I'm glad to hear that your pressures do go down- if you get 160/100's please go in! It can be the nature of PE for your BP to spike and lower-so it's likely that those high readings are accurate ones if your home cuff is right. And it's great that your protein isn't too high yet- but you still have a while yet to go, and PE by nature is a progressive disease. It will get worse, the only variable is how quickly.
And things can change very quickly. With my first, my first 24 hr was 195. Two days later it was 4500, and finally two days after that it was over 10,000.
I think our big concern would be that their insistence that your pe is only mild, though perhaps technically correct, would give you (and quite honestly your providers) a false sense of security- especially when things can change so doggone quickly- I was where you were and then less than a week later I was flirting with kidney failure. Most women will have two weeks between when they're diagnosed with PE and when they're forced to deliver.
It's a fine line for us- informing you of what could potentially happen (and has happened to some of us) versus unfairly and unnecessarily scaring the doo-doo out of you. There's no way of telling whether you'll hang on til term or be forced to deliver tomorrow- so we have to come to it from the stance that it could get bad, and fast. Especially with the BP's you're reporting. Those BP's are just bad, and they can do harm.
In the grand scheme of things- Dr. E is the great grand pooh-bah of preeclampsia doctors. I have unshakable faith in his judgement- and if he recommends a consult (a consult, mind you, a 30 minute meeting without any expected committment)with this doc, it can't hurt to have it.
In any event, regardless of what you choose to do- please let us know if there is any way we can help. I know I've been there. It's hard, and scary, and confusing- and you have to follow your own instinct on what's the best course. I'm keeping my fingers crossed for a healthy time until delivery....
Allie 5-13-98 (35 weeks-pre-e)
Baby Camille 4-17-03 (36 weeks- htn and oligo)