Are you a Pinterest addict? Enjoy expressing your life experiences visually? Then join our 2013 "Virtual Memorial & Survivor Quilt" board. The Virtual Quilt board is a compilation of images from any individual who wants to contribute in honor or in memory of loved ones impacted by preeclampsia, HELLP syndrome, or other hypertensive disorders of pregnancy. Share your feelings and experience with preeclampsia through pin art!
Having your pin as a part of the quilt only requires ...
Shelly Bridgewater was 25 years young when she died in 2005 from preeclampsia. Her best friend, Bree Housley, wrote a book about their unlikely friendship and the impact Shelly, "the social butterfly," had on her life. We Hope You Like this Song launches this week and is available in our Marketplace. We talked with Housley about inspiration, Karaoke, and how the Preeclampsia Foundation helped her healing.
What inspired you and your sister to embark on your yearlong tribute to Shelly ...
Thirty-five volunteer-driven walks took place across the country, twelve of those in new cities, and the national fundraising goal of $400,000 was surpassed before the last walk took place.
"There were so many highlights and accomplishments this year that it's hard to know where to start!" said 2012 National Promise Walk Coordinator Becky Sloan. "We increased national awareness, especially through new media spots, proclamations and local elected officials who gave their time to acknowledge Preeclampsia Awareness Month at many walks. We also saw an overwhelming dedication of new and continuing volunteers that came out in droves to help our coordinators."
Many walks exceeded their fundraising goals, including Boston, who set a goal of $16,775 and raised an astounding $29,316; and Oklahoma City, who set a goal of $8,400 and raised an amazing $15,680. Other cities that far exceeded their goals included Leigh Valley/Easton who exceeded their goal by $3,000; ...
As the temperatures continue to rise this summer, we look south of the border to a grandmother making a difference all the way from the beaches of the Caribbean. For years Sandy Coder has collected sea glass from the beaches near her house in Mexico. After lots of practice drilling tiny holes in the glass, she created the first "Eva's Angel" in memory of her granddaughter that was lost prematurely at 22 weeks due to preeclampsia and HELLP in 2007 (
The Promise Walk for Preeclampsia means something unique to each participant across the country... but this year for one young preeclampsia survivor, it means getting to see her artwork impact thousands!
Mya Detweiler, age 10, and her mother Dawn are no strangers to the Preeclampsia Foundation, or the Promise Walk. After experiencing severe preeclampsia and a harrowing premature delivery, Dawn turned her passion for the cause into action as a lead volunteer for the Foundation, including coordinating her own local Pennsylvania Promise Walk since the inaugural walks in 2005.
"Since she was little, Mya's been helping me stuff goodie bags and hand out ...
The October 2011 issue of Expectations (featuring patient-centered care month) highlighted two powerful, silver-screen accounts of parents confronted with the unthinkable: a child's health crisis with no known cure leading doctors to tell them "there is nothing more we can do." Those simple words - and the prospect that there was no hope - prompted these every-day parents to take on the most important "projects" of their lives: saving the lives of their children.
These extreme examples of patient advocacy provide a humbling reminder of how important our own voices - and understanding of our conditions - are in our individual health care (during pregnancy and otherwise).
In thinking about patient advocacy in relation to my own pregnancy, I am ashamed I didn't ask more questions when I was ordered to take my first (and then second!) 24-hour urine test. I didn't know that a 24-hour urine test wasn't routine, and my doctor was certainly not offering up any ...
In the words of 17th century English poet John Donne, "No man is an island"... and in the world of fundraising, this is doubly true. The incredible success of the Promise Walks each year is due in no small part to the ability of local walk coordinators and participants to gather their friends and families together and spread the infectious hope for the future that is at the fundamental core of the Promise Walk.
But how does a walk move from helping the Foundation fund a single local education campaign (around $2,000) all the way to funding an entire Vision Research Grant ($25,000)? The answer is the passion and drive of team work! So if you haven't already, start a team and read the following tips on making a big difference:
1) Have a Plan. Set a reasonable goal and make a list of people who would potentially support your efforts. For instance,
Our seventh annual Saving Grace dinner gala fundraiser took place in Manhattan on the evening of Saturday, November 12. It was simply a wonderful evening, replete with raw emotion, inspirational stories, hope and gratitude. Together with The Foundation for America's Blood Centers, another worthy charity dedicated to saving the lives of mothers and babies, we reached a broad and extremely engaged audience of almost 500 guests. With the support of so many individuals and our event sponsors - Johnson & Johnson, Ortho Clinical Diagnostics, Merck, Abbott and many others - we grossed nearly $550,000 to support the vital missions of our organizations!
Our theme this ...
Some of the most important participants at the Promise Walks for Preeclampsia are healthcare providers who come out to support the Foundation. Many are community physicians and nurses who treat preeclampsia on a regular basis. The Promise Walk is an annual event held in numerous cities that allows the preeclampsia community to come together and mourn their losses, celebrate their hopes, and work together toward the common goal of raising money to fund research and create awareness.
Many Promise Walks invite healthcare providers to speak about their own professional experience with preeclampsia. That provider brings their own professional validation to the need for awareness and research, while giving attendees hope, knowing that there are medical professionals working diligently to solve the "preeclampsia puzzle."
So what causes these health care providers to be so passionate for the preeclampsia cause and to join our efforts at the Promise Walks? To provide ...
The 2011 Promise Walk has come to an amazing close and the Preeclampsia Foundation is already looking toward 2012! Have you considered hosting or volunteering at a walk? Even if you have just few hours to volunteer, we need you! Join us for the first Promise Walk planning call of the 2012 season on September 13 to learn about what it means to organize a Promise Walk, or email National Walk Director Becky Sloan about how you can support the efforts.
In 2011, Promise Walks were held in 24 locations, and for 2012, we are looking for eager volunteers who are interested in creating even more new walk sites or in volunteering a few hours to help an existing walk be successful. Organizing a Promise Walk is a little like a planning a party…if you’ve put on a birthday party or organized a wedding you are likely qualified to plan a Promise Walk!
There are five main components of helping to organize a successful Promise Walk: Logistics, Sponsorships, Registration, ...
The live auction at Saving Grace - A Night of Hope is lively and energizing. Shrieks of laughter and good natured competition inspire the audience to interact and bid high, receiving a fun and exciting trip, package or unique experience in return. These prizes are supplied by the overwhelming generosity and connections of our auction donors...individuals and businesses like you!
At this year's New York City Saving Grace on November 12, we plan to again include some fantastic prizes, with proceeds going to fund research and education programs of the Preeclampsia Foundation and the Foundation for America's Blood Centers, but we need your help! The Manhattan planning committee wants to outdo all previous events and is looking for charming live auction items for donation: trips, sports packages, luxury hotel and restaurant accommodations, jewelry, original artwork, are all popular prizes that ...
This was the biggest year in Promise Walk history, with more walks, more participants, and the most funds ever raised! Promise Walks were held in 24 cities in 19 different states and raised more than $271,000 for the Preeclampsia Foundation, with 2300 participants nationwide. Our largest walk hosted around 300 people. State governors and mayors proclaimed preeclampsia awareness day in 13 states and cities.
Many special tributes and fun features made each walk an inspirational and unique event. Butterfly releases in San Diego and Boston, a dove release in San Jose, survivor sashes in North Conway, personalized mile markers in Chicago, and a special feature with the Field of Cradles exhibit in Boston made each walk inspiring. Some of the fun features included face painting for kids and adults, and specialized desserts like Promise Walk heart cookies and "feet" cakes!
Walk participants at a few locations were treated to special guest ...
Amy Robbins-Wilson, the lullaby singer from Maine who wrote three songs for the “I Gave You Words”/Field of Cradles art exhibit, will be singing for participants of the Promise Walk for Preeclampsia™ in South Boston on Sunday, July 24th. Her performance will be a highlight for both children and adults present at the walk, and will be dedicated to the many babies lost each year, including the babies memorialized in the Field of Cradles exhibit, displayed at this year’s Promise Walk.
The Field of Cradles display is a poignant reminder to all that pass by, a grassy field of empty cradles, each representing a baby that has lost his or her life to preeclampsia. Inside each cradle lies a blanket with a poem on it written to and for that child, while Robbins-Wilson’s gentle lullabies play in the background.
Deeply moved by her involvement with the Field of Cradles exhibit and the words of ...
Whether it's a backyard barbeque in Dad's honor, hot dogs in the park or a play date at the swings, summer is the time to turn off the television and enjoy the easy spirit of extended daylight. It's also when we reconnect with our neighbors and friends... but it can also be a great fundraising and awareness opportunity!
Not only is it fun, but neighborhood yard sales and block party picnics are great chances for people to learn about preeclampsia and contribute to the work of the Foundation. Here's how to enjoy the sun and organize a local neighborhood block party:
- Invite each family to provide a side dish. Ask the manager of your local grocery store, hotdog stand or ice cream shop to donate food, water, or a sheet cake. With enough notice, most will be happy to get behind a community charity event.
- Line up activities like Frisbee, water balloon toss, face painting, basketball, family sack races, or inflatable bounce rental.
- Host in ...
On Wednesday, May 18, the Preeclampsia Foundation's Board Chairman Pat Dignan hosted a Saving Grace 2011 'Kickoff Reception' in midtown Manhattan. The purpose of the event was to gather New York City area constituents, share thoughts and ideas, and really build momentum toward the gala.
"Mission Accomplished!" announced Dignan. "We had a great turnout, despite a rainy and blustery Manhattan evening."
Attendees included area medical practitioners, corporate and individual sponsors, as well as leadership members from both the Preeclampsia Foundation and the Foundation for America's Blood Centers (FABC), since this year's Saving Grace Dinner Gala is a joint fundraiser, to benefit both foundations.
After Dignan welcomed the guests and delivered some opening remarks, a series of stellar presentations followed:
Lauren Larsen, President and Chief Ambassador of the FABC detailed how severe preeclampsia impacted her ...
Throughout the month of May, the Promise Walk for Preeclampsia has been raising awareness across the country: from Ohio to Florida, Minnesota to Texas, and California to Massachusetts, two dozen sites hosted walks with many of these being first time events. This year's walk season represents the largest effort to date with the most number of major cities and walkers participating, raising over $230,000.
The National Promise Walk team ambitiously raised the national fundraising goal to $225,000 this year. The Promise Walk coordinators took this challenge and delivered. San Jose, Calif., raised more than $30,000 as a first time walk; San Diego, Irvine, Calif., and Davenport, Iowa, were just shy of $20,000 each, while Chicago raised over $26,000 at the second annual Walk-turned CARA (Chicago Area Runners Association) certified 5K walk/run.
All walks included guest speakers such as preeclampsia and HELLP syndrome survivors, researchers and health care ...
Many of our newsletter readers will participate in or support a Promise Walk for Preeclampsia this May and June. The Promise Walks are one of the biggest fundraisers that the Preeclampsia Foundation hosts: they not only generate funds for the Foundation, but raise awareness about the disease in local communities. For many people, a walk is their first experience with the Foundation - their first time connecting with our community and becoming aware of preeclampsia's devastating impact. This connection is an excellent opportunity to motivate Promise Walk attendees to become year-round Foundation supporters within their local community.
There are many ways you can help get your neighbors, friends and families involved after the Walk is over:
- Encourage walkers to sign up for the Expectations newsletter to stay connected and motivated about our work; to see the impact their contributions are making.
- Host an event to raise awareness or money ...
Raising awareness in 2011 is no easy task.
A recent internet search of awareness efforts in May turned up 22 different causes, from asthma and allergy to stuttering awareness. As yet, the National Health Observances Calendar doesn't include Preeclampsia Awareness Month, although efforts are underway (with Congressional support) to add it.
So what can the Preeclampsia Foundation, an organization that recently celebrated its 10th birthday, learn from more established organizations and their campaigns?
Pink ribbons, red dresses, and yellow rubber bracelets immediately come to mind. Certain trends are prevalent in these successful awareness campaigns: a concerted public relations campaign, a celebrity spokesperson, partnerships with like-minded organizations, but most importantly, a clear message of the impact that a condition has on the American population.
Can an awareness "month" matter as we seek to raise the profile of our ...
The countdown to The Promise Walk for Preeclampsia continues with teams and individuals scrambling to secure the most donations. This month we celebrate our top three teams: Scuderia Reyes (San Diego),
Cooper Landon Barnett (San Jose), and Team "Down with BP" (Chicago), all with over $1,000 raised so far!
The top three individuals are giving the teams some stiff competition. Lisa Bloch (San Jose) has already brought in over $1,000 and Sarah Scott (Raleigh) and Stephan Pollitt (San Jose) are already over $500. With a little over a month to go for some of the walks, turn on the heat!
As many Promise Walk participants know, raising money early in the year can be quite difficult, particularly coming out of the post-holiday slums. Nevertheless, two Promise Walk for Preeclampsia volunteers did not let any excuse stop them from raising the highest funds for an individual and team. Janel Kovarik, the leader of the Chicago “Down with BP” team, raised $750 toward her personal goal of $1000, while Samantha Reyes and her team “Scuderia Reyes” of San Diego have raised an amazing $1,240 to date.
How did these two amazing volunteers do it? Janel, a two-time survivor of severe preeclampsia, explained that for her, it was all about networking with different circle of friends and telling people her story.
“Tell people your story- Tell them! Ignorance is bliss,” Janel explained. Her advice to other teams? Incorporate a ...