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Need to vent VERY SCARD

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.

Need to vent VERY SCARD

Postby samarasmom » Sat Aug 21, 2004 07:43 pm

by samarasmom (560 Posts), Sat Aug 21, 2004 07:43 pm

WEll I know i talked to some of the moms about her GERD and how sometimes she has trouble breathing. I took her in to the doc today and her doc was not there so I had to see the doc who I cant stand. ANyways he said she had a little cold. I noticed that she was having problems breatning thru her nose and was snorting alot and breathing thru her mouth.
I know everyone reassured me that when she stops breathing or chokes that i will hear her.

Tonight I was online and i happened to glance over and she was purple. I was awake and she was quietly choking on a little bit of spit up, there was no vomit , just a little bit of formula in her mouth.
Rest assured she is fine BUT I probably wont be sleeping much since my nerves are shot and will be too scared to fall asleep in fear that I wont hear her in her sleep if I didnt hear nothing when awake

thanks for listening

Sandra 23
Michael Abron ( fiance)
Elijah Kristopher Michael Abron ( 43 wks no complications) 5/6/99
Isaiah Liam Abron ( 37 wks PE and Preterm labor) 3/25/02
Samara Juliyana Abron ( 35 wks PIH and poss PE ) 7/21/04
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Re : Need to vent VERY SCARD

Postby raindrop » Sat Aug 21, 2004 08:37 pm

by raindrop (454 Posts), Sat Aug 21, 2004 08:37 pm

OMG... glad she is fine. I know that has got to be very scary. I would ask your regular doc about seeing a GI doctor, it sounds like she is getting worse maybe. I wouldnt think a cold would cause that. No expert myself, but I cant recall mine having that happen, Wyatt would just have the reflux and it get into the bronch tubes causing asthma episodes.

I will be thinking of you and Samara.

Donna - 32
Richard - 33
Whitney Lynn Rochelle- 6-27-99 - (36 wks due to severe PE) 5lbs 2oz 18in long
Wyatt Elijah Lawrence- 7-3-03 (34wks 6days due to severe PIH/PE) 4lbs 6.8oz 17in long
Expecting #3 EDD March 3, 2005 - gallstones

http://www.geocities.com/raindropzplace/Wyatt.html?1057812569412

http://www.imagestation.com/member/?name=raindrop1971

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Re : Need to vent VERY SCARD

Postby samarasmom » Sat Aug 21, 2004 09:33 pm

by samarasmom (560 Posts), Sat Aug 21, 2004 09:33 pm

She keeps doing it and I am watching her thouroughly. About to call the docs and maybe take her in. I DONT LIKE THIS AT ALL
Thanks DOnna for the support and advise. Please pray all is well

Sandra 23
Michael Abron ( fiance)
Elijah Kristopher Michael Abron ( 43 wks no complications) 5/6/99
Isaiah Liam Abron ( 37 wks PE and Preterm labor) 3/25/02
Samara Juliyana Abron ( 35 wks PIH and poss PE ) 7/21/04
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Re : Need to vent VERY SCARD

Postby raindrop » Sun Aug 22, 2004 05:35 am

by raindrop (454 Posts), Sun Aug 22, 2004 05:35 am

Since she has kept diong it, if you didnt take her in last nite I would suggest taking her in this morning, that dont sound good at all. Sounds like it make be alot more than just the reflux causing that.

Hope all was well overnite.

Donna - 32
Richard - 33
Whitney Lynn Rochelle- 6-27-99 - (36 wks due to severe PE) 5lbs 2oz 18in long
Wyatt Elijah Lawrence- 7-3-03 (34wks 6days due to severe PIH/PE) 4lbs 6.8oz 17in long
Expecting #3 EDD March 3, 2005 - gallstones

http://www.geocities.com/raindropzplace/Wyatt.html?1057812569412

http://www.imagestation.com/member/?name=raindrop1971

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Re : Need to vent VERY SCARD

Postby hannahsmom » Sun Aug 22, 2004 05:52 am

by hannahsmom (1141 Posts), Sun Aug 22, 2004 05:52 am

Hannah went home on an apnea monitor. It went off twice when she stopped breathing during her feedings, so we were so glad to have it! Plus, it let us sleep in peace instead of getting up to make sure she was breathing (although I did still get up a lot to check on her). Any way you might get an apnea monitor? Good luck!

Suzanne
Mommy to Miss Hannah Rose
26.5 weeker born 8/24/01
severe pre-e & IUGR
1 pound, 1 ounce
12 inches
Miracles do happen!
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Re : Need to vent VERY SCARD

Postby sandy » Sun Aug 22, 2004 09:20 am

by sandy (1138 Posts), Sun Aug 22, 2004 09:20 am

Hi Sandra,
I'm sorry this is such a scary time for you.

My DD was born at 35 weeks and 1 day. She spent 2 weeks in the NICU, and when we brought her home, we heard nothing from the NICU about GERD/reflux, or whatever was going on, and we were new parents, so we were clueless.

Finally ended up taking her to the ER on the 4th of July weekend, waited until around 3am to be seen, and it was determined there she had GERD. Her pediatrician never completely diagnosed her w/GERD; he was hesitant, but I will say it all cleared up by probably 6-7 (8?)months.

We had some really scary times, too. And in the beginning, when your hormones have yet to settle, and you're so sleep deprived (and you have other little ones)...we had no family support (I'll spare you the drama of that), we were new to the neighborhood so we knew no one...I remember one time in the middle of the night, DH and I whisked our DD out of her car seat gagging, turned her upside down, we were trying everything, and I just lost it. Fell on the floor, crying myself and DH was like, "honey, you have to pull it together at least until we help DD". It was just too much. Our pediatrician later advised me that the baby senses our stress, so as I was more relaxed in the future about episodes, I think it helped our DD get through them as well.

One thing that helped us is that our DD slept in her carseat 100% of the time for the first 4, possibly 5 months of her life. This helped with the GERD/reflux, or whatever it was that she had. We also added something to her bottles...think it may have been "Milk of Mylanta". Every one. That helped keeping things down.

I remember for so long her sleeping in her carseat at my bedside, and me only sleeping lightly so I could keep an ear out to hear if she was having trouble breathing. I'd keep a small, reading flashlight in reach so I could flick it on at any time to see how she was looking without having to turn on a brighter light.

We also kept those nose suction thingies around, so we could suction the gunk out from time to time if flipping her over and upside down didn't do the trick. Our pediatrician told us not to jam it down her throat, but to put it to the inside of her cheek and suction. That helped sometimes as well.

We almost hooked her up to an apnea monitor, but by that time, the sleeping in her carseat, the additions to her bottle...it all was starting to slowly get better.

Good luck to you. I promise it gets better at some point.

~Sandy/DD born via emergency C at 35 wks/1 day June '03 due to Severe PE/class III HELLP

CAUGHT THE EGG!! Estimated hatch date: 3/13/05; scheduled C at 39 weeks...or earlier if needed.
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Re : Need to vent VERY SCARD

Postby julie f » Sun Aug 22, 2004 01:13 pm

by julie f (7993 Posts), Sun Aug 22, 2004 01:13 pm

Oh Sandra, how scary... How is Samara doing today?

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Miracle in progress... #2 is due February 2005!!!

Southern California Coordinator
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Re : Need to vent VERY SCARD

Postby angelkat » Sun Aug 22, 2004 01:46 pm

by angelkat (3423 Posts), Sun Aug 22, 2004 01:46 pm

Sandra...

How's things going today?.. Praying things are better today

Hugs
~T
Moderator Grief and Loss
Mommy to
Drew(14)PE 37 wks
Ky (12)PE 34 wks
~i~ Katlyne(12/9/02-04/02/03)25 wks
Casey - 34wks Born 7/29/04
Katlyne's Tribute Site
http://forevernetwork.com/lifestories/lifestory.cfm?Archive_ID=10971&Directory=/Archives/MountHope&Sort=V
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Re : Need to vent VERY SCARD

Postby samarasmom » Sun Aug 22, 2004 01:48 pm

by samarasmom (560 Posts), Sun Aug 22, 2004 01:48 pm

She is doing okay today and after last time I wrote no more episodes. She had some diarrhea real bad a couple of hours ago but other than that she seems fine. I plan to still call her doc office in the morning and see if he is back and what he advises for her. WE are always making her sleep in her carseat now and she seems to do alot better. As far as the bulb syringe goes we tried that and I could get NOTHING out of her mouth or nose when we tried. I will keep you updated when I find out more. I have to take Isaiah into the docs also. He has alot of skin problems and is breaking out with something else all over his body. I dont know if his immune system is low again. I hope not since that means more tumors and I think I am my wits end with that. AH my kids make nothing easy for me

Sandra 23
Michael Abron ( fiance)
Elijah Kristopher Michael Abron ( 43 wks no complications) 5/6/99
Isaiah Liam Abron ( 37 wks PE and Preterm labor) 3/25/02
Samara Juliyana Abron ( 35 wks PIH and poss PE ) 7/21/04
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Re : Need to vent VERY SCARD

Postby meljoi » Sun Aug 22, 2004 03:39 pm

by meljoi (510 Posts), Sun Aug 22, 2004 03:39 pm

I have NO idea how I missed your post!
I am so sorry for what you are going through-
just know I am thinking about you all.
Please keep us posted.......
Peyton was never diagnosed with anything-but he suffered painful painful gas.....Mylecon worked wonders, but he slept in his car seat until he was almost 6 months.


Melissa Joi 32
DH Jeremy 43
mama to Peyton John 12/04/00 (severe pre-e @ 38wks)
Baby Lucy due 11/26/04
see her photos!
http://www.babiesonline.com/babies/l/lucys
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