I'm going to ****. I went to **** and had a horrible experience there, I wast there for 6 hours and could barely drive home afterwards... plus the attitudes were horrible. So I am seein the **** ppl who come to **** on tuesdays...

Joy, have you asked them to refer you to the Maternal Fetal Specialist? There is one at **** and **** Hospital has one, so it wouldn't be too far for you.

I am also in Central florida Daytona area. I have three children, my first two were PE free born at 37 weeks. my youngest was born at 35 weeks three days after the onset of severe PE, I had been showing s/s since 24 weeks. I am pregnant by accident with number four. I am currently 28weeks and am doing the Labor and Delivery Yo Yo, my BP's are high (sometimes 150/95) and I have proteinuria, I'm on meds currently. I absolutely HATE Pe.

szavella, you are so right, the Health care providers down here do not have the knowlege they need to educate patients, or even treat appropriatly. I don't think they understand PE, they know what it causes but most I talk to have no idea how to handle it. They are stuck inside a box of three pages in the medical books about it.

So Frustrating.

I am in Central Central Florida. My new OB thinks my daughter (delivered stillborn on Dec. 29, 2011) died because of HEELP syndrome. We are trying to conceive again and he will monitor me closely and induce early if needed.

Hello! My name is Susan and I am also from Central Florida. I was undiagnosed with preeclampsia, thankfully went into labor 3.1 weeks early, delivered a healthy baby girl then had postpartum seizures when my daughter was 4 days old. (I was home alone at the time) I realize now what a blessing from God my beautiful daughter is and that I am lucky to have survived!

Hello Central Floridians! My name is Jeni McCreary and I am the Group Coordinator for Central Florida for the Preeclampsia Foundation.

Three years ago, I gave birth to my angel baby at 31.4 weeks (daughter- Halle Christene). I had severe P/E with the onset of kidney failure. My daughter weighed 3 lbs, 9 oz. and was in the hospital for approx. 5 weeks. The nurses in the NICU called my daughter, “Little Miss Feisty” and let me tell you- Halle Christene is living up to her nickname! She is our angel girl and we are so blessed to have her in our lives. Both she and I are healthy and happy.

I went through the P/E experience deciding I was done having children. However, when Halle turned two and in the spirit of blessings… my decision changed. I went to my high-risk doctor who ran some tests and we had long conversations about P/E. The tests returned with a 30-50% chance of getting severe P/E again. Yikes. My husband immediately shook his head “NO” and said, “We’ll adopt”. While I agree that adoption is something to look into… I still have a longing in my heart to carry a child on my own. I started doing research and felt like I had to turn the negative frustration about this disease into positive education and proactive action. You can imagine my surprise to find lack of education, lack of awareness for pregnant mothers and the Healthcare industry. It was equally surprising to realize not much government funding for research, prevention and cures is being afforded or championed!

That is why the PE Foundation is so amazing. They are an incredible group, working at so many levels to champion the fight for awareness and education surrounding this disease. I want to encourage networking, the sharing of ideas, stories and suggestions to PE Foundation or myself. It is so important for us to get to know one another and work toward the common goal: education of Preeclampsia and other pregnancy-induced hypertensive illnesses.

I wish I had known someone was available to share with me, visit with me in the hospital for those weeks prior to delivery, to help me understand that I was not alone in this battle. You are not alone if you are going through PE or pregnancy-induced hypertensive illnesses. Please reach out!

Thank you for taking the time… it starts with just one. Looking forward in hearing from you real soon!

Best Regards,

Jeni McCreary
Group Coordinator- PEF Central Florida

31.4W Severe P/E, 1 daughter (age 3)