Updated-now I need help and advice re: ANA panel

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jean
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Re : Updated-now I need help and advice re: ANA panel

Postby jean » Fri Oct 15, 2010 07:13 pm

Ok-thanks for the info. My OB ordered the next round of tests for me..I did half of them today and will do the other half next week. (I was getting woozy after the first 5 tubes were drawn-I'm such a wimp)

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Re : Updated-now I need help and advice re: ANA panel

Postby kara » Fri Oct 15, 2010 02:33 pm

It really depends on which tests came back positive. With a positive ANA a rheumatologist is typically the first specialist you see. They will take your history, do a physical exam, ask you a billion questions and maybe do more blood work based on all the other data. A slightly positive ANA can mean nothing...or that something is brewing. Some people have psoitive ANA's and never have a single problem. Others have problems and negative ANA's.

I have lupus anticoagulant (which is not "Lupus"), it's just a blood protein that is often found in lupus patients. I have Antiphospholipid Syndrome based on my pregnancy and my lab results. Though I haven't had a clotting episode outside of pregnancy so I'm not treated for it. I have lots of other autoimmune symptoms, but nothing concrete enough for a diagnosis, though my doctors also warn that I am "young" and that something may appear later in life. It doesn't hurt to see a specialist and have some baseline tests and exams done, so that if something does progress later on, your doctors will having something to go on. But don't think that you'll get a solid answer by seeing a specialist. These things are rarely clear cut.

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jean
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Re : Updated-now I need help and advice re: ANA panel

Postby jean » Fri Oct 15, 2010 09:24 am

I have read about it online...I've never gotten the butterfly rash on my face. The rash I get is usually on my hands, legs, and arms.

preemomof2
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Re : Updated-now I need help and advice re: ANA panel

Postby preemomof2 » Fri Oct 15, 2010 09:21 am

You should do your research on lupus. I have lupus and 2 main symptoms are joint pains and a butterfly rash on face or other parts of body. Lupus is hard to diagnose, however, you should rule it out before ttc because it is a serious disease, but manageable. Good luck.

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jean
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Re : Updated-now I need help and advice re: ANA panel

Postby jean » Thu Oct 14, 2010 07:18 pm

Thanks for the replies! I'm still waiting to hear back from my doctor, but I'll keep you updated on what I find out! I guess I have 2 symptoms...some joint pain and then in the summertime I get a rash from the sun.
We were planning on TTC again in a few weeks. I'm just so nervous about the whole thing. It's good to know that there are healthy ppl with positive ANA tests though. My OB does not like the idea of me taking LDA...I wonder if these test results would change his mind at all. Maybe it doesn't matter unless you have clotting issues though.

michelamilano
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Re : Updated-now I need help and advice re: ANA panel

Postby michelamilano » Thu Oct 14, 2010 12:06 am

Just to give you an example, I have mild antiphospholipid syndrome (I am borderline for lupus anticoagulant), all the doctors I talked to (immunologist, gynecologist...) suggested only to monitor my values and consider taking low dose aspirin. At this stage they consider me healthy, altough they warn me that in time the situation can worsen or I can develop some other autoimmune disease (this is the reason why I decided to get pregnant again in a short time)

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Re : Updated-now I need help and advice re: ANA panel

Postby babyemsmom » Thu Oct 14, 2010 10:47 am

Are you having any symptoms? I had a positive ANA not long ago and I saw a specialist, but I was/am having a lot of joint pain. They have not diagnosed me with anything because the joint pain has been the only symptom. The specialist didn't run any other blood work, but just went over the results of the current blood test with me and helped with medications to make me feel better. He explained to me that a positive ANA test doesn't necessarily mean you have any illness, but that they will continue to watch for it. There are plenty of healthy people walking around with positive ANA tests!

Hope that helps and hope you get to talk with your doctor soon! Keep us posted.

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jean
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Re : Updated-now I need help and advice re: ANA panel

Postby jean » Wed Oct 13, 2010 06:45 pm

My Dr. called me today and left a message saying my results were back and showed that they were positive. He said they did not show a strong positive, but were positive, nonetheless. He said he didn't know where I wanted to go from here. (I don't know either!!) He suggested whether I wanted to be referred to a specialist, or what...I don't know what to say because I guess I don't know enough about this to know what to do. Is a mild positive something worth worrying about? What kind of specialist would I go to? Does the initial test point toward any particular autoimmune disease, or if I continued testing for things would I have to be tested for a billion different things? How much would it cost?
I don't know what to do.
I tried to call his office and he wasn't in. I can't talk on the phone when I'm at work, so I fear we could end up doing a lot of phone tag. :(

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Re : Updated-now I need help and advice re: ANA panel

Postby kara » Mon Oct 11, 2010 12:00 am

It really depends on the test and what lab they send it to. When my MFM order them he sends them to a lab that specializes in these tests. Its in Utah and takes 3 weeks to get the results. My pcp orders them from a local lab, who i dont think is as specific or as accurate, and i get those results in a day or two.

Follow-up tests may be ordered through a specialist, in which case it takes time to get in to see them.

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jean
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Re : Updated-now I need help and advice re: ANA panel

Postby jean » Sun Oct 10, 2010 12:06 am

They told me the results from the first test should be in within a couple of days. Does anyone know if the tests that you have done afterward (if the first one is positive) come back as quickly?


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