Hannah's going to be a Radio Star!

[hannahsmom]

We are going to be on the radio next Wednesday to share Hannah's story. The hospital where she was born (USA Children's and Women's in Mobile, AL) is having a radiothon to raise money for the hospital. I am going to talk about pre-e, and then share our experience. I probably won't have much time, but I will squeeze as much into our few minutes as possible! Hannah will hopefully say a few words too! Hannah has been on TV twice, once for a caps for babies donation at Christmas, and they needed to show babies in the NICU (I also knew the camera man, so he made sure she made her TV debut!) Then, she was on the local children's miracle network telethon back in May or June. She was also a guest on the radio for a Ronald McDonald fundraiser. Hannah is a little Diva already at age 3 - boy, am I in for it later on! We will have to drive about an hour and a half each way for the radio interview, but we will get to visit the NICU staff and there isn't anything I won't do for that hospital. I consider the NICU nurses our angels on earth.

Suzanne
Mommy to Miss Hannah Rose
26.5 weeker born 8/24/01
severe pre-e & IUGR
1 pound, 1 ounce
12 inches
Miracles do happen!

[josiah1112]

God bless your baby. She is so adorable. I hope everything
goes wonderfully during the interviews.

Gloria mom to Josiah 11/12/03- 12/4/03 @ 26wks pre e
Moderator- Foro Latino
Future Adoptive Mom

[mom2tori]

Suzanne, the radio show sounds great!Hope everything goes well and Hannah captures your audiences hearts! Good luck.

Alissa mommy to:
Dominic 9/10/97-9/11/97
Victoria 1/8/02

[aimeejane]

How fun - congratulations!!!! Our childrens hospital system had their radiothon 2 weeks ago & raised $1.6 million. I loved hearing all the stories. Good luck (I guess I should say break a leg!; let us know how it goes!

Aimee
Georgia State Coordinator
Moderator - Pregnant Again

Ds Nicky - 3/24/00 (28 wks - eclampsia)
Ds Kalen - 7/10/03 (36 weeks - preeclampsia)

[hannahsmom]

Thanks, ladies - I will let you know how it goes. I've been depressed lately because of her gymnastics coach, and now she's having problems in her school. She's ADHD and no one wants to deal with her. They think she's just being bad, but it's more than that. We can't medicate until she's at least 4. When she's feeling good, she's the world's sweetest child. But when she has a rough day, everyone knows it. So, the radio show will be a fun break.

Suzanne
Mommy to Miss Hannah Rose
26.5 weeker born 8/24/01
severe pre-e & IUGR
1 pound, 1 ounce
12 inches
Miracles do happen!

[deerhart]

Suzanna
Have you thought about seeing a pyschologist to work on behavior therapy? At this age, the therapy isn't necessarily with the child, but rather helping the parents find better ways of interacting with their child, including finding ways aorund the difficulties. It has worked very very well on Alex and even some on Mason.

I had no idea that some of our reactiosn to Alex's behavior was what was making the situtation even worse. Simply things like instead of telling him Alex go sit down, but rephrasing it to Alex can you try to sit down would make such a significant change in his behavior (simply becuase he gets to make the decision to sit down instead of thinking order must rebel).

Alex (and Mason) both are at least borderline ADHD/ADD but they are not planning on medicating ALex until he is at least 6 years old (in order to give him time to work out the language issues to see if that helps whats going on plus they aren't sure whether he should get ADD drugs or OCD drugs).

From what we have seen, sometimes simply changing the words used around the child (and subsequently teaching others around the child how to connect with them) can make a huge huge difference in behavior. We feel much more comfertable tkaing Alex out now because we have more tools to counteract his overstimulation. I nfact, this summer he took swim lessons and behaved rather well.

Erin

Moderator - Parents of Preemies
Missouri State Coordinator
Mommy to Alex (4)and Mason (1 1/2)
Law Student - 1 year done, 2 to go

[denise]

Hope the interview and calls go well! Let us know how things go.

-------
Denise (28) Co-coordinator for WI
Jason (32)
Ariana (17 months)-born 5/3/03 at 35 weeks due to HELLP
Currently TTC #2
http://hometown.aol.com/scrapperlang/Home.htm

[mom2max]

Wow! That's so cool for her (and you) to be such stars!!!! :)

I know exactly what you mean about the NICU staff. They absolutely ARE angels on earth and I'll never forget th eones who took care of my little man.

Jo, Mom to Max, born at 33 weeks due to severe pre-eclampsia. Metopic craniosynostosis - surgery at 11 months corrected age.