I am upset...what is wrong with me?

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pinkcat1326
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Re : I am upset...what is wrong with me?

Postby pinkcat1326 » Wed Mar 02, 637678 4:30 am

Hey Amanda-

I think that you should definitely push for NSTs and BPPs (Biosphysical profiles). I think you know that I have been getting BPPs twice a week since 28 weeks. My BP is high only at the doc office (This am it was 146/94) and at home when I do "stuff" .

I had the initial protein of 397 on the 24 hour. They have not retested with a 24 hour, but I get weekly blood draws to test for liver and kidney function.

Today, my doc told me that she is skeptical of the diagnosis of PE for me because I have been doing so well for the last 4 weeks - my placenta looks great, baby went from 3 lbs 14 oz to 5 pounds 5 oz in three weeks, etc....but I have had an episode of extreme spots in my vision last weekend, and still get a high BP sometimes, so honestly they don't know if I have PE or not.

But, they are still watching me closely just because it can get from bad to worse so fast.

I know you don't want to rock the boat.... When I got vision changes this weekend, I did not call, and today I got a lecture that next time that happens I need to come right in... BUT you need to speak up. I think at least you should get a BPP once a week at minimum... you are not trying to look for problems, but rather make sure that you catch them before they start.

Plus, I would be willing to guess that a lot of the anxiety you have been having is also related to having delivered Kohl in such a traumatic way at the same time in your pg.

Hugs to you!


missgamecock
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Re : I am upset...what is wrong with me?

Postby missgamecock » Mon Feb 07, 637678 12:13 pm

My bp started going at 14 weeks. The midwife (my dr was out of town at a conference) started me on meds at 17 weeks because the diastolic (bottom number) was 108 at home. Once I started meds, my bp and meds just went up and up. It was hard to tell if it was true htn for me though becuase I was also on albuterol for terrible asthma and a severe case of bronchitis. When I delivered, the highest my bp got in the hospital was 177/122. When I was admitted, it was like 160/120 which freaked my peri out and she said it was stroke level. Since I had my daughter, my bp is well under control with meds. I havn't been able to get off of them (although I may have to have a talk with my pcp because it got as low as 100-103/45-60 in the hospital after surgery on Monday). Even with just plain chronic htn, I would still end up seeing a mfm who would do comanaged care with my ob. Chronic htn presents problems just as much as pe/pih. I am really surprised that they released you at 26 weeks. I would ask to go back. Dealing with a problem as it comes up is not being proactive and I would be very upset in your situation.

kohls1230
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Re : I am upset...what is wrong with me?

Postby kohls1230 » Mon Feb 07, 637678 1:03 am

So when you girls say that you had hypertension...what was your bp? Was it always 140/90 or higher? Or just when you were active or what? Mine goes up when I am active or anxious, but the doc says no restrictions on activity (although, I KNOW better and am playing it safe)

I will definately ask him about the BST. I hate talking to him about it. I think that he things I am being paraniod. He said to me yesterday "if something goes wrong then we will deal with that the best we can, but let's not go digging for something"....that just made me furious. He is a wonderful doctor and I wouldn't dream of changing (I know I complain alot, but he really is good besides this episode), unless he did diagnose me with pre e and then I would have to go to the MFM.

I did go to the MFM when I had that test for underlying causes. He wanted to make sure that the gene thing was being handled correctly. But I was released from his care at 26 weeks.

Amanda

ileana
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Re : I am upset...what is wrong with me?

Postby ileana » Sun Feb 06, 637678 11:24 pm

Oh, Amanda I'm so sorry for the loss of your son! What a terrible thing to happen after all you've already been through.

I was not diagnosed with preeclampsia at the time they started the NST's, just chronic hypertension. Maybe you should try to find a high risk ob (also called MFM specialist, or we call them perinatologists here). Anyone with a history of preeclampsia is high risk and having eclampsia so early definitely sends your risk up!

NST are non-stress tests, this is they hook you up with 2 rubber bands over your belly and 2 sensors detect baby's heart rate and contractions. When the baby is moving, its heart rate should increase, when sleeping the heart rate should be lower and between certain limits. We must have some links stickied on this, I'll try to find them for you.

missgamecock
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Re : I am upset...what is wrong with me?

Postby missgamecock » Sun Feb 06, 637678 11:19 pm

I had PIH with minimal protein. It didn't meet the diagnostic criteria of PE but I still had protein in my urine. Anyway, I had NST starting at 26 weeks. I had them every two weeks till 34 weeks then I was to go weekly till I delivered. But I delivered at 35 weeks instead. My dr also told me at 33 weeks that he was probably going to start sending me twice a week for NST. One at the peri's then one at the hospital. I did have two NST in week 35. But I delivered the next day. NST are VERY important for baby's well being and usually assure featl status for 48-72 hours. I was diagnosed with PIH at like 22 weeks or so.

Amanda I am so sorry about your baby boy Kohl. To go through PE and then he drowned is unimaginable. My prayers are with you.

kohls1230
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Re : I am upset...what is wrong with me?

Postby kohls1230 » Sun Feb 06, 637678 10:54 pm

Ileana, when you started the NTS had you been diagnosed with pre e? He hasn't even mentioned doing them, in fact if I didn't know someone who had them done, I wouldn't even know what that was! Since he hasn't diagnosed me with it yet, then he may not do anything. (Which is why I wish that he would be more concerned about the symptoms, even though they are still mild)

I am going weekly, rather than every 2 weeks Caryn. I was tested for some underlying causes and the only thing that they found was a resessive gene. Anyways, I am not really sure what it meant except that I was low on folic acid, so I started taking a supplement for that along with my prenatal vitamin. Also, since I have a family hisotry of blood clots, I am also taking a baby asprin.

I am so worried girls. Thank you so much for replying. I am more worried that they will miss it then I am that I will get it! I am so happy that my protien is good and I am so happy that my bp is staying on the "lower" side, but I am scared to death that they will miss the diagnosis early enough to prevent it from happening again. When I say prevent it, i mean prevent my son from being born so early. I think that I am a little scared that something might happen to him. I don't know. My first son, Kohl, was born at 31 weeks and lived for almost 2 years when he drowned in our pool. It is absolutely devestating. This was only a little over a year ago and I think that I am afriad that something is going to happen to this baby, and that the doctors are just being careless.

Anyways, I am going to stop rambling!
Amanda

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caryn
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Re : I am upset...what is wrong with me?

Postby caryn » Sun Feb 06, 637678 5:20 pm

Are you having more frequent visits to be monitored, given your history? Are you being overseen by a peri? Were you tested for any underlying disorders that could predispose you to PE?

The history of eclampsia does mean a higher risk of developing severe PE, and in your shoes I'd want to be monitored very closely so that they could make decisions about delivery before I got really sick again. As you know, these diseases can move fast. Or they can creep up on you.

There's not a whole lot that can be done to halt the progress of the disease if it's going to appear; your doctor may be waiting for your pressures to hit 140/90 before using bp medication, but then meds aren't going to affect the course of the disease either (they'll just keep bp lower than it would have been.) That said, perinatologists do have a couple of tricks up their sleeves, and they also see this disease *all the time* and have a different approach towards management than a regular OB.

ileana
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Re : I am upset...what is wrong with me?

Postby ileana » Sat Feb 05, 637678 9:58 pm

Hi Amanda!

It is frustrating isn't it? But as much as we would like to be sure that the disease is diagnosed, the best thing that can happen when the doctors think you're on the path there is to have it not advance much.

Unfortunately, the only preeclampsia treatment is delivery of the baby and you are still very early.

Are you having a BP cuff at home and taking your blood pressure? There are lots of us that found that doing this someone relieved the anxiety and made you feel in control. By the end of my second pregnancy, anytime I would get a high reading I would just go to L&D. While it feels that they are not paying attention to you and it's useless because they seem to just send you home, that is a good sign: they will need to keep the baby under observation and watch if he has decels, take your BP a few times and run the PIH panel.

The other thing you can do is to do a kick count of your baby's movements twice a day. He/she should have more than 10 movements in 2 hours: anything less than that: go directly to L&D.

And finally, be on the watch for the signs and symptoms:

http://preeclampsia.org/symptoms.asp

Anytime you get one of these, call your doctor or go to L&D.

When was the last time they did a growth scan of the baby? Did they also check the blood flow to the placenta. You can ask when they want to start doing weekly NST and BPP tests to check how well the baby is. I started those at 32 weeks, but I heard that with a history of preeclampsia, they might start them at 28w.

There's a lot you can do: our logo is: Know the symptoms, trust yourself! Learn as much as you can about preeclampsia and go to L&D anytime you feel something is not right.

Hey, low protein is great! Be on the watch for other signs, but enjoy the pregnancy!

kohls1230
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I am upset...what is wrong with me?

Postby kohls1230 » Sat Feb 05, 637678 1:30 pm

Okay ladies, so my test was pretty good. But now I am at a loss as to what my dang problem is...or maybe I don't have one[?]

Here is what I know...
My 24 hour urine test was at 189. Borderline.
My dipstick test was at +1 today.
My blood pressure has been up but not high enough to call it "high".
My blood pressure is usually 115 or so / 60 something. Now it is in the 120's -130's (even up to 140 today) / middle-high 80's. Doesn't that seem like a significant increase to you?
I had severe eclampsia (seizures) with my first son at 31 weeks.
I am now 30 weeks 3 days with #2.

So what the heck is my problem. It is almost as if I have just enough wrong with me to worry me, but not enough to get any answers for.

Here is what I WANT to know.
Why do I have protein in my urine if I don't have pre-e? Does that mean it is coming?
Since I have a hisotry of pre-e and these symptoms above now, will I likely get it again or could I be perfectly fine till 40 weeks and deliver without any problems?
Why isn't my doctor more concerned about the rise in bp? He says if it isn't 140/90 then he isn't worried. Today it was 140/89 and he waited and took it again later and it was 128/87 and he didn't seem concerned at all about the bottom number.

I am so afraid that he isn't concerned enough. With #1 I had a doctor who was oblivious to my symptoms and just thank GOD that I got to the hospital when I did because my seizure started about 10 mintes after I got there! And no one had EVER even mentioned pre-e to me before that even though I had been to the doc just 7 days before. So I know how quickly that these things can happen and I am just wondering if he also knows or if he is waiting for my bp to shoot up really high before he does anything about it.

I am so upset! I think I would have been less upset if they had just said yeah you have it, because then at least they would be treating me for it and not ignoring symptoms. Or maybe I am just overreacting and they don't need to me reacting to these things at all????

I just don't know people.

Amanda


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