Need to vent VERY SCARD

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
jenn
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Re : Need to vent VERY SCARD

Postby jenn » Tue Aug 24, 2004 11:55 am

OH my gosh!
Hugs to Samara!
And love to the lil' man.
I hope Isaiah is feeling well soon!

Kiddo's are luck to have a mom like you to take such good care of them!


Jennie (25)
Shad (29)
Jaidyn (3) @30 wks
Severe PE/HELLP
2lb. 12oz.
http://www.babiesonline.com/babies/j/jaid/

Natalia Rosse
Due: 11.25.04
http://www.babiesonline.com/babies/n/nataliarosse/

http://www.ofoto.com/PhotoView.jsp?collid=182798555105&photoid=588409555105&Ucollid=182798555105&Uphotoid=114209555105&refreshkey=1092871853409

samarasmom
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Re : Need to vent VERY SCARD

Postby samarasmom » Mon Aug 23, 2004 03:35 pm

Samara is doing AWESOME now. I actually had to take another child to the docs for once. Isaiah my 2 yr old had a rash all over his body. He has problems with rashes and skin problems from his tumors so I took him in and he was diagnosed with Fifth Disease so we are dealing with that. I am glad I am no longer pregnant since his doc said it can make a women lose her baby. Scary disease


Sandra 23
Michael Abron ( fiance)
Elijah Kristopher Michael Abron ( 43 wks no complications) 5/6/99
Isaiah Liam Abron ( 37 wks PE and Preterm labor) 3/25/02
Samara Juliyana Abron ( 35 wks PIH and poss PE ) 7/21/04

sandy
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Re : Need to vent VERY SCARD

Postby sandy » Mon Aug 23, 2004 09:37 am

Hi Sandra,
How is Samara doing today and how are you doing today?

Although it is ridiculously expensive, Nutramigen helped with our situation similar to yours. Hoping it does the same for you.

~Sandy/DD born via emergency C at 35 wks/1 day June '03 due to Severe PE/class III HELLP

CAUGHT THE EGG!! Estimated hatch date: 3/13/05; scheduled C at 39 weeks...or earlier if needed.

samarasmom
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Re : Need to vent VERY SCARD

Postby samarasmom » Sun Aug 22, 2004 07:12 pm

Thanks for everyones concerns. SHe also has bad gas and its hard to get past her feedings and her crying after she eats. She starts Nutramigen fully tomorrow after my WIC appt tomorrow and hopefully that works

Sandra 23
Michael Abron ( fiance)
Elijah Kristopher Michael Abron ( 43 wks no complications) 5/6/99
Isaiah Liam Abron ( 37 wks PE and Preterm labor) 3/25/02
Samara Juliyana Abron ( 35 wks PIH and poss PE ) 7/21/04

meljoi
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Re : Need to vent VERY SCARD

Postby meljoi » Sun Aug 22, 2004 03:39 pm

I have NO idea how I missed your post!
I am so sorry for what you are going through-
just know I am thinking about you all.
Please keep us posted.......
Peyton was never diagnosed with anything-but he suffered painful painful gas.....Mylecon worked wonders, but he slept in his car seat until he was almost 6 months.


Melissa Joi 32
DH Jeremy 43
mama to Peyton John 12/04/00 (severe pre-e @ 38wks)
Baby Lucy due 11/26/04
see her photos!
http://www.babiesonline.com/babies/l/lucys

samarasmom
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Re : Need to vent VERY SCARD

Postby samarasmom » Sun Aug 22, 2004 01:48 pm

She is doing okay today and after last time I wrote no more episodes. She had some diarrhea real bad a couple of hours ago but other than that she seems fine. I plan to still call her doc office in the morning and see if he is back and what he advises for her. WE are always making her sleep in her carseat now and she seems to do alot better. As far as the bulb syringe goes we tried that and I could get NOTHING out of her mouth or nose when we tried. I will keep you updated when I find out more. I have to take Isaiah into the docs also. He has alot of skin problems and is breaking out with something else all over his body. I dont know if his immune system is low again. I hope not since that means more tumors and I think I am my wits end with that. AH my kids make nothing easy for me

Sandra 23
Michael Abron ( fiance)
Elijah Kristopher Michael Abron ( 43 wks no complications) 5/6/99
Isaiah Liam Abron ( 37 wks PE and Preterm labor) 3/25/02
Samara Juliyana Abron ( 35 wks PIH and poss PE ) 7/21/04

angelkat
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Re : Need to vent VERY SCARD

Postby angelkat » Sun Aug 22, 2004 01:46 pm

Sandra...

How's things going today?.. Praying things are better today

Hugs
~T
Moderator Grief and Loss
Mommy to
Drew(14)PE 37 wks
Ky (12)PE 34 wks
~i~ Katlyne(12/9/02-04/02/03)25 wks
Casey - 34wks Born 7/29/04
Katlyne's Tribute Site
http://forevernetwork.com/lifestories/lifestory.cfm?Archive_ID=10971&Directory=/Archives/MountHope&Sort=V

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julie f
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Re : Need to vent VERY SCARD

Postby julie f » Sun Aug 22, 2004 01:13 pm

Oh Sandra, how scary... How is Samara doing today?

Julie (27)
Zachary James, 7/22/03-7/27/03, born at 26wks - severe pe

Miracle in progress... #2 is due February 2005!!!

Southern California Coordinator

sandy
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Re : Need to vent VERY SCARD

Postby sandy » Sun Aug 22, 2004 09:20 am

Hi Sandra,
I'm sorry this is such a scary time for you.

My DD was born at 35 weeks and 1 day. She spent 2 weeks in the NICU, and when we brought her home, we heard nothing from the NICU about GERD/reflux, or whatever was going on, and we were new parents, so we were clueless.

Finally ended up taking her to the ER on the 4th of July weekend, waited until around 3am to be seen, and it was determined there she had GERD. Her pediatrician never completely diagnosed her w/GERD; he was hesitant, but I will say it all cleared up by probably 6-7 (8?)months.

We had some really scary times, too. And in the beginning, when your hormones have yet to settle, and you're so sleep deprived (and you have other little ones)...we had no family support (I'll spare you the drama of that), we were new to the neighborhood so we knew no one...I remember one time in the middle of the night, DH and I whisked our DD out of her car seat gagging, turned her upside down, we were trying everything, and I just lost it. Fell on the floor, crying myself and DH was like, "honey, you have to pull it together at least until we help DD". It was just too much. Our pediatrician later advised me that the baby senses our stress, so as I was more relaxed in the future about episodes, I think it helped our DD get through them as well.

One thing that helped us is that our DD slept in her carseat 100% of the time for the first 4, possibly 5 months of her life. This helped with the GERD/reflux, or whatever it was that she had. We also added something to her bottles...think it may have been "Milk of Mylanta". Every one. That helped keeping things down.

I remember for so long her sleeping in her carseat at my bedside, and me only sleeping lightly so I could keep an ear out to hear if she was having trouble breathing. I'd keep a small, reading flashlight in reach so I could flick it on at any time to see how she was looking without having to turn on a brighter light.

We also kept those nose suction thingies around, so we could suction the gunk out from time to time if flipping her over and upside down didn't do the trick. Our pediatrician told us not to jam it down her throat, but to put it to the inside of her cheek and suction. That helped sometimes as well.

We almost hooked her up to an apnea monitor, but by that time, the sleeping in her carseat, the additions to her bottle...it all was starting to slowly get better.

Good luck to you. I promise it gets better at some point.

~Sandy/DD born via emergency C at 35 wks/1 day June '03 due to Severe PE/class III HELLP

CAUGHT THE EGG!! Estimated hatch date: 3/13/05; scheduled C at 39 weeks...or earlier if needed.

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hannahsmom
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Re : Need to vent VERY SCARD

Postby hannahsmom » Sun Aug 22, 2004 05:52 am

Hannah went home on an apnea monitor. It went off twice when she stopped breathing during her feedings, so we were so glad to have it! Plus, it let us sleep in peace instead of getting up to make sure she was breathing (although I did still get up a lot to check on her). Any way you might get an apnea monitor? Good luck!

Suzanne
Mommy to Miss Hannah Rose
26.5 weeker born 8/24/01
severe pre-e & IUGR
1 pound, 1 ounce
12 inches
Miracles do happen!


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