lovenox??

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mikeyangel1014
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Re : lovenox??

Postby mikeyangel1014 » Fri Apr 09, 2010 04:07 pm

So sorry to hear about your loss. I do seem to have the same clotting disorder. I had pre-e 12 years ago with my daughter. Born 1 pound 12 ounces with IUGR. After that birth we tried for 7 years. After going through IVF we got pregnant. I was told they would put me on Levenox, and that would help me not to get it again. In my case though I got it worse then my first time. This time I only last 25 weeks with this my boy, severe pre-E and Hellp, major IUGR. Born at 14 ounces. Lived a miraclous 48 days and was the light of my life. I wish I could say the lovenox, baby asprin, folic acid and everything else worked but for me it didnt. I just think once the dr.s learn more about this is when we will have a fighting chance. Obviously this is not the same for everyone and I wish you ALL the best. I just never ever want anyone to go through this like me :-(


brandi101
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Re : lovenox??

Postby brandi101 » Wed Feb 17, 2010 09:13 pm

i would def talk to a specialist i am ha91in my 3rd child my first daughter was full term no compication my 2nd i delivered a stilllborn daughter at 27 weeks i then got pregnant with my 3rd they put me on lovenox im @ 21 weeks and doin good so far

jamilyn
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Re : lovenox??

Postby jamilyn » Sun Feb 14, 2010 06:40 pm

I just emailed you before I saw you had posted about it. I used Heprin more of my preference since I went so fast with my 1st pregnancy since Heprin goes for 12 hours and not 24 itd be easier for me to get off of in time in case i needed to deliver.
My 1st pregnancy i delivered at 27 weeks, he only lived a week and died due to a hemorage in his brain. 2nd Prengnacy I was on Heprin and made it to 35 weeks and then this past pregnancy i did everything exaclty like I did with my 2nd pregnancy and I made it to 25 weeks before having a placental abruption after about 10 weeks of bedrest. I was hospitalized at 23 weeks with PE.
Best of luck to you, I would def see a Hemotologist and make sure you know exactly what you have and see what they recomend as well.

heatherbbb
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Re : lovenox??

Postby heatherbbb » Fri Feb 12, 2010 09:33 pm

I used Heparin (another blood thinner) during my second pregnancy. My doctor preferred Heparin because it has been around longer than Lovenox. You actually get used to injecting yourself although it is never pleasant. I did not get Preeclampsia during the second pregnancy and my second son was born at 36 weeks. So I would call it a success story. I am so sorry about the loss of your son.

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m
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Re : lovenox??

Postby m » Sat Feb 06, 2010 11:08 pm

I was not on any medication for my first pregnancy. It ended at 28 weeks with an emergency c-section and my baby only lived for 8 days. He had very low cord blood flow and IUGR. I was found to have the Prothrombin G20210A gene mutation, which, according to my perinatologist, causes an inappropriate tendency to form blood clots.

I am currently on Lovenox and have nearly made it to 31 weeks uneventfully. Baby is only measuring in the 35th percentile or so, but my peri says they don't get concerned until the 10th percentile or less. Also, I am having no cord blood flow problems so far.

My peri has told me basically the same thing Kara posted, which is that there currently isn't a lot of support for using Lovenox to prevent PE, but we know it won't hurt. I have also read that if there is any support for it, it is with patients who had very early onset PE.

Based on my factors (severity and fairly early onset), my peri told me I had a 50-60% chance of recurrence and a 10-20% chance of it being as severe and as early. If you haven't had a consult with a specialist yet, that's probably the best way to be informed about your chances of recurrence and the likelihood that Lovenox would make a difference. Even with all the information you can get your hands on, it's a very tough decision to make.

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jayme
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Re : lovenox??

Postby jayme » Sat Feb 06, 2010 07:16 pm

I used lovenox in a couple of my pregnancies.
In 2001 I had HELLP and delivered stillborn at 23 weeks- that was a non-lovenox pregnancy
In 2002, I was pregnant again and used lovenox and made it to 35 weeks when I went into labor on my own & had a healthy baby.
In 2004, same, lovenox, successful pregnancy.
2006, I saw a new doctor and he decided I didn't need the lovenox. At 23 weeks, I got sick again and I delivered at 25 weeks. My baby died 9 weeks later from complications of the prematurity.
In 2007, I used the lovenox but lost that baby for other reasons.
In 2009, I had my twins at 33 weeks, another successful lovenox pregnancy :)
I also used baby aspirin during the successful pregnancies
So for us, lovenox works

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l412angel
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Re : lovenox??

Postby l412angel » Sat Feb 06, 2010 10:17 am

I do plan on being on Lovenox during my next pregnancy per Doc's orders. I am going for a second opinion on that tho. Just to make sure. I do have Factor V one gene mutation, and from what i understand that means one of my parents has it correct?

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Re : lovenox??

Postby kara » Sat Feb 06, 2010 02:06 am

There's ongoing research about blood clotting disorders and lovenox. From my understanding, the newest science isn't really supporting lovenox use in genetic clotting disorders. Acquired clotting disorders are a bit trickier. I think the new science is showing that those on lovenox may have had good subsequent pregnancies because they were *subsequent* pregnancies, and not because of the blood thinner. There are also studies showing lovenox helpful to those with very early onset preeclampsia.

Outcomes vary. We have clotters here who had fabulous pregnancies on lovenox, some who got a baby to take home with them - even though they still got preeclampsia, and others who had poor outcomes. But again, they all have differing factors and disorders.

It's probably best if you find out exactly what it is, do more specific research, and ask the doctor how far they think you'll get in pregnancy, etc on lovenox. I'll most likely be on lovenox due to lupus anticoagulant, which is an acquired clotting disorder and my docs think it'll buy baby some time in utero.
Hopefully they can give you more concrete answers.

dolphincrazy316
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Re : lovenox??

Postby dolphincrazy316 » Fri Feb 05, 2010 11:40 pm

I don't really know what kind I have other than my blood is over clotting when I am pregnant. I was just relieved they figured it out. The dr mentioned lovenox but I just don't know if I want to go through all of that again. I would like to know if most every woman that has been on it has had a good outcome. I guess I just need to hear everybody's elses experiences with lovenox..

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Re : lovenox??

Postby kara » Fri Feb 05, 2010 10:55 pm

Angela,

Did they mention what type of clotting disorder you have? I too am so sorry about baby Alex. I'm glad they did some testing and you've been given some hope.


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