by jgrumet (520 Posts), Wed Sep 30, 2009 00:33 am
Okay, I need to rant.
People ask me about Aram and how big he is. My husband LOVES to say ..."Well, not only is he huge for his age- he's also a preemie"...I think it makes him feel like he makes manly boy babies or something.
Anyway, that always leads to the question of why he was early. I don't mind telling people that I had HELLP Syndrome, but I figure they won't know what that is. For the past 15 months this is ALWAYS how the conversation will go:
ME:"He was a little over 6 weeks early because I had HELLP Syndrome...which is basically a very severe form of Preeclampsia"
The Other Person:[lost look on their face]...."what is preeclampsia?"
ME: "oh, it's that condition in pregnancy where your blood pressure gets high, your liver enzymes can get high, your brain can swell, you can have a seizure or a stroke if it goes untreated"
THE OTHER PERSON: "WHAT?! That sounds awful! How scary!...and there is a condition that is worse than that?"
ME: (I explain about hellp and they get even more freaked out)
Okay--so the point of this is ...how they heck do this many people really not know what PE is? I figured no one would know what HELLP is, but it has been over a year of the EXACT SAME conversation with other MOTHERS that have young children. If this disease really afflicts 8% of all pregnancies- shouldn't more women know about this?
The other day I was shocked when I had the same banter with a woman, but she knew what PE was. Turns out she had PE too. I go on to find out she only had one kidney and she was never seen by any high-risk OB and her doctor never suggested she should with her next baby. She is scared out of her mind to have another baby and she was not anticipating any complications with her pregnancy because her doctor never warned her. All he said was she should probably only have two children (this was after she had her son).