I am new and have some questions :)

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!
tree
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Re: I am new and have some questions :)

Postby tree » Sat Apr 28, 2012 04:39 pm

I have to agree with Caryn and Beth. Please go in if you feel awful. It will take them less than an hour to get your labs back, and you will have peace of mind if everything is okay. We aren't doctors, but you do not sound okay.
Your description of how you are feeling is frighteningly similar to how I felt right before I finally went to the hospital. I understand the desire to just try to sleep through it. I remember feeling too tired to call the doctor and much too tired to get to the car for the drive. I let myself get SO sick, and then I got worse really fast when I was admitted. I never had diagnostically high BP or protein. HELLP has no respect for research definitions. Please go in if you don't feel better, and go in immediately if you feel worse. My labs changed drastically in hours. HELLP isn't subtle, and it tends to move very very quickly. Let us know how you are.
Daughter born April 2009 at 35 weeks due to Class 1 HELLP

sam10
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Re: I am new and have some questions :)

Postby sam10 » Sat Apr 28, 2012 04:32 pm

I agree with the others. I'd insist on blood work! It's been too long since it has been checked. Things can turn quickly.
MC 3/2009 and 3/2011
H (1/1/2010-1/7/2010) - forever loved and missed; severe PE with Hellp; partial placental abruption, classical c-section at 25.6 weeks
M (Nov. 2012, born at 35.4 weeks) - severe PE

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caryn
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Re: I am new and have some questions :)

Postby caryn » Sat Apr 28, 2012 04:26 pm

What Beth said. Even if it isn't HELLP, you're reporting pressures just below the severe threshold, proteinuria of +800mg last they checked, epigastric pain, and a headache so bad you can't sleep. "Severe" is just a research definition - mild patients are still very, very sick sometimes. I would want bloodwork.
Science! The articles you don't want to miss:
The Preeclampsia Puzzle (New Yorker) and Silent Struggle: A New Theory of Pregnancy (New York Times)
Looking for recent articles and studies?
A chance to participate in research? For us on Facebook or Twitter?

Caryn, @carynjrogers, who is not a doctor and who talks about science stuff *way* too much
DS Oscar born by emergent C-section at 34 weeks for fetal indicators, due to severe PE
DD Bridget born by C-section after water broke at 39 weeks after a healthy pregnancy

beth11
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Re: I am new and have some questions :)

Postby beth11 » Sat Apr 28, 2012 04:21 pm

Lisa, thank you so much for checking in! I've been thinking about you since I read your post. Forgive me, but I'm going to be honest and say that I don't like that they didn't do bloodwork. HELLP is a strange, strange condition that presents in lots of odd ways and doesn't easily fit into a neat little box. It's not all about blood pressure. I was hospitalized, diagnosed with HELLP, and declared "critical" before my blood pressure rose at all, just based on my bloodwork. And thank goodness, because things went downhill fast! That's the thing with HELLP/ pre-e - things can change in an instant.

With the symptoms you describe, and your sweet baby being at such a great gestational age, it's not worth taking chances. Please, please just trust yourself. It sounds like you feel that things aren't right. If so, insist upon immediate bloodwork, or just go straight to the hospital. The headaches and abdominal pain aren't anything to screw around with.

I'm so sorry if I've upset you or overstepped - please take care of yourself an continue to keep us updated!
Missing our boy/ girl twins, born at 19w4d due to HELLP Syndrome (November 12, 2008).
And now celebrating their brother (March 2010) and sister (April 2011), who made it here safe and sound.

Lisabug77
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Re: I am new and have some questions :)

Postby Lisabug77 » Sat Apr 28, 2012 11:25 am

I wrote a reply last night and it's not showing up here so I must've hit the wrong button :( Yesterday I went to my OBs office and had my blood pressure checked and an ultrasound. Baby boy is measuring big but his growth is slowing down now. He has plenty of amniotic fluid thank goodness! He was a bit sleepy. Took some wiggling him to get his attention, which was a little different than normal. The tech felt he was doing just fine. Since yesterday morning he hasn't been moving nearly as much as usual but then he FINALLY turned head down! So maybe he's just exhausted. ?
As for me my blood pressure wasn't terribly high. 136/89. They didn't check protein or do more blood work. My blood work from last week was borderline in nearly everything, but still in the good range, so they said it was normal and fine.
My 24 hr urine labs said I have .81g of protein when there's supposed to be no more than .10 I think, which is considered trace. That's my guess. But the 24 hr urine test is what got me diagnosed with pre-E.
Now a headache that will not go away for nothing has hit me. All last night and today so far. It's disrupting my sleep. Plus bad heartburn which isn't normal for me either since I take strong meds for GERD.
My BP has been staying below 150/95, and the upper right hand abdominal pain is only felt sometimes, not constantly. Like when I go potty it hurts pretty good and just sometimes while laying or sitting up in bed.
My headache and fatigue are now getting the better of me so I'm going to try to go back to sleep.
Thanks for all your care and concern!! :D
Lisa 33, Tyler 33.
Lacie Marie 12/27/03 induced at 41 weeks due to no amniotic fluid.
Sophie Jean 03/02/06 induced at 37+2 weeks due to stopped growth, low fluid.
Liam Tyler 04/30/12 induced at 35+4 weeks due to preeclampsia complications.

I have been diagnosed with: Endometriosis, borderline PCOS, Interstitial Cystitis (IC), IBS, GERD, Gastritis, Degenerative Disc Disease, severe Sleep Apnea (rare form), Fibromyalgia, Depression/Anxiety, wide variety of allergies.

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Re: I am new and have some questions :)

Postby angieb » Fri Apr 27, 2012 04:19 pm

I agree with everyone else to go to L&D immediately, but just wanted to mention that they usually do not give steroids after 32 wks as they are not found to be effective after that point.
Me (29) DH (30)
#1-Olivia Caetlyn-9-28-09-9-28-09, 23+2 wks, emergency classic c-section, class I HELLP, IUGR
#2- Lucas Oliver (rainbow baby)- April 2011, 36+2 wks, HELLP and pre-e free! (lovenox and LDA pregnancy)
#3-Matthew, late October 2012...mostly normal, 37 wks, (lovenox and LDA again)
My blog: http://www.butterflies-and-rainbows.blogspot.com/

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heather j
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Re: I am new and have some questions :)

Postby heather j » Fri Apr 27, 2012 04:06 pm

Lisa,
I'm hopeful, with everyone else, that you've been driven to the hospital by now. I am SO sorry for all that you're experiencing right now. Your symptoms are *very* concerning, and if your current doctor isn't adequately concerned, please get yourself to the hospital and request that an MFM review your chart. There is no reason, especially given all you've described, to fight through another week to 37. My pressures with my first were very labile (I'd see 180/100 then 130/80 within the same few hours despite being on strict left-sided bedrest) until delivery and postpartum when they went high and stayed high despite two bp meds and mag sulfate. I had been seen by the doctor and sent home for more bedrest for 3 days until my next appointment when I had an abruption that night. By the time we made it to the hospital a half hour later, my labs were trending toward HELLP, and within three hours of delivery, my platelets were at 50K. I was so swollen, that I weighed almost ten pounds more *after* delivery than I had at my last prenatal appointment only two days prior; I couldn't fit in the maternity pants that I'd worn in. This is all stuff I know you know because you're a veteran of this horrible disease. It's just hard sometimes to advocate for ourselves when we're in the moment. If this were a mama whom you were friends with, what would you tell her do? No one here wants to be alarmists - I promise, but you need to be seen. Soon. Hang in there, mama. Please update us when you are able.
Heather (PAI-1 4G/4G) mama to:
Nicolas Edison (6/2004) 36 weeks, PE, HELLP, and placental abruption
Ella Amelia (3/2007) 37 weeks, lovenox, PE-free
Oliver Lyon (1/2011) 37 weeks, lovenox, PE-free
Milo Mason (2/2014) 39 weeks PE-free

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Re: I am new and have some questions :)

Postby jenndola » Fri Apr 27, 2012 03:47 pm

I'll just join the dog pile here and say please get checked out immediately. I know your doctor is getting labs, and I know you don't want to be THAT pregnant woman (we've all known that pregnant woman), but you're the only one living IN your body. As others have said, the abdominal pain is particularly concerning, since HELLP can present without elevated blood pressure. I had upper abdominal pain for about a week before I was admitted, and admitting was the first place my BP ever measured high.

Don't wait to hear back from your doctor. Go to labor and delivery and get yourself checked out. I'm not a melodramatic person, so I'm quite serious when I say your life - and the life of your baby - may depend on it. Listen to your instincts and trust yourself. You aren't new at this.

I hope you find answers soon. Please keep us updated.

Be safe,

Jenny
So I have this silly thing called Antiphospholipid Syndrome, which led to a blood clot in my brain, a miscarriage at 14 weeks,
HELLP Syndrome at 19.5 weeks, and a miscarriage at 6 weeks.

Pregnancies 4 & 5 produced two sons. Hooray!
Big G, born at 31.5 weeks in 2005
Little G, born at 29 weeks in 2008

beth11
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Re: I am new and have some questions :)

Postby beth11 » Fri Apr 27, 2012 01:34 pm

Lisa, I'm so sorry you're dealing with all this! From another HELLP Syndrome survivor, what you describe are really familiar and scary symptoms! Unfortunately, they could mean that something really wrong is going on inside your body. None of us want to scare you, but when you're talking about possible seizures, stroke, organ failure, brain swelling, etc. - all of which could stem from HELLP - there's no such thing as being too careful or overly cautious.

I really hope you've already called someone to take you to the hospital. Keep us posted!

Beth
Missing our boy/ girl twins, born at 19w4d due to HELLP Syndrome (November 12, 2008).
And now celebrating their brother (March 2010) and sister (April 2011), who made it here safe and sound.

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l412angel
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Re: I am new and have some questions :)

Postby l412angel » Fri Apr 27, 2012 12:42 am

Lisa I have to echo what everyone else has said. Please get yourself to the hospital. Sometimes you can't trust anyone but yourself. Please please keep us posted. Your symptoms mirrored mine with my daughter was ended up being born still. Trust yourself! Please keep us posted.
Laura Angel (Factor V Leiden)
Mommy to Cara Angel 2LBS 11OZ 16 IN. Born at 30 weeks due to Severe PE & HELLP.
"My life went with you sweetheart the day angels called you home"

Our Rainbow Baby Carter born March 5 2011 7lbs 7oz 20.5in 36 weeks 4days PE FREE

Baby #3 due June 2012


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