Perceptions of women's feelings about PE

Post a reply

:
In an effort to prevent automatic submissions, we require that you enter both of the words displayed into the text field underneath.
Smilies
:D :) ;) :( :o :shock: :? 8-) :lol: :x :P :oops: :cry: :evil: :twisted: :roll: :!: :?: :idea: :arrow: :| :mrgreen: :geek: :ugeek:
BBCode is ON
[img] is ON
[flash] is OFF
[url] is ON
Smilies are ON
Topic review
   

If you wish to attach one or more files enter the details below.

Expand view Topic review: Perceptions of women's feelings about PE

Re : Perceptions of women's feelings about PE

Post by jules2 » Mon Jan 04, 2010 11:22 am

Yes, we are really really scared by a sudden onset life-threatening disease, quelle surprise!!!

The OBs were too busy trying to save my life / brain to worry about talking to me at the time, but I kind of realised that (which does not help the fear). I remember them telling me "We are doing everything possible to reduce the risks" which did not reassure me at all. Another comment was they felt that they still had about 24 hours before I died (well, lets not wait until the very last minute...)

Having said that, my brief experience of being pregnant again after fulminating PE/ HELLP / stillbirth was that I was treated physically and emotionally as priority number 1, even at the high risk ante-natal clinic I attended. Not that being treated as the highest of high risk made me feel a lot better about it all, but it was the best that could be done.



Re : Perceptions of women's feelings about PE

Post by angieb » Sat Jan 02, 2010 09:27 am

quote:
For me, I think the lack of information was scarier than the facts. It was a relief afterward to get statistics and details about PE here, and to talk to my new doctors about why different decisions might have been made, even to realize how much worse it could have been. My feelings were probably influenced by concerns re: medical care generally (family history of medical mistakes), but those last couple of months, I would have given anything to have had someone sit down (without looking at their watch, without one foot out the door) and say, "here is everything we know about the disease and your current symptoms. Here are the reasons I'm recommending XYZ, and here's why I feel it's the least risky course of action for you and baby." At the time, it felt like information was kept from us, and I've never felt more helpless.


I agree! And it's especially bad when you are completely blindsided by it and know almost nothing about it.

Re : Perceptions of women's feelings about PE

Post by caryn » Fri Jan 01, 2010 09:25 am

Preeclampsia is absolutely, realistically, scary -- but I too found that understanding why courses of action were being recommended eased my fears. I wanted to know that the medical decisions I was making were actually the ones that supported my interests and values, and to do that I needed an explanation, an argument, for why Method A lowered my risks more than Method B.

I know they don't always have time to do very much of that, but that's the way my brain works.

Re : Perceptions of women's feelings about PE

Post by blythe » Fri Jan 01, 2010 05:27 am

Emily, I agree 100%.

Re : Perceptions of women's feelings about PE

Post by jmom08 » Fri Jan 01, 2010 05:05 am

For me, I think the lack of information was scarier than the facts. It was a relief afterward to get statistics and details about PE here, and to talk to my new doctors about why different decisions might have been made, even to realize how much worse it could have been. My feelings were probably influenced by concerns re: medical care generally (family history of medical mistakes), but those last couple of months, I would have given anything to have had someone sit down (without looking at their watch, without one foot out the door) and say, "here is everything we know about the disease and your current symptoms. Here are the reasons I'm recommending XYZ, and here's why I feel it's the least risky course of action for you and baby." At the time, it felt like information was kept from us, and I've never felt more helpless.

Sorry for rant... long way of saying I agree 100% with giving women more information and humanizing treatment!!

Re : Perceptions of women's feelings about PE

Post by audrey s. » Fri Jan 01, 2010 03:34 am

Yeah, after all, when you're pregnant, you're just "hormonal" and the "fear" isn't of anything "real." I'll join you in the *headdesk*!

Although I will admit, pre-eclampsia is, realistically, SCARY, thankyouverymuch, and emphasizing and teaching the pregnant patient "you can die, women do of this disease, and your baby can die or be significantly injured as a result" is not exactly conducive to keeping those blood pressures down!

Re : Perceptions of women's feelings about PE

Post by caryn » Wed Dec 30, 2009 04:03 am

Well, we can make it part of our CME.

Seriously, though, who *doesn't* respond well to -- hey, you're dying, but trust me! I have a knife!

Re : Perceptions of women's feelings about PE

Post by kara » Wed Dec 30, 2009 03:04 am

Heck yeah, Blythe! We can have patients who are getting the run around take this study into their docs office.

Re : Perceptions of women's feelings about PE

Post by beth11 » Wed Dec 30, 2009 01:38 am

Sorry, but I'm sitting here cracking up! Scheeze.

Re : Perceptions of women's feelings about PE

Post by blythe » Wed Dec 30, 2009 11:52 am

Oh my... well, at least we have a study that says so, right? :-D

Top

cron