Ready to go off the deep end!

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
jenandtheboys
Registered User
Posts: 1245
Joined: Mon Jan 17, 2005 05:48 pm

Re : Ready to go off the deep end!

Postby jenandtheboys » Thu Mar 02, 2006 07:32 am

(raising my hand in the air).....Another mom here who changed peds and is so glad she did! [:)] It was a while ago, we did it right before Andrew turned a year old, and it has been wonderful and I love the one we have now! The other practice was the one in our town, but it was so big and I never felt like anyone there knew us or our situation. We'd see someone different every time we went in and then I was having to tell them the whole story of ANdrew's medical history etc myself....it's like I was the doctor, kwim?

Anyway, sorry to go off like that, I just remember what it was like to be unhappy with the service you are getting, and that's what it is in my opinion----service, and you are the customer. If it is not suiting you or your child, you have every right to look elsewhere. Hope you can find one you are happy with. I actually went in with my DH and met with the potential new ped, just sat down in her office and chatted a bit before we officially transferred Andrew's care to her. I felt good changing to her because I'd liked what we'd seen and heard, felt comfortable with her, and it's a much smaller practice. Now, everyone there knows us and it's a much better situation.

Best of luck finding what you're looking for! [:)]

missgamecock
Registered User
Posts: 6064
Joined: Fri May 30, 2003 06:34 pm

Re : Ready to go off the deep end!

Postby missgamecock » Thu Mar 02, 2006 06:25 am

You know sometimes the inhaled version of albuterol is better with the youngins because they are able to breathe it more immediately into their lungs. But she may need a quick dose of prednisone.

If you are not happy with your current ped. I would change. I learned that lesson the hard way because I I hated our ped at first with Kirsten and waited too long to change. Now that I have changed, I have complete confidence that I can call her ped about anything. That is what I like.

molly419
Registered User
Posts: 990
Joined: Thu Feb 03, 2005 07:19 pm

Re : Ready to go off the deep end!

Postby molly419 » Wed Mar 01, 2006 10:51 pm

Thank you everyone so very much for the suggestions!!

Abigail is on the albuterol once a day, but that have never seemed to make a difference. I honestly think she has allergies, as my entire side of the family including myself suffers. This winter in SE PA has been crazy. One day it will be in the 50's and two days later it is back down in the 20's. Also, my neighbor told me that the area we live in has the highest allergy count in PA. Yippee.

I think you ladies are right...it is time to get a second option. I have never been happy with her current ped, and I think it is time to move on.

By the way, I got 6 hours of uninterrupted sleep last night, so I am doing SO much better. Decided to take a certain ad out of the "paper." hehehe.

You guys are wonderful!

mom2tori
Registered User
Posts: 3842
Joined: Wed Aug 25, 2004 12:57 am

Re : Ready to go off the deep end!

Postby mom2tori » Wed Mar 01, 2006 09:15 pm

I have nothing to suggest just wanted to let you know I was thinking of you guys and hoping Abigail feels much better soon

mamc2003
Registered User
Posts: 435
Joined: Mon Feb 10, 2003 10:03 pm

Re : Ready to go off the deep end!

Postby mamc2003 » Wed Mar 01, 2006 04:32 pm

Audrey was diagnosed with asthma about 2 months before she got RSV. We spent the next two years with her coughing so bad at night she would throw up. I finally switched peds and had him give us an ENT appt and had her tonsils and adenoids removed. We went a full year with no coughing. When she started coughing again this winter, I took her back to the dr and she was started on OTC Allegra. It took a few days for it to help, but boy did it. The dr says Audrey's allergies start when the weather changes back from hot to cold as it does so many times where I live.

I hope you're able to get some answers and I agree that a second opinion is needed.

deerhart
Registered User
Posts: 3282
Joined: Thu Jan 30, 2003 08:54 am

Re : Ready to go off the deep end!

Postby deerhart » Wed Mar 01, 2006 03:12 pm

Could it be phelm? Does she still tkae a night time bottle or glass of milk?

I would suggest moving away from the nighttime milk and trade it off to soemthing else if possible because if it is phlem milk helps to produce more of it.

You could also try elevating the head of her bed/crib to help the phlem drain better.

OHHH I have had many a sleepless night because I could not lay down (even on 2-3 pillows) due to severe phlem. I actually used dayquil couch medicine (in the pill form) as one of the few things that worked to allow me to sleep. There is also another medicine (of which I can't remember anymore its been so long) my mother gave me as a child that would help. Mine was caused by allergies and I usually would end up sleeping in a reclining chair so that I was mostly upright.

Not only with it do I get upset stomachs and not want to eat, it also can become hard to breathe, things taste/smell funny etc.. When I have it really really bad I do end up throwing it up or coughing it up (I usually try to intervene before that point but sometimes it hits so quickly you can't)

lorelei
Registered User
Posts: 3788
Joined: Tue Oct 26, 2004 10:17 am

Re : Ready to go off the deep end!

Postby lorelei » Wed Mar 01, 2006 10:44 am

Sorry that she's not feeling well and that you are exhausted. It's not fun to have a sick baby. I hope that you will find something that works soon. (((HUGS)))

mama2twins
Registered User
Posts: 790
Joined: Mon Mar 07, 2005 02:03 pm

Re : Ready to go off the deep end!

Postby mama2twins » Wed Mar 01, 2006 10:15 am

You already got great advice Molly, but I agree with possibly getting a second opinion and asking the MD for prescription strength meds. When my girls had a nasty cold, the OTC stuff did nothing, but they finally got a night's sleep with something stronger. I hope she is feeling better and that you get some much needed rest really soon!

missgamecock
Registered User
Posts: 6064
Joined: Fri May 30, 2003 06:34 pm

Re : Ready to go off the deep end!

Postby missgamecock » Wed Mar 01, 2006 08:28 am

Sara had the same thing for the last couple of months. She had a cold from end of Nov to Dec. Got better. Caught RSV in January and is just now getting over it. Some suggestions: Suck her snot out with a bulb syringe and saline solution. Not pleasant but it works and she will NOT like it. So be prepared. Raise her crib or bed up so that she is not laying flat on her back. If her coughing is really really bad, she may need a dose of prednisone or/and albuterol. The prednisone will reduce the inflamation in her airways and the albuterol will open them up, allowing her to breathe. As far as her throwing up mucous. My almost 7 year old still does this, because the mucous drains into their stomach and the only way to get rid of it is to throw it up. Good cold medicines are ones that would have the 7.5 mg of the D ingredient. Can't remember the ingredient name off hand but it starts with a d and you'll see what I am talking about if you look at the label. The ones that I use are pediacare infant cold or the WM brand of the pediacare (same thing but cheaper). (but Abigail is older however small and meds go by weight, so make sure of which you need infants or children's). Run the humidifier in whatever room she is in. Keep giving steam baths to break up the mucous.

You really should call the doc and ask for rx for albuterol (it comes in liquid or inhaled form and is fairly cheap.). I would ask for rx for the prednisone too, simply because if she is coughing that bad, her lungs WILL be irritated. Hope this helps ya. I have BTDT with Kirsten so many times my ped just calls a rx for the prednision and albuterol because he knows I know how to use it, lol. Hope she feels better soon.

jenandtheboys
Registered User
Posts: 1245
Joined: Mon Jan 17, 2005 05:48 pm

Re : Ready to go off the deep end!

Postby jenandtheboys » Wed Mar 01, 2006 08:27 am

Molly, SO sorry you're having this frustrating and discouraging situation with Abigail. I know it can't help your state of mind to have her throwing up her meals or milk.........hope you are soon able to get a resolution and figure out what's going on.

I like Meg's idea, though, and wonder if maybe something like that could help Abigail as it has for Grace. Have you ever had to do nebulizer treatments, maybe back when she had RSV? I also agree about getting additional opinions. I know you already go to numerous specialists....what about an allergist, a pulmonologist (sp?), or something along that line. Even if your ped says "she's fine", it can't be right for her to be coughing that severely.

Keep us posted, hope she's much better soon and that you can get some sleep. (((((((hugs))))))))) Love ya, girl! [:)]


Return to “Parents of Preemies”

Who is online

Users browsing this forum: No registered users and 3 guests