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Just got home after a whirlwind....

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.

Just got home after a whirlwind....

Postby babyevie2013 » Thu May 23, 2013 04:08 pm

by babyevie2013 (1 Posts), Thu May 23, 2013 04:08 pm

The last 6 weeks have been the most frightening of my life and i am struggling to find people to talk to who understand how i feel. I thought by joinging this support group and talking about it emotionally it will help. Here is my story.

At 32 weeks pregnant at a routine midwife appointment i had four raised blood pressure readings all around 162/108. I was admitted to the maternity assessment unit at the hospital for further monitoring but released after 3 hours as blood pressure stabilised and no protein was present in my urine.

At 33 weeks pregnant i went for an additional midwife appointment to check that my blood pressure remained stable, this time i had 6 readings with the lowest being 178/118 with +2 protein in my urine - again i was sent to the maternity assessment unit whereby they kept me in for 48 hours and completed a 24 hour urine collection. On saturday 20th April the midwife told me she was waiting for the drs to do their rounds but i would be discharged and monitored but in the meantime they would put me on the ctg machine to monitor the babys movements (as i had an anterior placenta and felt very little movement).

Whilst hooked up to the machine babies heartrate kept droping from 134 to 60 then back to 134 then back to 60. Once the midwife noticed this a doctor was by my side within minutes. I have explained i had been getting headaches but assumed this was due to work stress, my fingers had swollen as had my face and feet but everyone kept telling me thats normal in pregnancy. Within 5 minutes of talking to the doctor she told me that i needed to deliver the baby within the hour... needless to say i was shocked! luckily my husband had just got to the hospital (thinking he was going to take me home) whilst he called my mum to put some bits together for me i had two nurses undress me, take of my jewellery whilst i just stood there numb. An anethsetist told me i would need to be put to sleep as i had just had breakfast and that i have received some extremely high kidney readings 12 hours before - i persisted with him that i needed to be awake so my husband could be there. It wasn't until i was sat on the operating table waiting to the anethsetist to give me the general that my earlier blood work came back which was stable enough for me to go ahead and received a spinal.

Whilst being wheeled to the operating theatre so many people came and spoke to us about what was going to happen and most importantly what to expect of our baby... we were told the baby would be between 4-5lb, probably blue and flopping and may not cry but this is normal due to babies prematurity. We were told we would not see our baby and it would be taken straight to intensive care.

37 minutes after the dr made the decision to deliver our baby and 3 minutes into the procedure our little girl was born at 33 weeks 5 days weighing 2lb 12, and worry set in when the surgeon said ' this baby is alot smaller than it should be' we caught our first glimpse of the baby and she was taken away. Then it was time to remove my placenta which was the size of a tennis ball and black, i was immediately diagnosed with severe pre-eclampsia and the baby had an obvious uterine growth restriction.

I was taken to recovery and eventually up to the ward. The midwife managed to talk to NICU staff into letting them wheel me through the NICU on the hospital bed so i could see my baby for the first time, my visit lasted no longer than a minute before i had to be taken to the ward for hourly observations.

our parents arrived shortly after and the midwife told my husband that he could take the new grandparents to meet our little baby girl, they were so excited and they all scuttled off eager to meet the new arrival leaving me alone on a ward still in shock. That was the most painful part of my whole experience the fact that other people got to meet my baby properly before me, i had to put on a brave face whilst they told me how beautiful she was and what colour her eyes and hair were whilst showing me pictures when i should have discovered all those things myself, i should have been the first.

I got to hold our little girl the following day after surgery and that was the first time i got to see her properly, she was in an incubator in high dependency but had as much skin to skin contact with her as possible. We were then told her size was that of a 26-28 week old baby not almost 34 weeks. We are extremly lucky that she could breath unassisted, after 4 days she was able to regulate her own temperature and didn't need any other assistance other than antibiotics (as i didnt have steriods to mature her lungs before birth.)

In total we spend 10 days on the NICU, and 3 weeks in hospital in total. We have been home almost 3 weeks now and shes almost 5 weeks old and now 4lb 13oz.

Our experience is only just starting to sink in, and this has terrified me of ever wanting to fall pregnant again. It would be great if i could talk to some other lovely mums with a similar experience to help get my head around it all.
babyevie2013
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Re: Just got home after a whirlwind....

Postby MomTimesThree » Mon Jun 03, 2013 06:59 pm

by MomTimesThree (570 Posts), Mon Jun 03, 2013 06:59 pm

A belated welcome to the boards- I'm so sorry to have missed your story. How very scary! I'm so thankful despite her early arrival and your pre-e she is healthy. And wow, out of the NICU in ten days... a testament to her amazing strength!

I think most of us here given our experience have thought longer and harder than other parents about conceiving again, and have taken extra precautions- like pre-conception counseling and testing for any underlying conditions.

Congrats on your lil' girl! Please don't hesitate to ask questions as they come up or even just share and vent. :)
Lauren
2008-Our Baby Girl, PTL born too early at 30w6d, Fought so hard... Forever Loved & Missed
2010- Lil' Bro, Pre-E at 29 weeks... Induced at 36w6d, Born 37w
2012- Lil' Sis, Super-imposed pre-e at 25 weeks, PTL & GD at 35 weeks, Evicted 36w
MomTimesThree
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Re: Just got home after a whirlwind....

Postby tgr2011 » Tue Dec 17, 2013 11:07 am

by tgr2011 (1 Posts), Tue Dec 17, 2013 11:07 am

Hello, I am posting this on if my wife who is experiencing almost the exact same thing you went through. We are still at the hospital on day 6, going on day 7. My wife was put on bed rest with high blood pressure and closely monitored. Last week during an ultrasound her BP was high so we got sent over to the hospital and haven't left. While at the hospital she developed a headache and 36 hours later the Dr. ordered an emergency c section. They tried an epidural but it didn't work on her so she had to be put under. I wasn't allowed in the OR. Our baby girl was born at 35 weeks and 1 day. She was 4 pounds and 8 ounces. She is in the NICU but thriving. Was on a ventilator for 10 hours and then received O2 for a day and a half for assistance. She is breathing fine and controlling her own body temp. She just needs to either take to the breast or get better at nippling with a bottle. I was the first person to see her and I figured my wife needed to be the second. She wasn't able to physically leave the bed to see her for 2 days and they couldn't roll her bed into the NICU because of the way it is set up. I insisted no one sees her until my wife did but my wife insisted on letting grandma and grandpa see her. I know she feels the same way about not being able to find out what she smells like, her eye color and hold her before everyone else did.

We are almost at a week from the delivery, or surgery is probably a better term, and her BP is still raising and falling. How long did it take you to recover from PE? I hope we can leave the hospital tomorrow but right now it seams like we are going to be moving in here for good.
tgr2011
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Re: Just got home after a whirlwind....

Postby MomTimesThree » Wed Dec 18, 2013 03:52 pm

by MomTimesThree (570 Posts), Wed Dec 18, 2013 03:52 pm

Welcome, I am so sorry you wife and family had to suffer through pre-e, and are still feeling the effects from it. It's really hard to say what will happen to her blood pressure and symptoms in the post partum period. I am thankful they are watching her closely, and keeping her if need be. It's hard to leave the hospital will your baby is in the NICU anyhow. While for some after delivery things go back down to normal almost immediately, for others its not the case. I stayed on blood pressure medication for I believe a month PP...
2008-Our Baby Girl, PTL born too early at 30w6d, Fought so hard... Forever Loved & Missed
2010- Lil' Bro, Pre-E at 29 weeks... Induced at 36w6d, Born 37w
2012- Lil' Sis, Super-imposed pre-e at 25 weeks, PTL & GD at 35 weeks, Evicted 36w
MomTimesThree
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Posts: 570
Joined: Sat Feb 11, 2012 08:54 pm


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