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Update - 18 weeks (LONG) (update)

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Update - 18 weeks (LONG) (update)

Postby twolfgram » Tue Apr 13, 2004 09:39 am

by twolfgram (388 Posts), Tue Apr 13, 2004 09:39 am

I had an appt yesterday and wanted to give a little update. My BP was good, baby looked fine all in all a good appt. Two weeks ago, before I started the extra vitamins, the doc checked my homocysteine level, which should be elevated give the MTHFR mutation I have, but it was not. It was normal. Now, I had been led to believe that this was mostly responsible for the abruption that I had which caused me to lose Erik. I was told in consultation that taking the lovenox would help that and I would be doing what I could to prevent the same thing from happening again. Yesterday, since the levels weren't elevated, the doc said my body was handling the mutation fine. Now I'm back to square one with all of this. I have no idea if anything I am doing is going to help prevent another abruption. I am now all scared all over again about losing this baby. The doc lowered my lovenox level by more than half, because she said the dose I was on was therapeutic for someone who's just gotten over a major clot and is worried about everyday life, cutting myself, accident, etc., not to mention delivery. I asked her what I could expect in the future in the way of appts, etc. She said starting at about 28 weeks I would be going in for BPP's once a week, then at 32 weeks, twice a week and if at any time, they showed the baby wasn't getting the oxygen it needs, delivery. Until that time, I will have monthly US to check for growth, fluid level, etc. and I need to take it easy, reduce stress as much as I can and keep an eye on my BP. Thanks for reading, just a little more worried/confused than before!

Therese Mom to
DS 10/4/95
DS Stillborn 12/20/02
And "Baby dot" - EDD 9/11/04!
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Re : Update - 18 weeks (LONG) (update)

Postby akemt » Tue Apr 13, 2004 10:05 am

by akemt (4961 Posts), Tue Apr 13, 2004 10:05 am

Therese,

I know nothing about the clotting stuff...sorry! But, the routine of tests, etc that your doctor has laid out sound pretty good. That is about where I am...watching my BP and starting the growth/afi ultrasounds. I'll be starting NST's around 28 weeks.

Glad to know things are going good so far this pregnancy.

Catherine (22), Moderator (pregnant again)
DH Britton (27)
Emma Margaret (03/02/03) 37 weeks from PIH & oligo
Baby #2 due August 11, 2004
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Re : Update - 18 weeks (LONG) (update)

Postby catherine » Tue Apr 13, 2004 10:28 am

by catherine (2832 Posts), Tue Apr 13, 2004 10:28 am

Therese, isn't it weird that a good appointment doesn't make you feel any better? I totally understand and sympathise. Still, the odds are really good that there isn't going to be a repeat of the abruption. Sounds like your OB is doing her best to juggle all the pros and cons for you. It is a bit strange, every time I'd go for an appointment last time, there'd be much discussion of what would happen in the future, NSTs, taking it easy etc. Each time I show up and my BP would be great, the baby would be doing fine and my peri would be "hey, you're fine... see you next time". By the time Chloe was born, she'd only had one serious u/s! I know it's hard when you have specific things to be afraid of, but each pregnancy is probably different.

Catherine
Mom to Finn, Lucy (preeclampsia and HELLP) and Chloe.
Moderator HELLP Syndrome Survivors
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Re : Update - 18 weeks (LONG) (update)

Postby akemt » Tue Apr 13, 2004 01:45 pm

by akemt (4961 Posts), Tue Apr 13, 2004 01:45 pm

Oh wait! I do remember Erin (deerhart) saying that her hematologist said the levels could fluctuate throughout your life so that at one point your levels would be totally off, but at other points it could appear that you have no such problem at all. Are you going to have labs drawn again to check later on? Perhaps that is the answer...to check them and change medication ammounts per their outcome? Obviously that is an OB/Peri thing to do...still not a doctor! LOL Just my thoughts.

Catherine (22), Moderator (pregnant again)
DH Britton (27)
Emma Margaret (03/02/03) 37 weeks from PIH & oligo
Baby #2 due August 11, 2004
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Re : Update - 18 weeks (LONG) (update)

Postby twolfgram » Wed Apr 14, 2004 05:13 am

by twolfgram (388 Posts), Wed Apr 14, 2004 05:13 am

When I talked to the hematologist, he seemed more concerned about the HELLP that I had with my first pg than with the MTHFR. I don't know. I'm just going to keep praying that everything turns out ok. One of the hardest things for me is that my last pg was picture perfect, except for some swelling in my hands. My BP was low, I was feeling good, everything. Oh well, can't dwell on the past! Thanks for the responses.

Therese Mom to
DS 10/4/95
DS Stillborn 12/20/02
And "Baby dot" - EDD 9/11/04!
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Re : Update - 18 weeks (LONG) (update)

Postby mada » Wed Apr 14, 2004 07:09 am

by mada (4081 Posts), Wed Apr 14, 2004 07:09 am

Therese, YOu are in my prayers. I can't imagine how anxious and nerve racking this must be. I am glad things are going well however, and you are getting very good care.

Mada Harpster

Sam 6-29-00 36weeks P.E.
Ben 11-03-01 No P.E.
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Re : Update - 18 weeks (LONG) (update)

Postby twolfgram » Wed Apr 14, 2004 08:24 am

by twolfgram (388 Posts), Wed Apr 14, 2004 08:24 am

quote:
Originally posted by akemt

Oh wait! I do remember Erin (deerhart) saying that her hematologist said the levels could fluctuate throughout your life so that at one point your levels would be totally off, but at other points it could appear that you have no such problem at all. Are you going to have labs drawn again to check later on? Perhaps that is the answer...to check them and change medication ammounts per their outcome? Obviously that is an OB/Peri thing to do...still not a doctor! LOL Just my thoughts.

Catherine (22), Moderator (pregnant again)
DH Britton (27)
Emma Margaret (03/02/03) 37 weeks from PIH & oligo
Baby #2 due August 11, 2004



That's a good question, I seem to remember that they were high about a month after I had the abruption, so I'm wondering the same thing. I have a call into the doctor's office now.


Therese Mom to
DS 10/4/95
DS Stillborn 12/20/02
And "Baby dot" - EDD 9/11/04!
twolfgram
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Re : Update - 18 weeks (LONG) (update)

Postby angelkat » Wed Apr 14, 2004 10:30 am

by angelkat (3423 Posts), Wed Apr 14, 2004 10:30 am

Isn't funny how we can take a good appt and still find fear and worries in all of them...

Sending you HUGE Hugs... I really do not know a lot about the clotting factors only what I have learn on here.



Hugs
~T

Mommy to
Drew(13)
Ky (11)
~i~ Katlyne(12/9/02-04/02/03) and little bud (Due 09/11/04)http://www.forevernetwork.com/Archive/lifestory.cfm?Archive_ID=10971&Directory=%2FArchives%2FMountHope&CFID=1089289&CFTOKEN=79068509
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Re : Update - 18 weeks (LONG) (update)

Postby twolfgram » Wed Apr 14, 2004 11:22 am

by twolfgram (388 Posts), Wed Apr 14, 2004 11:22 am

I heard back from my dr's office and the levels can fluctuate. My level was lower from two weeks ago after starting the vitamins. I asked if what I'm doing could possibly lessen the chances of the abruption happening again and was told - "possibly." The nurse said I just need to worry and be concerned like I will have to for the rest of the child's life (not very reassuring) and I will be watched closely like someone with my history would be, which is the same thing the dr said. So, I just go on doing what I'm doing and pray it's enough!

Therese Mom to
DS 10/4/95
DS Stillborn 12/20/02
And "Baby dot" - EDD 9/11/04!
twolfgram
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Posts: 388
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