New with questions about HELLP

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!
melissa71502
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Re : New with questions about HELLP

Postby melissa71502 » Thu Aug 03, 2006 05:00 pm

You need to make sure the doctor is checking your platelet count and liver enzymes, that is the only way to diagnose HELLP. HELLP does not have occur with pre-eclampsia. I had HELLP and my only symptoms were just as yours are, without dizziness and spots before my eyes. I did not have high blood pressure until a couple days after HELLP was diagnosed. I only lasted 10 days after my diagnosis on hospital bed rest with steroid shots to increase my platelets. Ultimately the reason I was delivered was because of low amniotic fluid (a result of the placenta not supplying enough food for the baby) and my worsening condition.


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caryn
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Re : New with questions about HELLP

Postby caryn » Thu Aug 03, 2006 10:34 am

HELLP is very, very dangerous. We've had posters here who went through immediate c-section delivery upon diagnosis and then went straight into the ICU for two weeks because their kidneys had failed and their blood wasn't clotting. Women have their livers rupture. Relative to even severe PE it has a startlingly high maternal mortality rate.

I would be surprised if you found a doc comfortable waiting on it for weeks after diagnosis at all, even if you did get lucky with it in the past. The bloodwork is the deciding factor here usually -- they're looking at some numbers that will tell them if your liver and kidneys are failing.

A perinatologist is a high-risk OB or a maternal-fetal medicine specialist, trained to handle these sorts of pregnancies. Even an OB who tries to keep up on the research just doesn't see very many cases of severe PE or HELLP, so a peri is a better bet for those pregnancies since the peri will have vastly more experience.

A BioPhysical Profile (BPP) is to check on the bloodflow and oxygenation of the baby, to see if the placenta is failing. It's thought that the ultimate cause of these pregnancies is a placenta which is undersupplied with blood and oxygen, often because it implanted shallowly, often because your immune system didn't respond properly to the arrival of the placenta.

I agree with the others; you're reporting the sort of history and symptoms that need to be taken seriously. I'm glad to hear they've run bloodwork -- at my hospital, bad bloodwork meant they called a peri and did a BPP automatically, so you may not have to worry about how to get them for your care. Please keep us posted as you are able, and good luck.

lgw
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Re : New with questions about HELLP

Postby lgw » Thu Aug 03, 2006 10:24 am

You need to get checked out ASAP. HELLP is very serious and is only diaognosed w/ a blood test. If I were you, I would go to your doc immediately or L&D if you don't think your doc will take you seriously. The symptoms you describe are very concerning. I don't want to alarm you, but babies and sometimes mothers die b/c of pree/HELLP. Please get checked out.

babymakes5
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Re : New with questions about HELLP

Postby babymakes5 » Thu Aug 03, 2006 09:41 am

I am 36 weeks with a c-section scheduled in 14 days. I think that is why the doctor is so hesitant to do anything, since I am already on the calendar. I don't know alot about HELLP, because when I was diagnosed with it with my second son, it was a German OB, and alot of the information was lost in translation. Since my date is so close, is it possible that I can just go that long with the symptoms? The only urine tests that have been done were protein litmus test at routine visits and an UA a week in a half ago, for suspected UTI. It came back negative. They haven't done any monitoring of the baby, just instructed me to do kick counts. Movement is down, and the movement is weakier but doctor saw this a no concern. Two questions, what is a perinatologist and what is a bio physical? Who do I make such request through?

emersons mom
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Re : New with questions about HELLP

Postby emersons mom » Wed Aug 02, 2006 10:46 pm

Sounds like HELLP....beyond beginning stages.....how far along are you now? have they done a 24 hour urine test? have they monitored the baby for activity and development? As you have have read on this site......you are at increased risk of hellp in subsequent pregnancies.....perhaps you need a perinatologist since your ob missed the signs.....please demand a bio physical on your baby.....as the development of hellp can require immediate delivery.

keep us posted!

babymakes5
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New with questions about HELLP

Postby babymakes5 » Wed Aug 02, 2006 07:50 pm

I am expecting with my 3rd child. With my first child, I was diagnosed with appendicitis and had my appendix removed at 37 weeks. My son's heart rate dropped inutero and they then had to do an emergency c-section. Symptons, included right abdominal pain and severe vomitting. After the fact, my appendix was found to be NOT infected. With my second son, I presented with pain symptons in the same region that was contibuted to gallbladder. As symptons progressed, I was diagnosed with early stage HELLP and had a c-section one week early.

I am now pregnant with number three and for the majority of my pregancy, I have had re-occurent "gallbladder" trouble. The pain has increased with it being constant, and more intense if I lay on my right side or put pressure on that side. Within the last week I have had the following symptons of HELLP:

Weakness & fatigue
Nausea & vomiting
Right upper quadrant and/or epigastric pain
Headache
Changes in vision dizziness, blurriness, spots

I saw my OB today, who did a routine check up (no blood work) and send me home. My vomitting became worse and I have since been back and he finally ordered lab work, now just waiting on the results. My BP and urine were fine today. Does this sound like the beginning stages of what could be HELLP or an over-reacting pregant women? Also, does it sound possible that may have been misdiagnosed with baby one and may have suffered from HELLP then as well?


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