New from Texas

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!
lorimstewart
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Joined: Tue Oct 09, 637342 3:42 pm

Re : New from Texas

Postby lorimstewart » Mon Apr 15, 637348 9:13 pm

Sam,

I am 29 and also lost a baby boy Ryan 4/10/05. I had PE and he was born at 28 weeks and lived for 20 days died to NEC. I myself went to a Material Fetal specials today. I was refered to her through a Chairman of ************** OBGYM and Material Fetal Medican. I live in Fort Worth/Dallas so he refered me the Chairman of *********. The specialist I saw today it a Material Fetal Specialist and Assistant Proffesior at ***********. She is having me do through severel test such as Thrombophillas, antiphospholipid antibody syndrome, and lupus. She was very hopfully that I could have a better outcome with next pregancy. She said her goal would be to get me to 32 weeks. Anyway I would diffently bring up these test to the Dr you see and get several opions.

I am not sure where you live in Texas but I found these dr through the link I was given here the Dr ************ he would perhaps know of some in the city you live in.

Lori M. Stewart
lorimstewart@hotmail.com

Ryan Patick 3/21/05-4/10/05 born at 28 week 5 days due to PE

dorio22
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Posts: 385
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Re : New from Texas

Postby dorio22 » Mon Apr 15, 637348 7:20 pm

Hi Sam,

I am so sorry to hear about your loss. I to had severe PE and I delivered at 35 weeks. I got pg 7 months later and I am at 32 weeks and no signs of PE yet. I did get gestational diabetes but no pe yet. There are alot of women in here that didn't get it there second time. I will be 36 in August of this year. Hopefully you can get a second opinion that will give you better news.

Dori (35) - Utah
Mom to Kallie, Born 09/02 Adopted,
Brianna, born 04/03/04 at 35 wks due to Severe PE, 6 lbs. 7 oz.
Pregnant Again, EDD 08/01/05

froggie89
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Joined: Mon Apr 15, 637348 11:06 am

Re : New from Texas

Postby froggie89 » Mon Apr 15, 637348 4:58 pm

Thank you for sharing your stories! It helps to know there are others who can relate!!

The doc I saw today was a peri doc that I found out about while in the hospital and my OB referred me to. I guess because my BP was so high and I was at 26 weeks that's why he didn't give a total thumbs up - just that my DH and I have to decide how bad we want a baby. We have to wait until Sept before we can try again - if we go down that road. They did take LOTS of blood today to do some tests so maybe at this point I'm just being overly paranoid!!??

Thanks again for the help! I'm glad I found this forum -

sam
mom to Alexander, 3/21/05-3/21/05, 26 weeks, severe PE

melissam
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Re : New from Texas

Postby melissam » Mon Apr 15, 637348 4:17 pm

Hi Sam,

I am so sorry to hear about your son.[:(] I just lost my daughter on January 1st of this year also. There are so many of us that have been down that particular road. If you feel up to it stop by the grief and loss forum. Everyone here has been so helpful to me during my loss.

I am afraid I cannot help you much with your questions either. I was with a peri group the entire pregnancy with my little angel. I would suggest that you seek at least a second opinion. I know the stats that my docs weren't that great. They said that it was about 60% or more likely that I would have PE again. They did find a blood clotting disorder and I also now have a very high RH antibody. They did tell me not to try again until December (1 year) but I will be TTC in September. If it had been up to me, I would be TTC right now.

There are a lot of people that don't get PE again the second time. In fact I believe there are more people that don't get it again than there are people that do.

Again I am so sorry for your loss. Come and talk to us when you need to. Sadly, there are so many of us that understand what you are going through.

Melissa
Mom to:
Riley 2/9/2000 born at 37 weeks due to PE
Kelsi 12/30/2004 - 1/1/2005 (13 oz) born at 24 weeks due to Severe PE
http://www.babiesonline.com/babies/k/kelsi2005/
New photos added 4/18/05 - see Kelsi's Closet

brittani
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Joined: Thu Jun 26, 636730 6:47 am

Re : New from Texas

Postby brittani » Mon Apr 15, 637348 4:01 pm

Hi Sam-

I too have been down that road. I lost our son a year ago this past March. I know that the first thing I wanted to do was find out if I could or should have another.Everyone must have thought I was nuts I think it was two weeks after we lost Connor. I just knew I had to have another baby.

The first thing I did was switch ob drs. and get a perinatologist. The first thing they did was run a long list of tests to see why I got severe pe twice. They determined that I have chronic hypertension. Neither of these drs. told me not to try again.(Like the dr. I used with the baby I lost did) They are friends that went to school together and have told me they will work together to do all they can to get me thru this pregnncy and bring home a baby. They gave me my statistics and told me the decsion was ours. I am now 18 weeks pregnant and so far so good. I feel very confident in my two new drs. and of course we send up a whole lot of prayers. Just remember knowledge is so important. Just find out as much as you can and make a decsion. This is a great forum to be apart of with so many wonderful people thta are so so supportive. I wish you the best of luck and welcome.

Brittani (29)
husband Jeff (28)
Andrew (6) born @33 weeks due to severe pe 11/03/97
Connor stillborn @23weeks due to severe pe and end diastolic flow
3/11/04
Pregnant Again!!! due 11/6/05 (I'll take anything in the month of October!)

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kdreher
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Location: Rhode Island
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Re : New from Texas

Postby kdreher » Mon Apr 15, 637348 2:12 pm

Hi Sam,
I am so very sorry you lost your little boy...I know how hard it can be, trust me I've been down that road. None of us can tell you what to do, but if I were in your shoes (well, I sort of am) I would see another OB or a perinatologist. I am 35, soon to be 36 in September and dh and I are TTC. It has been 10 yrs since I was pregnant and I am with a new partner. I have the factors regarding age and I did have eclampsia and HELLP. I know there are all sorts of theories on what may happen again. I had a tubal reversal in October, got pregnant in Jan but had a miscarriage. I had met with a peri and a new OB prior to my surgery..they did a complete blood work up on me and I have no underlying disorders. They both told me what MIGHT happen and what my percentages of getting PE might be, as well as HELLP. There are no guarantees.... like I said, a second opinion might help you make up your mind. I can tell you that another member here, Julie, had severe pe and HELLP syndrome like me and others...it came on suddenly for her at 26 wks and she had a loss as well. She just gave birth to a new baby boy just four months ago and her pregnancy was PE free...I think she was 27...but she is a success. There are many successes here..and lots of support.

Kris (35) & Tom (35)
Connecticut State Coordinator

My Angel - Tyler 3/9/95 to 3/23/95 (15 oz, 26 wks severe pe/HELLP)
Tubal Ligation 2/2000
Tubal Reversal 10/2004
Miscarriage 1/05



tkstevens@sbcglobal.net

tommysmommy21004
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Posts: 1215
Joined: Fri Dec 27, 637050 8:03 am

Re : New from Texas

Postby tommysmommy21004 » Mon Apr 15, 637348 1:38 pm

Welcome, Sam!! I'm sorry about your sons passing. I'm also sorry about the bad news you got from the high risk doctor. If you don't feel comfortable with the doctor's decision, then maybe you can try getting a second opinion.

You are in my prayers. Please keep us posted.

Deanna Smith-Powers (30)
Tom (29)

Mommy to Thomas James, b.2/10/04 @ 34 weeks due to severe pre-e and HELLP syndrome
Diagnosed with prothrombin genetic mutations-12/28/04

cassie05
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Posts: 2243
Joined: Sat Apr 04, 637339 8:40 pm

Re : New from Texas

Postby cassie05 » Mon Apr 15, 637348 1:31 pm

Hi and welcome to the forums. I know there are lots of ladies here who dont get pe the second time around, so hopefully someone will chime in soon. Im sorry to hear about your loss...I just lost my daughter on the 22nd so I can understand what you are going through...I,too, want to try again. I think a second opinion can be helpful if you dont agree with the first. Dont know if youve checked it out but we have a great grief and loss section here too, if you need it. Good luck

cassie is mommy to...
stephen...severe pre-e...delivered at 27+6...1 lb 12 oz
and my sweet little angel Kaitlyn Victoria, passed before her first breath May 22nd, 2005....27 weeks 4days...cause is unknown

froggie89
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Joined: Mon Apr 15, 637348 11:06 am

New from Texas

Postby froggie89 » Mon Apr 15, 637348 1:04 pm

Hi! I had SEVERE PE in late March - BP 230/125 when I arrived at the hospital - my doc delivered our baby boy, but we lost him later that evening. I take it day by day and hope I don't have a "meltdown" as I call it!

I went to see a hi-risk doc today and I didn't get great news for TTC again. (I was trying to look ahead to when we could try again and consult with a new hi-risk doc). They indicated that the PE could occur again and with my age (39) there are lots of factors in addition to the PE to take into consideration. I was wondering if anyone knew of an "off the chart" PE case like mine and if they had problems the 2nd time around? I don't know if I should get a second opinion or not? Any suggestions, ideas or thoughts would be appreciated!! I don't know what to think or do and all I can do is cry at this point!!

sam


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