I feel for you so much because I remember my own heartbreak at losing my son. I was just thinking today that my son's birthday (Seth) is coming up in 5 weeks. I'm not sure how I'll do. I'm thinking I might take that day off from work. Seth was born 1 day shy of 27 weeks. He went through the roller-coaster of the NICU, barely surviving severe pnemonias, two staff infections, double hernia surgery, and multiple respiratory infections. In his 5-1/2 month life, he never made it off of the ventilator for more than a few days. He died in February (the night before Valentine's Day) from Chronic Lung Disease. I know that Valentine's Day will never be the same for me.
I remember in his 2nd month getting a call at 11 p.m. from the NICU telling me Seth had pnemonia and wasn't responding to the ventilator. When we arrived at the hospital, the Docotor told us that Seth wouldn't live till the morning. We sat with him all night while his blood pressure and blood oxygen levels were unbelievable low. He pulled through for us that night and lived another 3 months. I was always scared to answer the phone after that, especially at night. It's hard to believe how much one phone call can change your life!
Sue, I just wish there was something I could say to comfort you, but words seem to come up short. I am so sorry you got preeclampsia and lost your precious little girl to NEC. I do believe we can draw strength from others who have had similar experiences, because we understand better and more fully than anyone else. I hope you got through today okay and will do even better in the weeks to come.
Mother of Seth Russell, delivered 26 weeks due to PE 9/3/03-2/13/04
Due with baby # 2 Feb 1, 2005