by nhgirl (7 Posts), Fri Aug 20, 2004 08:13 pm
Thanks, we think she's cute, too (we're not partial or anything! lol). :)
Here's an update of our nerve wrenching past two days. Yesterday my mom was over visiting. She's a nurse of almost 30 years. Her first 20 years were in Labor & Delivery, then a couple in the NICU and now she is working in same day surgery. Anyway, Katharine did the twitching while she was there and my mom did not like it at all. I guess she didn't want to get me too excited, but felt like it was seizure-like activity. I told her how the doctors had dismissed it, etc. so she didn't say much but then today called me from work. She talked to a couple pediatricians at her work (one of the best hospitals in the world--Mass General) and they told her we should definitely have her checked. I called my pedi and told them that my mother saw the twitching I was describing and it concerned her, etc. They called back and said "if you hold her arm and it doesn't stop, then you need to take her to the emergency room." Well, nice of them to say that the other 7 times I brought it up! I swear, you learn more off the internet (here, thanks guys!) than from doctors sometimes. So, we went right into Mass General and my baby was taken such good care of. The EEG staff, pediatric neurology, general pediatrics, and some other specialists were all waiting to see her (the frantic grandmother had made the rounds and let them know we were coming--it pays to know people, they all stayed late on a Friday night to wait for us!). So, we went through the entire history with all these doctors (my pregnancy complications, family history, a million questions about the baby, the specific activity, etc). They were way more attentive and not dismissive at all like the other doctors I had brought it up to. So, they did an EEG on her (the poor thing was covered in electrodes and her head was wrapped in gauze but she was content the whole time). They did the test for over an hour and we could hear them all discussing the findings (yes, all these doctors stayed for her!). They are pretty positive what she has is Benign Sleep Myoclonus, which is an abnormal finding (not all babies have it, it does have to do with prematurity) BUT (very good but) it does not cause any problems. It is just a sleep thing they outgrow, and there are a couple types. One type they can have up until 3 or 4 yrs old on and off, the other type is usually gone by 4 months. Here's a link with info: http://www.medterms.com/script/main/art.asp?articlekey=24815
Anyway, what a relief, I really hope that's what it is! It really pays to know people. Not only did they spend all that time with us, but they gave us their email and pager numbers in case we notice anything different, and the neurologist gave me her email so I could send her the video I captured of the baby twitching. Oh, and they called to make sure we got home okay because the ER said they didn't see us leave or something. I couldn't get over it!
So, there's the update. I feel soooooo much better now and hope that it just goes away and nothing about it changes. They are going to do a follow up EEG in a few weeks just to be sure. :)
Thanks for all the support here! You guys are awesome!
p.s. She weighs 7 lbs 4 oz today at 4 weeks old (which is really like 1 week and she was 5 lbs 3 oz at birth and 4 lbs 14 oz when we left the hospital at 1 week old!!!!!!)
with DH Greg & baby girl Kate (born 7-23-04, 3 weeks early due to Pre-e)
Kate's page: http://pages.ivillage.com/nhgirl27/index.html