update on Nathanial

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
for faith
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Re : update on Nathanial

Postby for faith » Sun Nov 18, 637668 2:52 pm

I am so sorry, my thoughts and prayers are with your family.

cindync
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Re : update on Nathanial

Postby cindync » Wed Nov 07, 637668 2:37 am

Wow, I am so sorry. I just read the link, and now they think your other son might have it too??? I am hoping not. It sounds very serious. i will be thinking of you and your boys.




miracle3
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Re : update on Nathanial

Postby miracle3 » Tue Nov 06, 637668 10:28 am

So sorry Tanya. I will be thinking about both of the boys as well as you and your husband. I know this must be difficult to handle. Again I am here if you need support.

jdsmom
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Re : update on Nathanial

Postby jdsmom » Tue Nov 06, 637668 5:31 am

Tanya,
I just wanted to say how sad I am for you. Having preemies we all know there is a chance of numerous things going wrong, but we all hope and pray that our babies don't develop anything else they'll have to fight so hard to overcome or work through. I'm sorry for your whole family; but what great parents you all are to continue pushing for answers when doctors were claiming everything was just normal. What sort of treatment is there for this sort of thing? Would physical therapy help at all, or will they just need to learn to work around it? You are in my thoughts; be kind to yourself through this intense struggle.
((((((HUGS))))))
Danielle

youtan
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Re : update on Nathanial

Postby youtan » Tue Nov 06, 637668 4:50 am

Friday we found out that Jonathan's CK level is also elevated, meaning that its likely that he's also going to have MD. Today he is getting the genetic test done. We won't know for sure for a few wks.

I just can't believe my preemie babies are going to have to endure more.

Thanks for all your kind remarks and prayers.

They suspect the kids have Becker's MD. If your curious: http://en.wikipedia.org/wiki/Becker%27s ... _dystrophy

caitlynsmama
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Re : update on Nathanial

Postby caitlynsmama » Mon Nov 05, 637668 11:09 pm

I will definitely add you and your family to your prayers. Stay strong and know that each day is a miracle especially for all we have been through to get these little ones into this world.

frasiah
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Re : update on Nathanial

Postby frasiah » Fri Sep 21, 637668 6:05 pm

You and your family are in my prayers Tanya....

akemt
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Re : update on Nathanial

Postby akemt » Fri Sep 21, 637668 5:27 pm

I'm crying for your heartaches right now, Tanya. Sending my prayers for your family...

timelessbeauty
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Re : update on Nathanial

Postby timelessbeauty » Thu Sep 20, 637668 6:39 pm

Thinking of you

cathyw
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Re : update on Nathanial

Postby cathyw » Mon Sep 10, 637668 5:08 pm

I am so sorry to hear of the recent diagnosis. I am sure you are reeling from shock. Please know that we are all here to support you in any way that we can. Take care. YOu are in my thoughts and prayers.

Cathy 38
DH 40
John, 3 1/2 yrs (born at 32 wks, 3 days due to Severe Pre-E)
Katrina, 2 yrs (born 36 wks,6 days due to Mild Pre-E)


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