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Re : england

Post by annegarrett » Thu May 05, 2005 11:43 am

It is the same IRS rule for US as for UK doctors. We get donations from lots of UK doctors (particularly the good ones) and so cannot recommend any names, no matter where they live. The rule is not ours--it is the US law and so it really does tie our hands and I am sure you can appreciate how frustrating that is for us.

Thanks for asking the question--I bet a lot of people were wondering and now they know!

Anne Garrett
Founder/Spokeswoman
Preeclampsia Foundation

Re : england

Post by laura » Thu May 05, 2005 07:52 am

Helen, I'm afraid that is my fault- because of the way we have to do things here, to follow US non-profit laws- I asked the moderators to edit all names in the forum. I realize that things are different over in the UK, and APEC is lucky enough that they can actually name docs, but we can't. Our moderators really are incredible- they really put a lot of effort into providing support and I think they do a great job. To make life easier for them, it is much easier to manage the 5,500 posts per month if we have standard rules across the board. I realize though, that things are indeed different over there!

Laura
Webmaster/Forum Administrator
AK Area Coordinator

Alicia (severe PE) 5/98 ~ Camille (htn, oligo) 4/03
http://www.babiesonline.com/babies/c/camilleandallie/

Re : england

Post by helenw » Thu May 05, 2005 06:03 am

Hi Anne, I feel thats all I did, as you can see, the link to the APEC recomended Doctors page with the said doctor was included in the message. Thats why I couldn't understand why the Docs name was deleted.

Yes its a quandry.

Helen

www.pre-eclampsia.co.uk

Re : england

Post by annegarrett » Thu May 05, 2005 05:11 am

Helen,

All valid questions! We thought of that as well--how do we steer people towards or away from doctors. The challenge we face is the laws that govern a nonprofit prohibit us from "advertising" any particular doctor. If we put in a name and then accept money from that doctor the IRS sees it as advertising. So we cannot post names. What we can do is encourage our members to email people directly with suggestions, we recommend the professional groups who specialize in this disease (like APEC in the UK--who then can recommend who is best there and the North American Society for the Study of Hypertension in Pregnancy www.nasshp.org). It's a quandary--no question.

The UK has some of the best doctors in this field and APEC is doing great things.

Take care,



Anne Garrett
Founder/Spokeswoman
Preeclampsia Foundation

Re : england

Post by fiona » Wed Apr 27, 2005 09:04 am

Yes Catherine, to both questions. Although I had never heard of perinatologists before I came to PF and moved to Canada.

So Captain, have I been letting myself go grey these past months for nothing????



Fiona
dh Tom
ds Nate 12/8/97 - 14/8/97 26 weeks severe pre-e IUGR 1lb
ds Jay 4/11/98 30 weeks pre-e 3lbs 11 oz
no 3 due 15/6/05

Re : england

Post by akemt » Wed Apr 27, 2005 05:30 am

I have another question...are the titles of OB and midwife in England similar to those in the US? Did that make sense?

Catherine (24), Moderator
DH Britton (28)
Emma Margaret (03/02/03) 37 wks PIH & Oligo
Lara Julianne (07/31/04) 38 wks PIH & gallbladder fun

Re : england

Post by laura » Wed Apr 27, 2005 10:33 am

It saddens me that there is so much bureaucracy and red tape interfering with the ability to match one patient with one appropriate doctor.

As a beneficiary of the Indian Health Service, I've had it both ways, as a patient in a private facility and as a more socialized care system. I'm torn. I still use IHS for routine stuff, but if it looks at all complicated I seek a private second opinion. I feel fortunate to have access to both, but I'm not sure I'd come out strongly for either. As with anything else there are costs and benefits...

Laura
Webmaster/Forum Administrator
AK Area Coordinator

Alicia (severe PE) 5/98 ~ Camille (htn, oligo) 4/03
http://www.babiesonline.com/babies/c/camilleandallie/

Re : england

Post by twinqtsdad » Wed Apr 27, 2005 06:42 am

I want so much to add to this but don't know where to start. The nasshp should be given with a disclaimer also. It may be nonprofit, but that doesn't mean the its,, IMHO,, that its not bias. The Bylaws scare me, but then again its the best we can deal with at the moment.
I think of whats going on here in Naperville, Il. The folks in Naperville have got One of the best school systems going. Now they want to do the same with there hospitals. Naperville's (name not to be mentioned, Like voldermort in harry potter so i will use voldermort now in its place.) Voldermort hospital use to be very poor in the standard of care, but it has been built up to now be one of the best Hospitals around. So because Naperville has grown, they want to build another hospital on the other end of town with the same "best" plan. The problem is the Hospital asso. doesn't want it. The asso. is afraid it will take patients away from the other hospitals surronding Naperville. So Voldermort dropped out of the asso. (run by Dr's,. who are concerned about the best intrest of the patients) So It can build its new Hospital.
Did anyone see the 60 minutes episode about patients going to India for health care? Will moms be "vacationing" in india soon for delivery of there babies, will they still be US citizens? OK I gotto stop before i get all fired up again.
Yours Twolly, Twinqtsdad

Re : england

Post by catherine » Tue Apr 26, 2005 07:10 am

No, not at all, that's fascinating. The business about "not scaring" pregnant women is something that makes me insane. I really don't understand the attitude. I guess some of your blood is circulating through your placenta... but it's still going to your brain. I can't stand the "voodoo" garbage.... "don't dye your hair, don't drink caffinated beverages, you'll never have a healthy bonded relationship with your baby if you don't nurse within moments of delivery (all natural)"..... it's ridiculous that every baby magazine and website touts this garbage when it should really be saying to every pregnant woman.. "do you know what your BP is.... and do you know what it was before you got pregnant?". I'd be pretty happy with... "worry less about stretch marks and more about protein in your pee" also.

Catherine
Mom to Finn, Lucy (preeclampsia and HELLP) and Chloe.

Re : england

Post by helenw » Tue Apr 26, 2005 04:15 am

Hi catherine. Usually you are seen first by your GP. Many women go thru pregnancy only ever being cared for by the GP and a comunity midwife. But if things start to go wrong you are refered by your GP to an OB at the local hosp. So that is down to who your GP thinks is best. Of course you can request to change to a different Ob. But of course, we put our trust in them.

In my first pregancy & experience of PE I saw an Ob who didn't really seem to know what was what. Mishandled the whole thing. I saw him about 75% of the appointments I had. It was after that I requested to see the APEC doc in london for a pre pregnancy counciling appointment. It was then I started to get assertive, got involved with APEC and started doing stuff for them, and set up my PE website.

When I fell pregnant with my second child, I talked to a midwife at the hosp. She was also a memembr of APEC and I asked her recomendation. (APEC have training days just for midwives and that is such a good idea as they are right in the middle of the care) The OB she recomended was brilliant. Well up on PE. He would only see me, he wouldn't hear of another doctor taking the appointment, and one of the times I was admited he made a point of coming to see me. Also when I turned up at the hosp, not to well, he came to see me straight from surgery. He still had his little white wellie boots on even! And of course he was there for the section. So I saw him for my 3rd child also.

So I think it is pot luck who you see as an Ob. I am a strong believer of educating women so they are aware of the standard of care they are getting, and what to watch out for signs/symtoms, and if they are not happy with it, then to do something about it! The hospitals here are always close, but I guess thats because we are a squashed up country! There is the option of going private and paying for your care, but the hospitals are sparse, and I understand the docs are the same! But once you are under a docs care, you generally stay with him unless you request otherwise.

I think at the hosp they thought I was a trouble maker, but only because I pushed the PE thing, posters, leaflets and such. For some reason they don't want the women to know the signs and symtoms, because they might get scared. In my first pregnancy, the first time I was adnited to hosp with PE I asked about PE as I knew nothing. I was told not to worry, there was no danger to me, if there was any anger it was to the baby. What a statement! Firstly, yes I was in danger, secondly I was supposed to not worry, the danger was only to the baby??!! Unfortunatly I dont drive and have now divorced. So I lost my lift to the hosp, where I used to set up info stands and talk to patients waiting to see the Obs.

I am sorry for spelling mistakes here, its very late here in the UK and I should be asleep! Hope I didn't waffle on to much

Helen

www.pre-eclampsia.co.uk

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