by laura » Mon May 16, 2011 09:47 am
I think the discrepancy might be in how the statement is phrased- I've seen a really low recurrence rate, too- at 5% from reputable sources, but because HELLP syndrome is so relatively rare, that 5% is still much higher than women who have never had preeclampsia before.
I seem to remember something like 10% of all pregnant women will have some sort of hypertensive disorder of pregnancy. 5% will meet the diagnostic criteria for preeclampsia. 1% will meet the criteria for severe preeclampsia, and a fraction of that 1% will develop HELLP syndrome. (Heaven help me, I have no idea how accurate it is, other than a general rule of thumb)
Good docs can go a whole career and never see women as sick as many of us got and many more of them may never have seen HELLP syndrome, either. There's some speculation that because it is so relatively rare that it isn't specifically diagnosed as often as it may occur in pregnancy- after you get that sick, they don't need any additional affirmations that you need to deliver! Just some perspective to keep in mind- we're the exceptions for most rules and the repository for worst case scenarios! The quality of information available to us as survivors is a world different than it was during my first pregnancy in 1998 and even at my second 5 years later. It is taking them a while to catch up with us!
I think the discrepancy might be in how the statement is phrased- I've seen a really low recurrence rate, too- at 5% from reputable sources, but because HELLP syndrome is so relatively rare, that 5% is still much higher than women who have never had preeclampsia before.
I seem to remember something like 10% of all pregnant women will have some sort of hypertensive disorder of pregnancy. 5% will meet the diagnostic criteria for preeclampsia. 1% will meet the criteria for severe preeclampsia, and a fraction of that 1% will develop HELLP syndrome. (Heaven help me, I have no idea how accurate it is, other than a general rule of thumb)
Good docs can go a whole career and never see women as sick as many of us got and many more of them may never have seen HELLP syndrome, either. There's some speculation that because it is so relatively rare that it isn't specifically diagnosed as often as it may occur in pregnancy- after you get that sick, they don't need any additional affirmations that you need to deliver! Just some perspective to keep in mind- we're the exceptions for most rules and the repository for worst case scenarios! The quality of information available to us as survivors is a world different than it was during my first pregnancy in 1998 and even at my second 5 years later. It is taking them a while to catch up with us!