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So sad to see the same stuff happening over & over

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!

Re : So sad to see the same stuff happening over & over

Postby akemt » Fri Jan 09, 2004 02:36 pm

by akemt (4961 Posts), Fri Jan 09, 2004 02:36 pm

Hey Sharel,
Thanks for bringing this post up again for those of us who weren't around the first time. I feel so frustrated hearing about that too and wish there was more I could do. Man, I think we all need our MD so we can just treat these women! lol j/k

Catherine (22)
DH Britton (27)
Emma Margaret (03/02/03) 37 weeks from PIH & oligo
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Re : So sad to see the same stuff happening over & over

Postby meg hanrahan » Fri Jan 09, 2004 03:40 pm

by meg hanrahan (1030 Posts), Fri Jan 09, 2004 03:40 pm

I have to admit that I am shocked how some of the women's doctors are treating their concerns. When I hear of a bp of 150/127 - my heart panics for that woman. I was induced at 140/105! My doctors were very nervous with the 105 level, telling me that you can stroke once it gets over 110. My doctors were all over me when my bp was 130/90 (not that high based on what I've seen other members quoting). Something is wrong when one set of doctors are running tests, and admitting patients at one level and other doctors tell you to not worry and sending you home.

I feel blessed that my doctors are so on top of pe (Dr. Pearl Yee, et al of San Francisco - the best!)

Isabella (11/11/02 @ 34 wks, severe pe)
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Re : So sad to see the same stuff happening over & over

Postby angelical » Fri Jan 09, 2004 03:49 pm

by angelical (330 Posts), Fri Jan 09, 2004 03:49 pm

Originally posted by akemt

Man, I think we all need our MD so we can just treat these women!

So ironic that you said that. I said the exact same thing to my husband today, when I was ranting to him this evening! LOL

And Meg, I was about half-lucky with my doctors. Luckily, my regular OB understood I needed help. Unfortunately, the first peri she sent me to completely disregarded my symptoms. Apparently 180/110 in his office wasn't high enough (combined with protein & edema) Luckily, though, the second peri I spoke to immediately admitted me. I developed HELLP 5 days later ... at 28 weeks.


Sharel & Kevin
Aaron - 28 weeker
Born 5/2/02 due to preeclampsia & HELLP

Our miracle boy is doing great!!
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Re : So sad to see the same stuff happening over & over

Postby jjbeck1 » Sat Jan 10, 2004 04:12 pm

by jjbeck1 (208 Posts), Sat Jan 10, 2004 04:12 pm

"I have to admit that I am shocked how some of the women's doctors are treating their concerns. When I hear of a bp of 150/127 - my heart panics for that woman."

Yeah, my heart panics too....then my bp goes up even more.
It is hard for me as I know the answers to all of most of my questions but for some reason keep getting undesirable responses from my doctors. It is so hard being stuck in this situation knowing things are not right but not being able to do anything. I think I will make some calls on Monday to Yale and see if they have any input
or can help me. Or maybe Boston. Strangly a woman emailed me who came across an email of mine regarding HG and my elevated bp with this hg pg. She was a she is a nicu nurse in Boston and said she had seen so many woman stroke from their bp being left untreated.

Does anyone know what the annual training is for PERIs? I came across an art from the NIH and they strongly recommended OVER diagnosing and treating pre e than not.

Jen 32
DH Bob 36

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Re : So sad to see the same stuff happening over & over

Postby aimeejane » Sat Jan 10, 2004 06:10 pm

by aimeejane (589 Posts), Sat Jan 10, 2004 06:10 pm

It IS so scary. I saw my OB for my annual pap on Wednesday, and he confessed that I went much further with Kalen than he ever expected I could have. He actually perked up when I told him that Dh is getting a vasectomy; I could tell he was relieved that we wouldn't be going through that again.

He said to me, "You're one of my success stories." I know HIPPA prevents him from telling me of the others, but I wonder what other experiences he's had with PE.

My first OB - the one whose care I was under while pregnant with Nicky - man, she actually prescribed Tylenol with Codeine for me when I called complaining of a migraine and vomiting, 2 days after showing +4 protein! No wonder I seized an hour later. I even drove myself to the pharmacy to get the medication - what if I had been in the car when I seized???

Jen, I don't know the answers to your questions, but if I was in your situation, I would be seeing a new peri, ASAP. My friends say I'm "overly-cautious" when it comes to watching for PE, but as you said in another post, IMO it's better to be on the safe side and risk over-diagnosis than to lose more women and babies.

Aimee - 28
Dh - 30
Ds Nicky - 3/24/00 (28 wks - eclampsia)
Ds Kalen - 7/10/03 (36 weeks - preeclampsia)
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Re : So sad to see the same stuff happening over & over

Postby twolfgram » Sun Jan 11, 2004 04:20 pm

by twolfgram (388 Posts), Sun Jan 11, 2004 04:20 pm

I feel so incredibly lucky. When I develped HELLP with my son, my OB knew what it was right away. My BP had been up since about week 25 or so, so she'd upped my meds and was watching me closely. When I called about the RUQ pain, she had me go straight to L&D at the hospital. She was hoping it was my gallbladder, but didn't really check into it because it was not real likely. They hooked me up to the Mag Sulfate and took oodles of blood. I was drawn twice a day, in the morning it was always bad and she'd say, if it doesn't get better this afternoon, we're going to do a c-section, so I had nothing to eat all day, then the afternoon labs would look good, so I'd eat supper. The next morning it would start all over again. I went three days like that, then on the fourth day, it was still bad in the afternoon and they did a c-section and I had Jonathan!

After Erik was stillborn I had tons of blood work done again and since they found the MTHFR, I am going to a peri FT instead of my regular OB, which I'm sure is ok with her! [;)] She was wonderful but with having to take the heparin shots, assuming all is ok when I go for the US in two weeks, I'd rather be seen by someone who sees this all the time!

I worked at a hospital for years, so I know how important it is to stand up to your MD and let him/her know what you feel. So many people are intimidated by their MD that they just follow blindly. That's one very positive thing about this site - you're all giving people the power to stand up for themselves!

Sorry to ramble, just felt the need to say all that!

Therese Mom to
Jonathan - 28 weeks born 10/4/95
Angel in Heaven - Erik 12/20/02
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Re : So sad to see the same stuff happening over & over

Postby deerhart » Mon Jan 12, 2004 10:24 am

by deerhart (3282 Posts), Mon Jan 12, 2004 10:24 am

Oh don't just blame the doctors, but also blame the medical schools, medical textbooks, and the professors as they are the ones TEACHING or rather nto teaching about PE.

I actually (in my second pregnancy) had I docotr probably in his early 40's tell me that I COULDN'T have PE because the textbook siad if it occured prior to 32 weeks it hit fast and delivery ALWAYS occured within 1 weeks time. I just sorta sat stunned at him and then asked him if he had even read my medical history (showing 1st pregnancy diagnosis at 25 weeks and delivery at 37 weeks) and then if I looked like a textbook. He sorta slinked out after that.

its not just about educating the doctors in practice, but the entire medical field to teach about PE, the many different ways woman can show it, things to check once you've had it etc.. from the General practicioners, to the OB's to the med school professor, to the nurses, right down to the people who write, edit, and publish the textbooks at all the medical schools in the US (and the world).

People would be amazed and shocked if they knew what doctors are really taught and what they aren't taught and how few doctors have seen a PE case, let alone treated one (there is a strong trend in the medical field to pass along any patient that will require more time and indepth care to a specialist instead of taking up the regular doctor's time, even if the regular doctor is capable of handling it).
Its the standards offices have of seeing new patients 15-30 mins, established patients 5-10 minutes due to monitary needs and inusurance companies.
I mean think about, while pregnant for 9 months your doctor will see you on average 2 hours total! Heck you spend more time waiting in 3 visists then they see you in total. They can and do make mistakes (as they are human) and what they see in 5-10 minutes once a month DOES NOT replace what you experience, see, feel, etc the other 30 days, 23 hours and 50 minutes!

Doctors are there to allow you to have access to knowledge far beyond what you might have, but they do not know everything, make mistakes, and are not the final decision maker on any subject (YOU ARE!). If you feel like a doctor is not giving you enough attention, not answering your questions throughly, or blowing you off, its time to switch doctos and find one that doesn't do these things. Something to ask is their approach to patients who don't seem to add up to anything but are concerned. The doctor you want is the one who says that the patient spends the most time with themselves and knows their body the best and realizes when something isn't right not the one who says the patient can be assured the doctor knows what they are doing and if something is wrong.

Hehe ahh me blowing off steam on one of my fav topics, changes in the medical field or otherwise know as Medical Field, the greatest gambling game there is!

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Re : So sad to see the same stuff happening over & over

Postby laura » Mon Jan 12, 2004 10:40 am

by laura (5139 Posts), Mon Jan 12, 2004 10:40 am

You asked him if you looked like a Textbook? [:D] That's hilarious!

That makes me think of something one of the docs here said once- there are no diseases, only sick patients- or something to that effect. I wish more people thought that way.

Glad to see you post, Erin, we've missed you.

DH Jack-31
Allicia 5-13-98 (35 weeks-pre-e)
Camille 4-17-03 (36 weeks- htn and oligo)
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