My daughter wasn't a preemie (born at exactly 38 weeks), but she has a very large hemangioma on her bottom. At first we thought it was a birthmark until around 4 weeks when it started ulcerating. It was absolutely horrible to see her in so much pain from the ulcerations. Every time she would pee or poop she would scream in pain. We did weeks and weeks of special dressing and creams, but the only thing that really helped clear it up was laser surgery. Has anyone mentioned that to you? It helped considerably although it still took a few weeks for it to heal. It was tough to put her through it (I cried more than she did!), but in the end I really think it hastened her recovery. We were able to do it on an outpatient basis and only had to have it done once. There is a chance that it could ulcerate again if it keeps growing, so they are keeping tabs on it.
Hang in there! It is SO hard, but she will be okay!
Mom to Liv Abby, 5/5/04, pre-e