Need info for Premmie on Vent

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
emmybree
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Joined: Thu Apr 08, 2004 05:40 am

Re : Need info for Premmie on Vent

Postby emmybree » Thu Apr 08, 2004 03:52 pm

I just wanted to say its good to hear how a man feels about all this, I was a bigger mess with Emilie because I felt helpless being I couldnt drive and dh had to work, and then I couldnt pick up my older daughter so my MIL had to stay and help out. I am glad that he is doing better and I hope he continues! I hope your wife feels better soon too! Trust me I know exactly what her feelings are, it still makes me cry to hear stories like yours!

Mommy to:

Breanna (1-25-02)
Emilie (2-19-03)

worriedhubby20
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Posts: 77
Joined: Wed Mar 17, 2004 04:45 pm

Re : Need info for Premmie on Vent

Postby worriedhubby20 » Thu Apr 08, 2004 03:10 pm

The wife is doing great!! Physically, she amazes me. Today really brightened her up to see him looking so much better. I sure makes things alot easier on me to have both of them having good days. Thank you for your concern and well wishes. I print these out nightly for the wife to read when I get home from work.

Rob
father to James Parker, 30 weeks, mom had severe PE, 1 lb. 14 oz.
quote:
Originally posted by Pelote77

So glad to hear a good update on little Parker!

How is your wife holding up?

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Southern California Coordinator


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julie f
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Re : Need info for Premmie on Vent

Postby julie f » Thu Apr 08, 2004 02:43 pm

So glad to hear a good update on little Parker!

How is your wife holding up?

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Southern California Coordinator

worriedhubby20
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Posts: 77
Joined: Wed Mar 17, 2004 04:45 pm

Re : Need info for Premmie on Vent

Postby worriedhubby20 » Thu Apr 08, 2004 02:36 pm

quote:
Originally posted by EmmyBree

Congrats on the birth of your son! I hope he continues to strive and do well! Emilie was born at 31 weeks due to preeclampsia/toxcemia, my placenta also stopped working and she wasnt growing so they took her two days later after giving me shots for lung maturty, not sure if they did that or not with your son, but I guess it depends on how badly he needed to come out. I will keep him and your family in my thoughts [:)]

Mommy to:

Breanna (1-25-02)
Emilie (2-19-03)

Thanks so much. They gave the steroid shots the day after she was put in the hospital, and delivered him nearly 3 weeks later. Today seems to have been a better day. He would open his eyes and look at me, stretch and yawn. His lab work returned to normal, but the doc said he was going to give him some antibiotics for a possible infection. If things go good tonight, he said he would like to start him on breastmilk tomorrow. Parker looked so much better today. His tummy looked thicker, ribs weren't protuding, he had really good color, and they reduced the number of times the ventilator had to breath for him. He is still on room air only, no oxygen. I'm very proud of him!!!

emmybree
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Posts: 30
Joined: Thu Apr 08, 2004 05:40 am

Re : Need info for Premmie on Vent

Postby emmybree » Thu Apr 08, 2004 01:44 pm

Congrats on the birth of your son! I hope he continues to strive and do well! Emilie was born at 31 weeks due to preeclampsia/toxcemia, my placenta also stopped working and she wasnt growing so they took her two days later after giving me shots for lung maturty, not sure if they did that or not with your son, but I guess it depends on how badly he needed to come out. I will keep him and your family in my thoughts [:)]

Mommy to:

Breanna (1-25-02)
Emilie (2-19-03)

meg
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Joined: Sat Jan 17, 2004 03:43 pm

Re : Need info for Premmie on Vent

Postby meg » Wed Apr 07, 2004 06:05 pm

I think it sounds like he is doing great! My nephews blood gases were off for over a week I think until they got it regulated. Thats great that his head scan was good! My nephew had a grade 2-3 hemmorage which could mean some developmental delays, its just too eatly to tell. Dont worry about teh weight yet, they have to get everything medical all stable and clear and then he will gain. It was almost 3 weeks before my nephew gained any! Now he is almost 3/4 pound over birthweight!
I know its so hard but it sounds like he is donig great!

Will 2-6-00 ( PE at 35 weeks)
Elizabeth 7-3-01 ( NO PE)
#3 EDD 10-25-04
Proud Aunt to Ethan born 27.5 weeks weighing 1lb 8 ounces! Our little fighter!
Already off the ventilator and opened his eyes!

mada
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Re : Need info for Premmie on Vent

Postby mada » Wed Apr 07, 2004 05:52 pm

Hi Rob,
I can't imagine how stressed you are between worrying about your wife, Parker and trying to stay strong. Parker will have up days and down days and I pray tommorow will be an up!! You guys are in my thoughts a lot. Glad you are posting here[:)]

Mada Harpster

Sam 6-29-00 36weeks P.E.
Ben 11-03-01 No P.E.

worriedhubby20
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Posts: 77
Joined: Wed Mar 17, 2004 04:45 pm

Re : Need info for Premmie on Vent

Postby worriedhubby20 » Wed Apr 07, 2004 05:03 pm

Today is another one of the down days. The Doctor called us early this a.m. before we had left for the hospital and gave us a brief rundown. He said that for the first time his blood gas results weren't where he would like to see them, he had elevated levels of CO2 in his system and that his head and chest X-rays came back good. They gave him some oxygen, raised the number of times that the vent breathes for him (was 20 times out of 80 yesterday, today it was 40 out of ?, the monitor was not picking up his rate). They also started him on Lipids and said that for the next week or so they were going to concentrate on nutrition and breathing. He hopes to start him on breastmilk tomorrow or Friday. I know that he is going to pull through this and I really liked it when he said that he was wanting to put some meat on his bones. I'll keep posting his progress. Thanks to all!

iansmom
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Joined: Tue Sep 02, 2003 10:07 am

Re : Need info for Premmie on Vent

Postby iansmom » Tue Apr 06, 2004 08:33 pm

My prayers are with your family. As you now know, you are not alone. My son was born at 26 weeks, 1lb 8oz at a hospital 3 hours from home. He breathed on his own for only 5 minutes and was on the vent for 5 weeks and then oxygen for another 8 weeks. It was the longest 3.5 months of our lives. My husband returned to work while I stayed with Ian. But after my 6 weeks, I returned to work so that I could take off when he came home. We only saw him on weekends for the last 8 weeks. Lots of stress, but well worth it. Good luck.

Ian 12/26/01 - 26 weeks P/E & HELLP
#2 EDD July 15, 2004

maddiekinsmom
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Re : Need info for Premmie on Vent

Postby maddiekinsmom » Tue Apr 06, 2004 09:42 am

Hang in there! As many others have said, the NICU is a major roller coaster ride. My daughter was born at 29 weeks weighing 1 lb, 14 oz and was put on the vent too after breathing on her own for 8 hours. The whole NICU experience was very hard with more ups and downs than you can count, but you will get through this. Just keep talking to the doctors and nurses and ask all the questions you have - and ask them as many times as you need!

And remember, as hard as it is, you both need to eat, sleep and take care of yourselves. This is a great place to share your worries, sorrows, frustration, ask questions, etc.

May your NICU stay be uneventful and may Parker (great name!) be a "feeder/grower" soon! (That's what our NICU termed wee ones who just needed to eat and grow to come home.)

Sending lots of positive thoughts your way.




Rachel
Madeleine 4/8/01 (29 weeker: 1 lb,14oz; severe PE, IUGR)


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