NIH Study

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NIH Study

Postby angela demoore » Sat Jan 25, 2003 05:58 pm

We have been asked by the National Institute of Health to partner in a study to test the DNA of 50 of our members and their extended families. If you are interested in participating in this study--you must have had
a) preeclampsia in the past two years
b) a surviving infant who you are willing to swab the inside of their cheek with a Q-tip to collect a DNA sample
c) willingness to ask members of your immediate family to donate saliva samples (you will just provide them with the package and they will be able to mail it directly to the lab.)
d) willingness to fill out an NIH survey.
Please either email me (angela@preeclampsia.org) to indicate your interest, or post a response to this message in the forum.
Thanks [:)]


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Re : NIH Study

Postby myfreckleface » Mon Jan 27, 2003 09:35 pm

Hi! I am interested in participating.
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Re : NIH Study

Postby annegarrett » Mon Jan 27, 2003 10:42 pm

Right now the requirements for participation include:

1) Had preeclampsia or HELLP in the last two years
2) With your first pregnancy
3)Your baby survived (they want to get DNA samples from the babies)
4) You will donate saliva (to donate you take a cotton swab that is provided and rub inside your cheek and then put that sample in a plastic bag that is provided and put that into a pre-addressed and prepaid envelope and mail it in)
5) You can convince most of the following people to donate saliva samples :
your partner or parent of the baby, the baby
your mother and father, biological sisters, brothers, their spouses/partners and the resulting first born of that union
your partner's mother and father, biological sisters, brothers, their spouses/partners and the resulting first born of that union
6) I am not sure but this MAY be restricted to residents of the USA. I will find out and post it here.


If you meet these requirements--send an email to angela@preeclampsia.org and put NIH STUDY in the subject header.

Thanks! To start with we need 50 women and their families. If this goes well--we will need 250. It is an easy thing you can do to make a difference!



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Re : NIH Study

Postby natan » Mon Feb 03, 2003 12:08 am

I would be willing to particpate in (NIH study) if it is not too late. Let me know how I can help. My email djleibo@yahoo.com. It is a relief to know that so many people are/going through similar experiences.

Thanks for sharing your stories, it does help.[:X]
Deborah.



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Re : NIH Study

Postby triplet3boys » Tue Feb 04, 2003 11:14 am

i would also like to help
my email address is stephaniegross@msn.com

http://pages.ivillage.com/triplet3boys/
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Re : NIH Study

Postby jacobsmom » Wed Feb 05, 2003 01:24 pm

I am happy and willing to participate. I live and work down the street from NIH.
Where do I sign up.

Leslie Hanrahan[:)]


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Re : NIH Study

Postby leighann » Fri May 30, 2003 08:09 pm

I will do this after my baby comes, if it's still going on.

Leighann 26
DH-Charles 30
EDD #1 8/6/03
Diagnosed with pre-eclampsia at 28w3d. On bedrest until Gabrielle arrives! :(
Estimated induction is 7/18 at 37w!
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Re : NIH Study

Postby tahoe 4 » Mon Jun 02, 2003 10:49 am

I am interested in participating. I had severe PIH and Eclampsia in December 2002. Thanks.

Stephanie
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Re : NIH Study

Postby expert on call » Mon Jun 02, 2003 11:35 am

Update on this. We are working with the NIH to finalize the questionaire and we will need to get what is called an IRB (Institutional Review Board) approval before we start. We are hoping to launch it in July/August.

Every registered member will get an email notifying them that the study has started and some details and we will also put a big notice on the forum.

If you haven't registered--go to our home page (click on our logo above) and then click on the REGISTER box.

I know we will have a great study!!

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Re : NIH Study

Postby akemt » Tue Jun 10, 2003 06:16 pm

Is this pre-eclampsia specifically or does pih count too[?] lol

Because I would love to participate though was diagnosed with pih durring my pregnancy. Let me know and I'll start convincing our family...lol

Catherine (22)
DH Britton (27...soon)
Emma Margaret (03/02/03) 37 weeks from PIH & oligo (caused by pih)
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