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Expand view Topic review: Jacksonville/Gainesville

Re : Jacksonville/Gainesville

Post by evancaleb10 » Sat Oct 09, 2010 10:10 am

Hi Meghan, I'm new to the forums and viewed the discussion with you and Trish a couple of weeks ago about your choice of docs here in Jax, FL. I sent you an email a couple of nights ago and was wondering did you receive it? Thanks. -Esther

Re : Jacksonville/Gainesville

Post by sarab » Tue Sep 28, 2010 12:14 am

No problem - really!

Re : Jacksonville/Gainesville

Post by me793462 » Tue Sep 28, 2010 09:16 am

Thanks Sara. Sorry about that.

Re : Jacksonville/Gainesville

Post by sarab » Tue Sep 28, 2010 12:27 am

Hi ladies, just a reminder that we can't discuss specific doctors, hospitals, or practices here on the boards. Any mention, good or bad, can be viewed as advertising by the IRS, so we do have to edit when names are mentioned.

We would love for you, however, to continue this discussion via email. Finding a good doctor, especially after a traumatic preeclampsia experience, can be daunting. I am so pleased that you have connected and can help each other out!

Re : Jacksonville/Gainesville

Post by me793462 » Tue Sep 21, 2010 09:56 am

I totally understand where you are coming from. It hasn't even been a year yet since your loss. So, give yourself some time. I still have really bad days and it has been a year and half since my loss. Mostly, my friends have been understanding. I think a lot of them feel as though I am over it now that I am pregnant again. What they do not realize is that being pregnanct again brings it all back to the surface. My mother has been my rock. She lost my brother about 13 years ago. So, she has really helped me through the grieving process.

***** has been really good at explaining what is going on with baby and me. I see *****. Do any of them practice at the ***** Office? The nurses at the ***** downtown office are great as well.

At *****, I see *****. Dr. ***** will be going my c/s. He delivered Rylan as well. So, I feel a connection with him.

If you would like to talk more about my care, etc. feel free to drop me an email. I would be more than happy to help you in any way that I can: meghdill@aol.com



Re : Jacksonville/Gainesville

Post by trish9 » Mon Sep 20, 2010 04:38 am

Hi there,

I have a friend who lives near Atlantic and Kernan - it is nice there.

I haven't seen a counselor, but I have been thinking about it lately. I don't think that I have really come to terms with the loss of Alex. I can't even talk about him without crying and I read in one of the grief books that was a sign of prolonged grieving?? I don't know how anyone can set a time limit on grief though. Anyways, I have been dealing with my chronic kidney disease diagnosis too, so I think counselling might be a way for me to talk about everything. I have a good friend who is supportive, but I feel like I am always being a "downer", so I'm trying to talk about happy things instead. Have your friends been understanding?

Well, I don't want to say negative things about anyone, but I was seen at *****. I think most of the docs there were ok but they told me that they hadn't encountered anyone like me. I had a bad experience with one who told me that I was going to end up with a kidney transplant because "you pushed it too far". Then 5 days after Alex died I was told to get a surrogate because "it would still be your kid". I also had ***** as consultants, although I was at their Belfort practice. They were fine, but I am a little concerned about the fact that they only consult. I felt like no one was in charge or making decisions. I'm glad that you have a group that you are comfortable with. Are they good at explaining what is going on with you and baby? If you wouldn't mind I would be interested to know who you see. I know Gainesville is kind of far, but I really feel like I need someone who has worked with someone truly high risk like we unfortunately are!

Trish

Re : Jacksonville/Gainesville

Post by me793462 » Mon Sep 20, 2010 12:59 am

Hi Trish,

I live in the Intercoastal West region off of Atlantic Blvd. and Kernan Blvd.

As far as the stress, I have had a lot of it. I do see a therapist and that has helped. Did you see anyone after the loss of Alexander? I also get prenatal massages as often as I can. But, at the end of the day, I am still a mess. I do not see how you can avoid that after losing a baby to this aweful disease :(

What OB did you see in your first pregnancy? I see ***** OB/GYN at ******. I also see ***** (MFM). They are locted at ***** downtown. I really like this group. They are very experienced and take all of my concerns and questions seriously. MY MFM group only consults. I will still be delived by the ***** group. I really like ***** as well. ***** now has a level II NICU. So, that is something to consider.

I think ***** works with a MFM group out of Gainesville. My issue with that is that Gainesville is about 1 1/2 hours away. When you reach the end of your second trimester, you will be seeing them a lot and that is quite a drive.

Re : Jacksonville/Gainesville

Post by trish9 » Sun Sep 19, 2010 08:45 am

Hi Meghan,
I used to be at the beach, but am now in the Mandarin area. Whereabouts are you?
I am so happy for you that you are 33 weeks! I'm sure that you are anxiously counting down. How did you keep your stress level down when you were reaching the 29 week point? I am worried that if I get pregnant again that I will be a mess starting the second trimester.
I have an underlying kidney disorder and thankfully my kidney function and blood pressure looks great now. I am so thankful for that. I unfortunately did not have the best experience with my last physician, so I am looking for a MFM. Have you been happy with whomever you are seeing? I am thinking of seeing a high risk group in Gainesville.

Trish

Re : Jacksonville/Gainesville

Post by trish9 » Sun Sep 19, 2010 08:36 am

Hi Lisette

How do you like nyc? I have only visited, but thought it was such a fun, energetic city.
During my pregnancy I was diagnosed with chronic kidney disease and hypertension. I had checkups in the past and had high blood pressures but it had been written off as due to my stressful job. I now have a kidney specialist and thankfully my blood pressures and kidney function are very stable. I am going to establish with a MFM and ask to be tested for clotting disorders too. I figure that it can't hurt to be thorough?
BTW I take a high dose fish oil for my kidney disease. Has it been shown to have benefit in pre-e?

Trish



quote:
Originally posted by Trish9

Hello - Just checking in to see if anyone is still in the NE Florida region?


[/quote]

Re : Jacksonville/Gainesville

Post by me793462 » Wed Sep 15, 2010 09:22 am

Hi Lisette,

About 6 months after my loss, my MFM did the thrombophilia panel. They drew about 15 vials of blood. I came back positive for hypothryoidism. I did not test positive for any other underlying disorders. They referred me to an Endocrinologist who immmediately put me on Synthroid. My Endo asked that I get my TSH level down to 2 before TTC. I did this and started trying again about 8 months after losing Rylan. I became pregnant a few months later.

Since being pregnant, I have been on the Synthroid, LDA, Calcium, and Prenatal Vitamin. Other than that, I am not doing anything different other than monitoring myself at home and by my doctors. I am up to two appointments a week now. I monitor my BP everyday, weight myself every two days and have been doing my kick counts everyday since 28 weeks.

So, if all goes well in this pregnancy, we may never know the reason. It could be the fact that my thyroid is under control now or that it is my second pregnancy. It could be a number of things. Of course, I am just over 33 weeks. So, PE/HELLP could still sneak up on me.

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