What can I do?

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!
jonandkatsmom
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Re : What can I do?

Postby jonandkatsmom » Tue Nov 13, 638283 9:20 am

Hi all,
I went in for my appt. and my bp was 170/110. They admitted me and I have been in the hospital until last night. Once admitted, my bp went to normal or below almost immediately. After I had been on the IV for a while my swelling went to nothing. They redid the 24 protein and it was 290, up from 260 a week earlier; but the nurse said she could spill 290 after a hard day's work. At first they called it preeclampsia, but then yesterday said that they are going back to pregnancy induced hbp. The wonderful news is that the dr. in Louisville (that's where I was) agreed to take me on as a patient. Now I see my doc every week and the Louisville doc every 2-3 weeks so I feel that they are finally taking this seriously and have a plan (which is all I really wanted).
I have a few questions:
My swelling was gone in the hospital and now it is back (less than 24 hours later). I think it was the IV fluids. I am already drinking 100-120 oz of water a day. Much more and the nurse said it would be too much. Any ideas?
The doc thinks that the bp cuff that I used and that she used in the office were too small which may have inflated the readings. Has anyone heard of that? Mind you, I went from 170/110 in her office to 135/74 less than 20 minutes later.
My husband was really shook by all of this. He's the kind of guy who doesn't talk and doesn't show his feelings and at one point he started to cry when he called me. I know it was hard to stay home and go to work and take care of our son while I was so far away. He has also lost 2 children already which affects how frightened he is right now. How have you all helped your husbands or partners?
Thank you all so much for being here.

mainemomof2
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Re : What can I do?

Postby mainemomof2 » Sat Oct 20, 638283 2:35 pm

How did your appointment go? I have been thinking of you. Update when you can :)

rebecca
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Re : What can I do?

Postby rebecca » Fri Sep 28, 638283 8:20 am

You are NOT overreacting. I'm surprised your OB is not acting more quickly. I had preeclampsia with my first. When they discovered low amniotic fluid and IUGR, I was hospitalized in the L&D floor with 24-hour monitoring for 4 weeks! In this last pregnancy, I developed HELLP. Let me tell you that things turned very quickly. My protein went from about 200 to 1300 in a matter of days. If my doctors (I was with peri's the entire pregnancy) had not been on it, things could have turned out very differently. I did not have the headache with my first, but it was a constant companion the last 5 weeks of my HELLP pregnancy. I am so glad that you are being seen more quickly, but please know that even if things look "okay" tomorrow, you are exhibiting the kinds of symptoms that need repeat and repeat testing. Things can turn bad very quickly. Good luck and let us know how its going.

fiona
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Re : What can I do?

Postby fiona » Fri Sep 28, 638283 8:10 am

Bridget - good for you. I am afraid that too often we have to insist on things that should be our right.

I hope when you explain the circumstances of your last pregnancy, the peri will agree to the transfer of care. I would advise writing down all your questions and taking a list with you. Can you take someone along for moral support?

kelly8sully
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Re : What can I do?

Postby kelly8sully » Fri Sep 28, 638283 8:10 am

Good job taking care of yourself and advocating for yourself. Don't worry about what they think (you're overreacting) -- their jobs are to take care of you not judge you. I think we often worry that we are overreacting, but I have learned that I'd rather overreact and be wrong than underreact and be correct. It's your life and your baby's life and a year from now, you and your baby need to be healthy. Good luck tomorrow! Keep us posted when you can.

jonandkatsmom
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Re : What can I do?

Postby jonandkatsmom » Fri Sep 28, 638283 6:23 am

Thanks for all of your input.
I am taking my own bp and logging it.
I called the dr in Louisville. I had to call a few times to make them talk to me because they were not calling me back. Then they said they would see me in 2 weeks. Thanks to all of you I did not go along with that. I kept explaining what was happening and saying that if they can't see me then they should refer me to someone else. Finally the nurse spoke to the dr and they will see me tomorrow. But, she also said that my doctor asked them to take over my care and that they don't have the time to do that. They will consult only. Again I asked for them to refer me to someone who could care for me and she said "just see the dr tomorrow and let her decide what to do next". I guess I will do that. At least I will be checked, have the ultrasound and get some answers.
I am from the Chicago area and new to the south. Everyone here seems so unconcerned about my health, or what could happen. It makes me feel like I am overreacting. I appreciate that I keep hearing what you have to say and it helps me know that I have to stand up for what I think is needed.

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caryn
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Re : What can I do?

Postby caryn » Thu Sep 27, 638283 3:08 pm

Bridget, a 24-hour from last week can be pretty much worthless -- you might be diagnostic now. I'm no doctor, but with pressure spikes up that high I'd think they'd say you have severe gestational hypertension (IIRC the line is one reading of 160/100), and it's dangerous for both you and the baby.

Do you have a blood pressure cuff at home to monitor your own pressures, then? Are you taking them at around the same time each day and logging them so the doctors can look for trends and spikes?

Pressures that jump around like that are called "labile", and are often a precursor to pressures that stay up. A perinatologist or a maternal-fetal medicine specialist might be able to tweak your medication, or start a different med, to bring your pressures back down. I would also call the high-risk office today and report how high your pressures have been running -- see if you can get them to see you sooner.

Please keep us posted.

onesock
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Re : What can I do?

Postby onesock » Thu Sep 27, 638283 8:06 am

At the very least, I would call the peri that you were referred to and ask to be seen today! Make sure that you repeat all of your symptoms and history and what your bp's are running and *beg* if you have to, to get in. I wouldn't wait until they called...it can take awhile. Please keep us updated. It is never wrong to go in because you are frightend of bp's like those, nor is it a waste of anyone's time. I would put a call in right away this morning. ;) Keep us posted and take very good care of yourself!!

jonandkatsmom
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Re : What can I do?

Postby jonandkatsmom » Wed Sep 26, 638283 11:13 pm

Thank you all for posting.
I am sorry I didn't mention it, but I did a 24 hr urine check last week. The doc said it was "a little high", "not enough to diagnose PE but getting there". I spoke to the doc's office again yesterday afternoon and they said they faxed the high risk doc in Louisville and I should wait to hear from them. I struggle with how strong I should be in moving things along. Last week when my pressure got so high I went to L&D near my house (well, 1 hour away) and by the time they got me in and monitored my BP was back down to almost normal. I felt like I wasted everybody's time. (Not to mention scaring my husband and son, driving so far...)
The same scenario happened with my son. After going in so many times w/elevated BP's that dropped down again I started not responding to things that scared me. Finally he had to be taken in an emergency c-section because I waited too long and there was no amniotic fluid left. My son is apraxic. There's no way to know if I caused that, but I suspect my lack of action caused or contributed to it. I've never forgiven myself, but here I am again; not knowing how to stand up for myself in a way that is effective, but not over the top.
Does that make sense? Do other people struggle w/this?
Again, thank you for your input.

rebeccac
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Re : What can I do?

Postby rebeccac » Mon Sep 17, 638283 5:07 am

Oh, my! I hope you are getting checked out/have been checked out. Please post when you can.


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