerned about my daughter who had developed Pre-E late in her pregnancy. Before it was over with she went on to develop HELLP & Sheehan's Syndrome. She also had continuing medical problems post part om. It took about a year and a half for her blood pressure to return to normal and for her adrenal gland to begin producing cortisol again. I am not going to go into detail here, it's just too long, her story can be found by searching "shadow205." There are a lot of posts and information.

What I would like to say is that since the time that I posted last about her, she has became pregnant and had a relatively uneventful pregnancy and delivery in February 2009. We thought all was well but she just never seemed to recover from that pregnancy/delivery. In March 2010 she became critically ill and was admitted to the hospital. Tests, tests and more tests, they couldn't figure out what was wrong. All of her lab work showed that something was obviously going on but the Doctors couldn't diagnose her. Fever averaged 103, HG 7, Sed Rate High Spleen, liver and one kidney enlarged. Lymph nodes enlarged and all kinds of other things. She had a bone marrow biopsy on her 31st birthday checking for Lymphoma. Thank God it was negative.

What they did come up with though was Autoimmune Disorders. I saw that there is now a thread here for Autoimmune Disorders and will be posting there. My Daughter has been diagnosed with "Still's Disease" and "ANCA Associated Vascultitis." There is hardly any part of her body that has not been effected. She is currently undergoing chemotherapy infusions monthly and has to take a tons of medicines that can have serious side effects.

Is there a connection between Preeclampsia and Autoimmune disorders? I don't know, but hopefully we will know someday. I do know that my daughter was perfectly healthy until she developed Preeclampsia in 2004 and has never really been well since.