Dear PE forum mothers,
I am a survivor of severe PE and a PE forum reader/poster. Since joining here, I have been deeply touched by the devastating effects of PE and especially the all-too many stories of families who lost their babies to this terrible disease. Rather than stand by, I long to do something actively in my life and within my work as a writer and artist to forward, even in a small way, the awareness of PE and HELLP to save lives.
I am working on a public art/text installation that will be exhibited as part of my MFA studies at Brown University in Providence, RI, this summer. (Pending funding, I hope to take the exhibit to other locations as well.) The installation intends to both commemorate the babies lost to PE and raise public awareness of PE and HELLP.
The exhibit will be a sea of small, identical, white cradles, constructed as an artistic installation and set up in rows on a grassy area, each standing for a precious baby lost to pre-eclampsia or HELLP. The number of cradles will be determined both by the response from the PE community and to reflect a relevant statistic. The cradles will stand empty, however once the viewer steps closer, s/he will bend over them and find inside a text commemorating a named baby, using words shared with me by families who elect to participate.
This message is an invitation to dedicate a cradle to a baby lost to PE. If you would like to participate in my installation in this way, I will invite you to share texts, letters, poems, anything you or other family members may have already written about or to your baby. * You don't need to be a creative writer or have any writing experience to participate! * I will also invite you, if you feel comfortable doing so, to reply to a few, brief questions about your baby and your pregnancy. I will then create a text based on your words for the inside of your baby's cradle. I will do so with utmost respect for the writing you have shared with me, and I will share my text with you before completing the cradle.
When I read stories about babies lost to PE or HELLP - all of which move and affect me deeply – I usually remember above all one detail, one word used, one moment that leads me to come to know this unique baby through their family's words and also to feel both the endless sense of loss and the immense gratitude for and celebration of their short life. These are the moments I hope to find and weave into short, creative texts for the cradles.
The Pre-eclampsia Foundation has endorsed my project and published an article about it in this month's newsletter here: http://campaign.r20.constantcontact.com/render?llr=fh4htedab&v=001UGlpv9WiH3WizXCm_JuPTgqUDo2UHQ12BXM2m1l4bg7A2FRCLjLNs_U6mIzOqkNa0v6qEibxrraXHArPyvYWSrBzx97iLoJOph120QPfaSfcJAySbogRIHBOtUL1I4ImWgm61oQ-nYBWMYCIKW_QWDNwp1uNDKGr_qil4K8ZGW9TUoVGNxpyn-KMZnicRvMIRFixf3jzrcbBWc64xtDY-xUs_9SaT9fti9QUrULClQkqsSkmX_me7uiEKaTAWWfSmEeNsde6dsM%3D
If you would like to contact me for further information or to participate, please email me at: email@example.com