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Re : HELP!

Post by milesymommy » Tue Feb 16, 2010 12:13 am

I found the names of the sensory disorder - look under Sensory Integration Disorder or Sensory Integration Dysfunction. Try http://www.spdfoundation.net/

Re : HELP!

Post by kellyo19 » Mon Feb 15, 2010 01:12 am

Oh, HUGS! Sounds Miserable! Have you gotten any answers yet? I'm wondering like MilesMommy that maybe its a sensory issue? If you live in the US, the public school system or county public health should have something like Early Childhood Special Education or Early Intervention program that's free - and they can evaluate your child and help you sort thru things like this if the pediatrician is a dead end. You may need some kind of occupational therapy (it can help with daily living) ECSE can be a wonderful resource to help you sort this all out - they helped us get our daughter's egg allergy diagnosed when she was 15 mos. They can confirm there's a problem and work with doctors and specialists to get the baby back on track and healthy again.

We have lots of experience with constipation/Miralax. For babies - constipation is little pellets or very firm stools - and miralax can help soften. If he's backed up, you may need to give extra miralax until its toothpaste consistency - and then a little more until its runny - to make sure he's cleaned out. our daughter has lots of constipation issues and we do cleanouts every few weeks (she's 5 yrs now, been on it for 3 yrs now).

still look into the reflux, maybe try a white noise in his room (like a fan running or a white noise machine). We've had lots of health issues with our daughter - and you need to keep looking for a pediatrician until you find one that listens to you and helps you figure this out. Keep a log, maybe use a video camera to record these crying sessions, etc. These helped us when diagnosing the egg allergy.

Re : HELP!

Post by kbunsey » Thu Feb 04, 2010 05:10 am

I don't have any advice or suggestions just a ((((((((BIG HUG))))))))

Re : HELP!

Post by milesymommy » Thu Feb 04, 2010 01:27 am

I would definitely have him tested for reflux. But you might want to research another issue... I can't remember its exact name, but essentially your child may be over-sensitized to "feelings" - as in anything against the skin. I remember reading a blog. This woman for years battled with her daughter over getting dressed and her duaghter would scream every day. She was finally diagnosed with a disordered relating to sensations - essentially certain types of material against her skin literally felt like sand paper to her. I only think of that since you mention he loves being naked.

Re : HELP!

Post by kara » Thu Feb 04, 2010 01:20 am

I'd drag my husband to the pedi and tell them you aren't leaving until they figure out if it's silent reflux or something else. That's basically what I had to do. He's in pain for some reason and that's not right or normal. It could be a number of other things too, but that is the docs job.

Re : HELP!

Post by mommy2maddie » Thu Feb 04, 2010 12:38 am

The stools are the same as when he was on the regular formula, it is just happening more. His "original" formula is Similac Sensitive which is lactose free. I feel like there is not an answer to his crying! It is just hard because no one wants to babysit or be around him, including his grandparents, because he cries so much. I cant take him to the store or anything like that because the crying!

Re : HELP!

Post by kara » Thu Feb 04, 2010 11:42 am

Alissa, are the stools consistent in their consistency? What I mean is that he's not having diarrhea now or something different then before? Could it be the miralax that is causing problems? Do you notice mucous (literally like there is snot in the poo?)anything black that looks like seeds? Is the smell consistent? The bowel movements might be a good sign, but if it was a formula issue, the crying would likely have subsided as well. It really seems like it is something more...reflux or even a protein or lactose problem. Lactose would be better with soy formula or lactose free, and I'm guessing you've tried that.

Re : HELP!

Post by mommy2maddie » Thu Feb 04, 2010 10:56 am

Well so far on the hypoallergenic formula there is no change in the crying, however there is one change, he seems to be going to the bathroom more, like three times a day. Normally he only goes once and thats with Miralax, is this a sign that I should stick with the hypoallergenic formula?

Re : HELP!

Post by susheli » Wed Feb 03, 2010 08:50 am

Alissa, it sounds so hard - (((((((((((hugs)))))))))))). I agree with you: no baby cries so much for no reason. And I also agree with Kara. My seonc DD has reflux and it is utter *, BUT there is help and relief available. Sometimes reflux is "silent" which means you don't see the milk coming up, but the baby still suffers a great deal. This kind of reflux is even harder to diagnose. Can you try another doctor if yours won't listen?
DOn't give up - it "shouldn't" be like this!
xox Sush

Re : HELP!

Post by mnmom » Wed Feb 03, 2010 07:12 am

Agreeing with Kara. I feel your pain. My first daughter literally cried 10 hrs per day for months. She was the first grandchild on both sides and even her grandparents were afraid of her. My mom came to the ped with me for backup. She ate like a champ, didn't really spit up, but unless she was eating or sleeping, she screamed. I don't think reflux was diagnosed much back then-over 23 yrs ago, but that is certainly a first step. With Jess, car rides were relief. Also the sound of running water and the dryer gave a few minutes of relief. Ceiling fans, too.

All I can say is that it isn't you!! And, you need to make sure you are getting breaks from the stress. I can share that with mine, one day at about five months, she just stopped. Literally overnight. Now, she continued to be a very high strung toddler and preschooler. She was the tantrum and drama queen!! But, she is now 23 years old and working on her MBA. It will get better. Hang in there.

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