by maxs mom » Sun Feb 01, 2004 11:27 am
The number one thing that I appreciated at our NICU, which I don't think anybody else mentioned, Max's medical records were entirely open to us. There were two binders on the desk next to his isolette. We could come in anytime and read lab results, nurses daily report, etc. Nobody had to be there when we read it. And if we had questions we would just tell the doc on duty that day and they would come by when they had a chance. It kept us very up to date on what was going on and kept us involved in making medical decisions for Max. Another thing most of you didn't mention. My DH and I felt very involved in Max's medical care and only life threatening decisions did not involve us. And let me tell you, we had a lot to say about his course of medical care because we are both opinionated (me more so than DH)
Other than that, I think our experience was pretty much the same. There were more shift changes were we couldn't go in (3-4 a day), but anyone could visit with parent (as long as older than 18) if they were a sibling of the baby they had to be older than 4. We were able to hold Max as soon as he was on conventional vent (couldn't hold when on osciallator, tubing too stiff) and he was in stable condition. We were allowed to peronalize his area and even became friends with some of the nurses.
Kara (33)
DH, John (35)
Max, 1/20/03, 25 wks, 534g. (IUGR), severe PE
http://www.babiesonline.com/babies/m/mightymax/
The number one thing that I appreciated at our NICU, which I don't think anybody else mentioned, Max's medical records were entirely open to us. There were two binders on the desk next to his isolette. We could come in anytime and read lab results, nurses daily report, etc. Nobody had to be there when we read it. And if we had questions we would just tell the doc on duty that day and they would come by when they had a chance. It kept us very up to date on what was going on and kept us involved in making medical decisions for Max. Another thing most of you didn't mention. My DH and I felt very involved in Max's medical care and only life threatening decisions did not involve us. And let me tell you, we had a lot to say about his course of medical care because we are both opinionated (me more so than DH)
Other than that, I think our experience was pretty much the same. There were more shift changes were we couldn't go in (3-4 a day), but anyone could visit with parent (as long as older than 18) if they were a sibling of the baby they had to be older than 4. We were able to hold Max as soon as he was on conventional vent (couldn't hold when on osciallator, tubing too stiff) and he was in stable condition. We were allowed to peronalize his area and even became friends with some of the nurses.
Kara (33)
DH, John (35)
Max, 1/20/03, 25 wks, 534g. (IUGR), severe PE
http://www.babiesonline.com/babies/m/mightymax/