by Petunia » Wed Jun 27, 2012 04:39 am
Thank you! In case anyone is interested, this is the email I ended up sending her:
I saw the article you posted on facebook about nutrition and preventing preeclampsia, and I just wanted to write you an email and give you my perspective on this. First I want to tell you I know that posting things like that comes with the very best of intentions, and I along with all of your students, certainly appreciate the level of care and devotion you show to us and to healthy pregnancies. I hope you won't take this is as any sort of personal attack. First, I just want to tell you the other side to the story, that article is 5 years old. Newer research is beginning to show that preeclampsia is most likely not related to nutrition. Unfortunately, it's a really under-researched disease so you can't really find definitive answers one way or another. However, I have a lot of faith in both of my doctors and I belong to an active preeclampsia forum, full of women who would do anything to prevent getting it again... but the reality is we cannot prevent it. I know women who followed the brewer diet or other "miracle fix" kind of diets to a "t" and still got preeclampsia again. I also know women who didn't change anything about their diet, and didn't get it again. I don't expect you take my word for it of course, here's one article (from just this year) on preeclampsia.org, this is a foundation dedicated entirely to the research and understanding of this horrible disease:
http://www.preeclampsia.org/component/l ... hypothesisThen this one is a blog written by another preeclampsia mother, she is not a doctor, but did a lot of research and posts links to her research in the blog:
http://whatyourunningfor.blogspot.com/2 ... -diet.htmlI realize that it may seem like there's no harm in posting things like that because eating healthy certainly cannot hurt. Unfortunately, there a pretty strong emotional backlash to this sort of mentality to those of us who have had it, especially those who had it and lost their baby like me. I am a very healthy person, I always have been. I eat healthier than at least 80% of the people I know and I can say that confidently. My husband and I buy our produce at the farmer's market, I'm a vegetarian and I love beans and kale and it's just always been a priority for me to be super healthy. I up my healthy eating when I'm pregnant, did from the start. So you have to imagine how it makes me feel when articles like this claim I could have prevented getting sick if only I'd eaten the right things. Then I look at the pregnant woman next to me who eats donuts and macaroni cheese for 9 months because that's what she's craving and her pregnancy and baby are healthy. To say it's frustrating would be an understatement. Again, I KNOW it's all well-intentioned... and if it were true it would be well worth it. I don't expect you to just take my word for it, so here's a post to a thread on the preeclampsia forums of other women explaining just how frustrating this point of view can be:
http://www.preeclampsia.org/forum/viewtopic.php?t=2274There are literally research teams who are currently dedicated to finding support articles to stop these kinds of articles from being circulated in order to stop the emotional damage that it does to women like me. I don't hold any of this against you, I'm not angry.... I understand where you are coming from. If you read all this and decide you want to keep posting articles like that (although I'd recommend not posting ones that are 5 years old) that is completely your right and your choice and I won't bring it up again. However, I just wanted to give you my side of the story, and I promise I speak for many other women as well. It's a side that's not heard too often. Too many women just quietly blame themselves for their loss or their baby's premature birth when it really wasn't anything that could have been prevented. I hope you don't get offended by this and I'd be happy to talk to you about all if it in person if you want! Sorry, this got super long!
Thank you! In case anyone is interested, this is the email I ended up sending her:
I saw the article you posted on facebook about nutrition and preventing preeclampsia, and I just wanted to write you an email and give you my perspective on this. First I want to tell you I know that posting things like that comes with the very best of intentions, and I along with all of your students, certainly appreciate the level of care and devotion you show to us and to healthy pregnancies. I hope you won't take this is as any sort of personal attack. First, I just want to tell you the other side to the story, that article is 5 years old. Newer research is beginning to show that preeclampsia is most likely not related to nutrition. Unfortunately, it's a really under-researched disease so you can't really find definitive answers one way or another. However, I have a lot of faith in both of my doctors and I belong to an active preeclampsia forum, full of women who would do anything to prevent getting it again... but the reality is we cannot prevent it. I know women who followed the brewer diet or other "miracle fix" kind of diets to a "t" and still got preeclampsia again. I also know women who didn't change anything about their diet, and didn't get it again. I don't expect you take my word for it of course, here's one article (from just this year) on preeclampsia.org, this is a foundation dedicated entirely to the research and understanding of this horrible disease:
http://www.preeclampsia.org/component/lyftenbloggie/2012/03/01/121-analyzing-the-nutritional-hypothesis
Then this one is a blog written by another preeclampsia mother, she is not a doctor, but did a lot of research and posts links to her research in the blog:
http://whatyourunningfor.blogspot.com/2012/05/brewer-diet.html
I realize that it may seem like there's no harm in posting things like that because eating healthy certainly cannot hurt. Unfortunately, there a pretty strong emotional backlash to this sort of mentality to those of us who have had it, especially those who had it and lost their baby like me. I am a very healthy person, I always have been. I eat healthier than at least 80% of the people I know and I can say that confidently. My husband and I buy our produce at the farmer's market, I'm a vegetarian and I love beans and kale and it's just always been a priority for me to be super healthy. I up my healthy eating when I'm pregnant, did from the start. So you have to imagine how it makes me feel when articles like this claim I could have prevented getting sick if only I'd eaten the right things. Then I look at the pregnant woman next to me who eats donuts and macaroni cheese for 9 months because that's what she's craving and her pregnancy and baby are healthy. To say it's frustrating would be an understatement. Again, I KNOW it's all well-intentioned... and if it were true it would be well worth it. I don't expect you to just take my word for it, so here's a post to a thread on the preeclampsia forums of other women explaining just how frustrating this point of view can be:
http://www.preeclampsia.org/forum/viewtopic.php?t=2274
There are literally research teams who are currently dedicated to finding support articles to stop these kinds of articles from being circulated in order to stop the emotional damage that it does to women like me. I don't hold any of this against you, I'm not angry.... I understand where you are coming from. If you read all this and decide you want to keep posting articles like that (although I'd recommend not posting ones that are 5 years old) that is completely your right and your choice and I won't bring it up again. However, I just wanted to give you my side of the story, and I promise I speak for many other women as well. It's a side that's not heard too often. Too many women just quietly blame themselves for their loss or their baby's premature birth when it really wasn't anything that could have been prevented. I hope you don't get offended by this and I'd be happy to talk to you about all if it in person if you want! Sorry, this got super long!