Here is the website for some good friends of ours who have been/are in a similar situation. Strangely enough, Stacey had PE/HELLP during her pregnancy also, but I believe his kidney problems aren't related to that. Anyway, they have been on the kidney journey for six years now. She is so knowledgeable and may have some advice. Their website is help-zachary.com They are in MN, so not too far away. They also have a facebook page as they are in the process of finding a living donor for Zachary.
You can also email me through my profile if you would like, and I can give you her phone number.
Prayers to this family.