The Preeclampsia Foundation recently “signed on” to a letter to Congress that was generated by the Ad Hoc Group for Medical Research. You may know that we are members of “Friends of NIH (National Institute of Health)” and it is through that association we are able to make our voice heard in such matters. Make no mistake about it, we are friends of NIH . . . but as most of us know, even the best of friends can have disagreements. However, before I go there, let’s address the areas in which the Preeclampsia Foundation strongly supports the NIH.
These are clearly tough economic times, and it seems there is a “bail out” or “recovery package” (depending on whom you are talking to) for almost everyone, and we want to make sure that NIH is not left in the cold. Accordingly, we have supported the recommendation that an additional $1.9 billion be allocated for NIH in the current economic packages that are being debated in Congress. Now, before you get ...
Posted in Health Information on July 04, 2008 by Website
Continuing Medical Education (CME) courses are a key way for medical professionals to upgrade their skills, master the latest research and qualify for promotions and membership in industry organizations. Last year the Preeclampsia Foundation and the University of Minnesota’s Deborah E. Powell Center for Women’s Health joined together to create the first-ever online CME course devoted to preeclampsia prediction, management and outcomes. Now that the first offering of the course is complete, feedback from participants suggests that it could play an important role in improving awareness, diagnosis and treatment.
The CME was divided into three modules: one devoted to diagnosis, a second with the latest treatment and management information, and the third focusing on heart disease prevention in preeclampsia survivors. Physicians Dr. Thomas Easterling, Dr. Michael Katz and Dr. Tanya Melnik conducted the lectures, which were accompanied by online PowerPoint ...
Posted in Health Information on July 04, 2008 by Website
After several years of trying, the Preeclampsia Foundation was recently notified that it has finally been accepted in to the Combined Federal Campaign (CFC).
As anyone familiar with the CFC knows, the application and review process for acceptance as a CFC charity is rigorous. Among other things, to be part of the national campaign, each charity must prove that it actually does have a national presence. As always, our Preeclampsia Foundation volunteers came through with data, facts, and figures that enabled staff to complete the application in timely fashion and make the cut!
For those who may be unfamiliar with the CFC, it is the only authorized fundraising entity for federal government employees, including postal employees and military ...
“I have learned through bitter experience this one supreme lesson: to conserve my anger. And as heat conserved is transmitted into energy, even so our anger controlled, can be transmitted into a power that can move the world.” The quote above is from Mohandas Gandhi. I think it captures a very real component of human nature and gives us pause to examine our own behaviors and actions. Tragedy and sadness of any sort can fuel a torrent of emotions—among them anger.
Anger is a reasonable response for a woman who has had preeclampsia and perhaps lost a child or suffered debilitating damage to her body. Anger seems most rational for the husband who finds he is a single parent because of preeclampsia. Anger is almost logical for parents of a premature baby who may face a lifetime of physical and developmental challenges because of preeclampsia.
I get angry too ...
Posted in Research on February 12, 2008 by Website
On November 20-22, 2007, a meeting was held in Vancouver, British Columbia to discuss The Preeclampsia Integrated Estimate of Risk Study (PIERS) which was lead by Dr. Peter von Dadelszen. Besides being the lead investigator for the study, Dr. von Dadelszen is also a member of the Preeclampsia Foundation’s prestigious Medical Advisory Board, President of the North American Society for the Study of Hypertension in Pregnancy (NASSHP), and the President of ERIPED (Equipede Recherché Interdisciplinaire sur la Pre-Eclamspie et ses Determinants), Canada’s preeclampsia research alliance.
The goal of the 41-month PIERS study was to create a rigorous standard care protocol for the diagnosis and intervention of preeclampsia and the purpose of the meeting was to move to the next level of the PIERS study. After prospective gathering of data for seven years, and publishing the findings, the next step was to strategize about what had been learned and figure out how to get hospital ...
Posted in Volunteer Happenings on December 03, 2007 by Website
I found the Preeclampsia Foundation website in January 2003 when I was pregnant with my second child – and terrified of what might happen. That second trimester panic so many of our members know all too well.
I’ve been a volunteer ever since. Anne Garrett was my savior, and by the time my daughter Camille was born, I was a devotee for life. I thought Anne’s vision and leadership were amazing, and I wanted to help her and the Preeclampsia Foundation in any way I could. I’d have washed her windows if she’d asked me.
When I had severe preeclampsia during my first pregnancy in 1998, there was no one there. No one to help me pick up and keep going after that freight train hit. But the Preeclampsia Foundation is that ‘someone’, or rather many ‘someones’, dedicated to raising awareness and funding research. Most of all, the Preeclampsia Foundation is here providing support for women and families who need someone to turn to after preeclampsia ...
Posted in Health Information on January 04, 2007 by Website
Several years ago, Dr. Jun “Jim” Zhang, a senior investigator at the National Institute of Child Health and Human Development approached the Preeclampsia Foundation about working together on an epidemiological research study. Here was the study’s rationale:
“Preeclampsia is a syndrome of hypertension accompanied by proteinuria. It is a major pregnancy complication, associated with premature delivery, fetal growth restriction, abruptio placentae, and fetal death, as well as maternal morbidity and mortality. Although preeclampsia has been recognized for centuries, the etiology of this disorder remains unknown. Familial clustering of preeclampsia has long been identified, leading to the concept of a genetic basis for this syndrome. We propose a familial genetic study of preeclampsia. As such a study is often difficult to do, we plan to conduct a pilot study to test the feasibility, logistics and examine frequency of genetic polymorphism of certain genes in the target ...
Posted in Volunteer Happenings on May 02, 2006 by Website
Hundreds of volunteers have contributed tens of thousands of hours to fulfill our calling as an organization. Our online forum has emerged as the world’s best peer-to-peer source of preeclampsia information and support. Over 4,000 members have contributed to over 150,000 posts since its inception 3 years ago. Over 50 moderators and administrators have made that possible, all as volunteers. Dozens of local fundraisers such as poker parties, yard sales, golf tournaments, fishing tournaments, raffles and silent auctions – have been driven by volunteers, raising over $20,000 dollars. In two years, our annual walk-a-thon has been staged in 22 communities, raising $100,000 and reaching scores of people who had never heard of preeclampsia!
No matter how large we become or how quickly we reach our goal to be directed by a professional staff, volunteers will always be a critical component of our success. Your Board of Directors has developed 8 objectives for the next ...