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Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 11:04 am
by chillman
I am soo sorry to hear about your sister. I would love to talk to you as we lost our Daughter in December of 2008 after she delivered her first child too (girl named Abby who is very healthy..) My home phone is *** and cell ***. I know the road of grief is a terrible road and not one we ask for. I am here for you if you wish to contact me. Sending you (((HUGS)))

Cindi Hillman

Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 10:39 am
by blythe
I am so very, very sorry about your sister's death.

I wish I had solid answers for you, mothers do die of preeclampsia/eclampsia/HELLP today, even in the US, even when they have no risk factors like PCOS or obesity. We don't know exactly how many, but it is too many. Preeclampsia is sometimes slow-moving - the average time from diagnosis to delivery is two weeks, but that average encompasses women who stay relatively stable for weeks or months, and women on the other end of the spectrum who are delivered right away at term - or who get deathly sick in hours. We've had women on our boards who were "fine" at a noon appointment and in full organ failure at 2am that night. We've had women who didn't seem very sick until after they had their babies, and then died postpartum. I am so very sorry that your sister got sick so quickly and died so tragically.

Please let us know any other questions you have, or ask us to keep explaining. Wrapping our minds around this disease is hard in the best of circumstances.

Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 08:32 am
by lulum704
I am so sorry about your lost.... Last April, our family lost my son's girlfriend (Emilly - they were on their way to getting married) and their son (Connor - my first grandson) to preeclampsia. Emilly's family and I worked together to hold a Promise Walk in OKC. We too had never heard of preeclampsia until the loss our family suffered. It is so good of you to be able to be with your brother-in-law and help with the baby through the pain you are suffering. Your neice will need in our life as she grows up to tell her the wonderful stories of her mother.... how she was as a child, how she couldn't wait to hold her.....

Emilly's friends also started a scholarship in her name at the college she had just graduated from the year before... Em's family and us work with them on fundraisers. If you need anything; please do not hesitate to contact me. I will be praying for you and your family.

love, laura

Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 08:24 am
by patty
(((hugs))) So incredibly sorry for your family's loss. Pre-e is such a terrible disease. I think it is more common to lose a baby then a mom but sometimes the disease does move very suddenly and tragically. I will keep you and your sister's husband and your little niece in my prayers.

Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 08:07 am
by laney_p
Hi Norinda,

We are so sorry for your loss. I have two sisters myself and can only imagine the pain that you are facing; but you have found such a wonderful community of women who have walked in your shoes. As you can tell from all these posts, we are all here for you, in any way you need. Preeclampsia affects approximately 1 in 12 pregnancies, and about 25% of those face severe consequences, which in our Foundation's opinion, is far too many women and their babies. We are hear to lend an understanding ear.

We also have a wonderful group of volunteers who are our part of Patient Support Network, and who have all been through the grief and loss that is cause by this devastating condition and provide emotional support. If you'd like to talk to one directly by phone, let me know, or you can call our toll-free patient support line at 800-665-9341. Please let us know if there is anything we can do, and don't hesitate to reach out to us directly!

Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 07:55 am
by angieb
I am so, so sorry for your loss. Praying for your family.

Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 00:50 am
by annegarrett
Norinda,

So sorry for your loss. I sent you a private message. PLEASE feel free to reach out to me directly. I am here for you.

Anne

Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 00:33 am
by brandib
I am so so sorry that you've lost your sister. You're right, we don't expect to still lose mothers to child birth in 2012. It just doesn't seem right. The Preeclampsia Foundation holds a " Promise Walk for Preeclampsia" in cities across America every May to raise awareness and to raise money so we can search for a cure!! We still don't understand what causes preeclampsia or how we can prevent it. We certainly do not realize why some women die and others get mildly sick. I wish I could help you more. I can tell you though that Preeclampsia affects 5-8% of all pregnancies. 10 million women a year will develop it. As uncommon as it seems with women having a 92-95% chance of NOT getting it, it still feels way too common. I am so glad you've found the forums! We all grieve with you. I am so very sorry for your loss.

Re: Lost my sister. Lost without my sister.

Posted: Thu May 24, 2012 00:12 am
by kerisue
I'm so sorry to hear about your sister. This awful disease preeclampsia/eclampsia/HELLP has taken so many loved ones, including my own baby girl. I know this is no consolation at all, but at least your niece will have you to tell her all the stories about her Mama, all the crazy and wonderful things she did when she was younger, and how much she wanted a baby.

You asked whether the the quick progression of disease is common. From my own experience, yes. I believe that the disease was silently beginning early in my pregnancy, but its outward manifestation was very fast- less than one week from diagnosis to delivery. A nightmare whirlwind it was. In others though, it can limp along slowly and never become "critical" or "severe".

Thinking of you, your niece, and your brother in law.

Re: Lost my sister. Lost without my sister.

Posted: Wed May 23, 2012 11:54 pm
by trish
I am so sorry for your loss. Unfortunately it is still way too common to lose a mama and/or a baby to this awful disease. I just walked here in OKC in the first Promise Walk here & the people who coordinated it lost their daughter and first grandchild this time last year.

I'm sure you will hear from others soon. I hope you can find some support here. (((HUGS)))