by kdreher (2482 Posts), Fri Feb 06, 2004 08:13 am
I have not visited in quite some time, but you are all never far from my mind. I recently rec'd the email in regards to the loss of another mom/child! I vow to send this letter to Oprah.com every week until she hears me...I hope I have not stepped on any toes, and even though I do not know you all personally (Anne included) it is time we ask those with the backing and $$ to help!!
This is what I sent today (limited to 2000 chrac.)..
I am writing to you, no pleading, that you read this letter! Did you know that over 6 million women every year get preeclampsia in the world with it being a leading cause of women and their babies dying during pregnancy?
Preeclampsia is a disorder that occurs only during pregnancy and the postpartum period and affects both the mother and the unborn baby. Affecting at least 5-8% of all pregnancies, it is a rapidly progressive condition characterized by high blood pressure and the presence of protein in the urine.
This is something that I experienced in 1995. At the age of 25, I was just 26 weeks + 1 day gestation and my seemingly wonderful, healthy pregnancy took a turn for the worst with out any warning. My blood pressure rose to 160/140 and I suffered from two grand maul seizures. My body was shutting down and the only cure was to take my son early. I had also developed the HELLP syndrome. Although I survived, my son passed away in my arms just two weeks later.
Many, many women have stories that envelope some form of eclampsia. Anne E. Garrett started an organization after the HELLP syndrome almost took her life in 1996. Anne writes, Ã¢â‚¬Å“we started this organization because there was not one there for us when we needed itÃ¢â‚¬Â and in my opinion, there still is not enough information out there for us women. The Preeclampsia Foundation is a 501 (c) (3) non-profit operating organization established in the year 2000 to promote safe pregnancy and post-partum research, public education and patient support. We can use as much exposure as possible and always welcome financial and operating support. Thanks to Anne, many of us have found a place to tell our story. Though I do not know Anne or many of the women well that belong to the organization, we all have something in common.
Oprah, I am asking you because of your notoriety and passion for womenÃ¢â‚¬â„¢s issue, as well as, your contact with other celebrity who may have dealt with this issue secretly, to hear my story, AnneÃ¢â‚¬â„¢s story and all those who have been through this. We need your support in the fight for women and childrenÃ¢â‚¬â„¢s health and safety.
DH, Tom (33)
Tyler 3-9-95 to 3-23-95 (26 wks pe/HELLP)
firstname.lastname@example.org or email@example.com