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lovenox??

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lovenox??

Postby dolphincrazy316 » Fri Feb 05, 2010 05:22 pm

by dolphincrazy316 (116 Posts), Fri Feb 05, 2010 05:22 pm

This is my first time posting on this forum. I lost my little boy in November. It will be my due date in just a couple weeks on the 19th. I'm having a pretty hard time with that, but thats not why I am posting. I went back to my dr for all my test results, (the is my second delivery at 27 weeks due to preeclampsia). My dr said that I have a blood clotting problem. My body is over clotting. She told me that IF I decided to get pg again, I would be put on something like Lovenox everyday duing the pregnancy. She said that she believed if I do that I would be able to go full term. I just don't know if I ever want to go through it all over again..So what I am wondering is have any of you had more than one pregnancy with PE and then put on lovenox? Did it work? Just tell me some of your experiences please...:) Thanks
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Re : lovenox??

Postby rosemary » Fri Feb 05, 2010 07:54 pm

by rosemary (2360 Posts), Fri Feb 05, 2010 07:54 pm

Angela, I am so sorry for the loss of your dear Alex. We do have women who have used Lovenox and can certainly share their experiences with you. Here is a link to one of the Lovenox topics on the forums.

http://www.preeclampsia.org/forum/viewtopic.php?t=5257

I'll also drop one of our Mods a note about your question - she has lots of experience with Lovenox. Please take care.
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Re : lovenox??

Postby kara » Fri Feb 05, 2010 10:55 pm

by kara (6614 Posts), Fri Feb 05, 2010 10:55 pm

Angela,

Did they mention what type of clotting disorder you have? I too am so sorry about baby Alex. I'm glad they did some testing and you've been given some hope.
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Re : lovenox??

Postby dolphincrazy316 » Fri Feb 05, 2010 11:40 pm

by dolphincrazy316 (116 Posts), Fri Feb 05, 2010 11:40 pm

I don't really know what kind I have other than my blood is over clotting when I am pregnant. I was just relieved they figured it out. The dr mentioned lovenox but I just don't know if I want to go through all of that again. I would like to know if most every woman that has been on it has had a good outcome. I guess I just need to hear everybody's elses experiences with lovenox..
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Re : lovenox??

Postby kara » Sat Feb 06, 2010 02:06 am

by kara (6614 Posts), Sat Feb 06, 2010 02:06 am

There's ongoing research about blood clotting disorders and lovenox. From my understanding, the newest science isn't really supporting lovenox use in genetic clotting disorders. Acquired clotting disorders are a bit trickier. I think the new science is showing that those on lovenox may have had good subsequent pregnancies because they were *subsequent* pregnancies, and not because of the blood thinner. There are also studies showing lovenox helpful to those with very early onset preeclampsia.

Outcomes vary. We have clotters here who had fabulous pregnancies on lovenox, some who got a baby to take home with them - even though they still got preeclampsia, and others who had poor outcomes. But again, they all have differing factors and disorders.

It's probably best if you find out exactly what it is, do more specific research, and ask the doctor how far they think you'll get in pregnancy, etc on lovenox. I'll most likely be on lovenox due to lupus anticoagulant, which is an acquired clotting disorder and my docs think it'll buy baby some time in utero.
Hopefully they can give you more concrete answers.
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Re : lovenox??

Postby l412angel » Sat Feb 06, 2010 10:17 am

by l412angel (1746 Posts), Sat Feb 06, 2010 10:17 am

I do plan on being on Lovenox during my next pregnancy per Doc's orders. I am going for a second opinion on that tho. Just to make sure. I do have Factor V one gene mutation, and from what i understand that means one of my parents has it correct?
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Re : lovenox??

Postby jayme » Sat Feb 06, 2010 07:16 pm

by jayme (139 Posts), Sat Feb 06, 2010 07:16 pm

I used lovenox in a couple of my pregnancies.
In 2001 I had HELLP and delivered stillborn at 23 weeks- that was a non-lovenox pregnancy
In 2002, I was pregnant again and used lovenox and made it to 35 weeks when I went into labor on my own & had a healthy baby.
In 2004, same, lovenox, successful pregnancy.
2006, I saw a new doctor and he decided I didn't need the lovenox. At 23 weeks, I got sick again and I delivered at 25 weeks. My baby died 9 weeks later from complications of the prematurity.
In 2007, I used the lovenox but lost that baby for other reasons.
In 2009, I had my twins at 33 weeks, another successful lovenox pregnancy :)
I also used baby aspirin during the successful pregnancies
So for us, lovenox works
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Re : lovenox??

Postby m » Sat Feb 06, 2010 11:08 pm

by m (140 Posts), Sat Feb 06, 2010 11:08 pm

I was not on any medication for my first pregnancy. It ended at 28 weeks with an emergency c-section and my baby only lived for 8 days. He had very low cord blood flow and IUGR. I was found to have the Prothrombin G20210A gene mutation, which, according to my perinatologist, causes an inappropriate tendency to form blood clots.

I am currently on Lovenox and have nearly made it to 31 weeks uneventfully. Baby is only measuring in the 35th percentile or so, but my peri says they don't get concerned until the 10th percentile or less. Also, I am having no cord blood flow problems so far.

My peri has told me basically the same thing Kara posted, which is that there currently isn't a lot of support for using Lovenox to prevent PE, but we know it won't hurt. I have also read that if there is any support for it, it is with patients who had very early onset PE.

Based on my factors (severity and fairly early onset), my peri told me I had a 50-60% chance of recurrence and a 10-20% chance of it being as severe and as early. If you haven't had a consult with a specialist yet, that's probably the best way to be informed about your chances of recurrence and the likelihood that Lovenox would make a difference. Even with all the information you can get your hands on, it's a very tough decision to make.
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Re : lovenox??

Postby heatherbbb » Fri Feb 12, 2010 09:33 pm

by heatherbbb (603 Posts), Fri Feb 12, 2010 09:33 pm

I used Heparin (another blood thinner) during my second pregnancy. My doctor preferred Heparin because it has been around longer than Lovenox. You actually get used to injecting yourself although it is never pleasant. I did not get Preeclampsia during the second pregnancy and my second son was born at 36 weeks. So I would call it a success story. I am so sorry about the loss of your son.
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Re : lovenox??

Postby jamilyn » Sun Feb 14, 2010 06:40 pm

by jamilyn (430 Posts), Sun Feb 14, 2010 06:40 pm

I just emailed you before I saw you had posted about it. I used Heprin more of my preference since I went so fast with my 1st pregnancy since Heprin goes for 12 hours and not 24 itd be easier for me to get off of in time in case i needed to deliver.
My 1st pregnancy i delivered at 27 weeks, he only lived a week and died due to a hemorage in his brain. 2nd Prengnacy I was on Heprin and made it to 35 weeks and then this past pregnancy i did everything exaclty like I did with my 2nd pregnancy and I made it to 25 weeks before having a placental abruption after about 10 weeks of bedrest. I was hospitalized at 23 weeks with PE.
Best of luck to you, I would def see a Hemotologist and make sure you know exactly what you have and see what they recomend as well.
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