PF Board member's story featured

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Re : PF Board member's story featured

Post by tinalowe » Mon Dec 13, 2004 03:02 am

Thanks for sharing this article.

Tina 23
DH Dereck 27

Emma Victoria stillborn 12-28-03 severe pre-e


Re : PF Board member's story featured

Post by ann marie » Sun Dec 12, 2004 05:54 am

Thanks for sharing this article. So good to see the pf name getting publicized as well as the s/s of pe.

Ann Marie (29)Moderator for "Ask the Experienced" and "Bedrest"
Co-coordinator for Wisconsin
DH: Matt (32)
PIH/PE/Low Amniotic Fluid
Luke 3/17/04--37 weeks after 15 weeks of bedrest

Re : PF Board member's story featured

Post by natan » Wed Dec 08, 2004 10:42 am

I am going to see my Dr. tomorrow. I will bring him a copy.

Wow, maybe this will be a wake-up call for more research to be done.

Deborah
Northern Ca Coordinator

Re : PF Board member's story featured

Post by annegarrett » Wed Dec 08, 2004 06:16 am

I hear what you are saying Amy, but sadly the Donna's case was not one where being aware of the signs would have made a difference. She had no clear symptoms of problems until after delivery and the boys were only delivered on essentially a "hunch"--one that likely saved their lives. I think the sad thing that I see about such deaths is that a lot of them are well educated, aware, well-tended women--and so the thing that will make the most difference is more research dollars going to study the disease.



Anne Garrett
Executive Director
Preeclampsia Foundation

Re : PF Board member's story featured

Post by amym » Wed Dec 08, 2004 01:31 am

I am so sorry that Donna's doctors were not able to figure her case out. That is just so horribly unfair to have two beautiful babies and never get to hold them or watch them grow.

Being a journalist, I am disappointed in the fact that the story didn't end in a more positive light -- it didn't mention the many clinical studies that are being conducted, nor did it mention how many women are saved because they visit this Web site and become familiar with the warning signs. I know there's no way to sugarcoat what the Dignans went through, but I felt as though the story just left me feeling helpless and negative.

Regardless, any publicity is a positive thing.


Amy (28)
Mom to Delaney, born 11/26/03 @ 37 weeks, PIH & severe IUGR

Re : PF Board member's story featured

Post by mada » Sun Dec 05, 2004 05:49 am

Thanks so much for sharing. I admire your strength and courage and dedication as a father.

Mada Harpster-moderator for pregnant again

Sam 6-29-00 36weeks P.E.
Ben 11-03-01 No P.E.

Re : PF Board member's story featured

Post by annegarrett » Sat Dec 04, 2004 11:55 am

I should add that nearly everyone quoted in the article is associated closely with the PF. It was a real act of courage for Pat to share this.



Anne Garrett
Executive Director
Preeclampsia Foundation

Re : PF Board member's story featured

Post by tafkap » Fri Dec 03, 2004 08:19 am

What an amazing story. I am in tears. Thank you for posting the link, Eleni!

Jessica- Colorado Co-Coordinator
dd Katherine Grace born
10-13-2003
34weeks,6days,39minutes PIH/ Pre-E www.coreyandjess.info
~10 lbs lost! 17 weeks to goal weight- then TTC #2!~

Re : PF Board member's story featured

Post by denise » Fri Dec 03, 2004 07:58 am

Thank you for the link Eleni! My heart goes out to Mr Dignan and his children. I appreciate him sharing his story.

-------
Denise (28) Co-coordinator for WI
Jason (32)
Ariana (18 months)-born 5/3/03 at 35 weeks due to HELLP
Currently TTC #2
http://hometown.aol.com/scrapperlang/Home.htm

Re : PF Board member's story featured

Post by frasiah » Fri Dec 03, 2004 06:51 am

I am so sorry for Mr. Dignan. Thank you for sharing your story with us. May you be blessed.

Frasiah
DD sev PE (29 weeks) 07/03/03
m/c 06/04
# 2 due 05/26/2005

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