My sister had a strawberry on her chin, and as an adult, it's completely faded. (My parents and I can see the remnants of it when we look hard, but no one else can.)
Nicky has a raised hemangioma on his left pinky. It was the size of his whole finger and bright red a few weeks after birth, but thankfully has caused him no problems. It has not grown as he has, and it's faded. It's basically the same size it was back then, but it's the same color as the rest of his finger. The doctor won't do anything about it unless it starts to cause him problems.
So, that's our story, but yours is COMPLETELY different. With the pain and bleeding, I would think it should be taken care of, according to everything I've read/heard. When I asked our pediatric surgeon (who did the hernia surgery) about Nicky's, he said that if it ever had to be removed, a pediatric hand surgeon would do it. What kind of specialist are you seeing for your daughter's? With the symptoms she's having, I'm surprised they're not doing more. If I were in your situation, I would probably ask for a consult with a pediatric surgeon.
Georgia State Coordinator
Moderator - Pregnant Again
Ds Nicky - 3/24/00 (28 wks - eclampsia)
Ds Kalen - 7/10/03 (36 weeks - preeclampsia)