Need info for Premmie on Vent

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
sandy
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Re : Need info for Premmie on Vent

Postby sandy » Wed Apr 14, 2004 05:42 pm

Rob! Great news!! Things must be getting better if you're thinking about a "to-do" list. :) And the pumping is going better for your wife. Thank goodness for that.

If you want some unsolicited advice, get a huge accordion folder for the insurance stuff, if you haven't done so already. It took me about 8 months to get to the bottom of a lot of it; getting bills for things we shouldn't have been billed for, phone calls...would have helped if I had been more organized from the start. I had no idea that keeping on top of the insurance company would be a part-time job in itself! (Hopefully it will be different for you.)

And about the noise little Parker has grown accustomed to from the machines and the environment there...I didn't like that about my DD's stay in the NICU, either. Now, she can sleep through lots of noises; phone/doorbell ringing, conversations, television...and I attribute that to the noisy environment where she spent the first few weeks of her life. So there may be a benefit to that!!

Looking forward to hearing more updates...

~Sandy/DD born via emergency C at 35 wks/1 day June '03 due to Severe PE/class III HELLP/chronic HBP/asthma

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julie f
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Re : Need info for Premmie on Vent

Postby julie f » Wed Apr 14, 2004 05:23 pm

Rob,

So glad today was another great day!!! We LOVE happy updates! As far as all the chores go - here's the only advice I can offer - If people volunteer to help - let them!! It was amazing what people wanted to do for us when I was in the hospital - they didn't know what to say or how to help me so - they went to work on what they could see!

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Southern California Coordinator

meg
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Re : Need info for Premmie on Vent

Postby meg » Wed Apr 14, 2004 05:11 pm

thats great that he had another great day!! Dont worry about the house and the cleaning and such, all that can wait. Dont let it stress you!!![;)]

Will 2-6-00 ( PE at 35 weeks)
Elizabeth 7-3-01 ( NO PE)
#3 EDD 10-25-04
Proud Aunt to Ethan born 27.5 weeks weighing 1lb 8 ounces! Our little fighter!
Already off the ventilator and opened his eyes!

worriedhubby20
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Re : Need info for Premmie on Vent

Postby worriedhubby20 » Wed Apr 14, 2004 05:06 pm

Well, today appears to be another wonderfully blessed day! Parker graduated last night to the incubator. I wasn't sure if he ever would. All of the babies that started off with him have either gone home or moved to the level I nursery. I know he will probably sleep better without all of the noise he was having to listen to. My wife is doing great also. The milk appears to have found its way back to her breast, and she is pumping away. Now if I could only find a way to get the house cleaned, vehicles cleaned, yardwork caught-up, and all of this insurance stuff organized, maybe, just maybe, we could both get a little rest. I'll keep everyone posted.

Rob

annes
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Re : Need info for Premmie on Vent

Postby annes » Wed Apr 14, 2004 09:58 am

Isn't it a great feeling to get an unobstructed view of your baby's face! I took so many pictures the day they took my son's feeding tube out. Sounds like things are going well, glad to hear that your wife is feeling better, maybe you can get her to take a little time for herself and get a manicure, massage, facial or something (if she is into that sort of stuff). I resisted doing those things, and when I finally went for a manicure/pedicure, I started to feel a lot more like myself! good luck with everything and hang in there![:I]

Anne
DH Richard
Parker 7/6/03(severe pe)33wks

mada
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Re : Need info for Premmie on Vent

Postby mada » Wed Apr 14, 2004 07:13 am

Such great news!! I am so glad you wife is feeling better and that Parker is doing so incredibley well. Your story is an inspiration!!

Mada Harpster

Sam 6-29-00 36weeks P.E.
Ben 11-03-01 No P.E.

emmybree
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Re : Need info for Premmie on Vent

Postby emmybree » Tue Apr 13, 2004 07:23 pm

awwww thats sooo great!!! I cant wait to see pics of the little guy! I am glad they are both doing great! I pray he continues to strive!

Mommy to:

Breanna (1-25-02)(born at 36weeks..preclampsia)
Emilie (2-19-03)(born at 31wks..due to toxcemia/preclamspia)

worriedhubby20
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Joined: Wed Mar 17, 2004 04:45 pm

Re : Need info for Premmie on Vent

Postby worriedhubby20 » Tue Apr 13, 2004 05:38 pm

The wife appears to be doing really well. She said that the pain in her breast was gone, as is the fever. The lacatation specialist told her that anytime she gets sick, fever, ect.., that it will take some additional pumping sessions in order to get the milk back flowing again. Her left breast is producing as always, but the right is barely putting anything out right now. Parker has had another GREAT day!![:D] His labs are doing much better, and the doc that is consulting said that there is no reason to perform some test that would require putting some kind of dye into his system in order to see how is liver is performing. I am very proud of him!!!!! I almost didn't recognize him last night when I went to sit with him. He looks so much different without all of those tubes in his nose, mouth, and belley. I will continue updating. Thanks so much for the prayers!!!

Rob

ryansmommy
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Re : Need info for Premmie on Vent

Postby ryansmommy » Tue Apr 13, 2004 06:43 am

Oh my! I hope your wife feels better soon!! However Parkers news is wonderful! Keep us posted. I will continue to keep you all in my prayers.

Shirley

Ryan Gabriel 6/23/03

angelical
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Re : Need info for Premmie on Vent

Postby angelical » Tue Apr 13, 2004 06:24 am

Oh no! I had mastitis after Aaron got out of the hospital... the pumping schedule was too much for me with going back to work full time. That was the most painful thing I have ever felt. I feel bad for your wife.

Sharel

------------------------
Sharel O'Connell
Local coordinator for Pittsburgh area
'Parents of Preemies' co-moderator
Survivor of Preeclampsia, HELLP Syndome, & preemie parenting
Future adoptive mom

Aaron (28 weeker, 5/2/02)
Kevin - DH


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