by jfindley » Tue Mar 22, 2011 06:53 am
I am so sorry you are dealing with this. While our 26weeker was in critical condition in the NICU, we had a hard time with Facebook. Some of our family who had received pics from us via email ended up posting the pics on FB with the kindest, proudest intentions, but it was devastating for us. We had them remove them asap but it opened us up to all kinds of questions and comments during a time we were in such shock and fear that we had a hard time dealing. As he stabilized(months later) we were ok with posting a few choice pics and sending out updates, but mostly we used personal email to update friends and fam. Our son survived, but it was still tough to see his cousins (all born within months of him, full term) photos posted and seeing what a difference there was between them even though they would eventually be considered the same age one day. Facebook is tough during these times, no doubt about it.
I am so sorry you are dealing with this. While our 26weeker was in critical condition in the NICU, we had a hard time with Facebook. Some of our family who had received pics from us via email ended up posting the pics on FB with the kindest, proudest intentions, but it was devastating for us. We had them remove them asap but it opened us up to all kinds of questions and comments during a time we were in such shock and fear that we had a hard time dealing. As he stabilized(months later) we were ok with posting a few choice pics and sending out updates, but mostly we used personal email to update friends and fam. Our son survived, but it was still tough to see his cousins (all born within months of him, full term) photos posted and seeing what a difference there was between them even though they would eventually be considered the same age one day. Facebook is tough during these times, no doubt about it.