by torian0319 (19 Posts), Tue Feb 01, 2011 01:47 pm
Well...my daughter suffered a huge set back this weekend. She is the baby that was born on Dec 16th at 1 lb 7 oz due to PE/placental abruption. I received a call at 2am from her nurse stating that she had apnea spells every 10 mins. Prior to this, she was on room air, breathing like the rest of us, starting to feed by bottle, and can maintain her own body temp and weighed 3 lb 8 oz. So, the events that occurred this past Sunday was both disappointing and heart breaking. Of course I rush to the hospital and while I was there, surely she was having these spells. They had suspected that she had an infection, so they started her on antibiotics. By this time, my daughter had regressed back to CPAP due to her spells. But, eventually, even the CPAP was not working. I watched my daughter turn blue and they had to resuscitate her twice right before my eyes. I thought I was going to pass out in fear. They got a heart beat and respirations, but had to continue with the assisted breaths in order to sustain her. Her dr. came in from home and immediately intubated her. Now, my daugher who was without any assitance on breathing, feeding by bottle, gaining weight, on her way to an open crib, was now back on the ventilator. We found out yesterday that she has Group B Strep that has caused a swollen lymph node (mass) in her next with cellulitis, as well as pneumonia. A HUGE set back and heart breaking. When I saw her with the new vent and all the i.v./ pic lines etc, I wanted to die. The dr said that she was progressing well on the new antibiotic and she liked the way she looked compared to Sunday, but I am like, NO...I don't like the way she looks. My child is back on the vent, has pneumonia with her extremely weak lungs and body, and is in pain (they had been sedating her to ease her pain). From a medical perspective, it may look good, but from a mom's perspective, it is heart breaking and not good. Her calcium was low again and she had to have another (her 4th) bld transfusion. When I sleep, all I can see is her face turing blue and them resuscitating her. It is a nightmare. Thanks for listening/reading.