June 2009 PF Announcements

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June 2009 PF Announcements

Postby eleni » Mon Jun 22, 2009 12:01 am

You should have received an email from the Preeclampsia Foundation with the following news items, but if you didn't - make sure you're registered (go to https://www.preeclampsia.org/Registration.aspx) to receive news updates automatically. Read on to learn about several ways you can make a big impact today and if you would like to make a difference in your community, we have money to help you do that, too.

Dear Friend of the Preeclampsia Foundation,

We have money to give and we want you to spend it.
Check out our 7 ideas for 'doing something' about patient education and public awareness, or come up with your own ideas to implement in your community. Our new Education & Awareness Grants Program http://www.preeclampsia.org/pdf/eagg.pdf means there's money available to help put your ideas into motion now.

Use just 10 minutes to help us make vast improvements.
After almost ten years, our online 'headquarters' - our website - needs more than just a little dusting, it needs a full remodel. In a few months, we'll be launching a new and improved version of our website! Please take 10 minutes to complete this anonymous online user's survey so we may better understand how to improve your experience on our site. When you click this link http://www.zoomerang.com/Survey/?p=WEB229BTWRH2P6, you'll be taken to a separate website with the online survey. It's fast and easy and your input will be greatly appreciated.

3 things you can do today to bring hope to millions of mothers!
Our annual gala, Saving Grace - A Night of Hope, will be in Chicago on Saturday, October 24. Our theme this year is about the healing and inspiring power of stories -- your stories.

1. Mark your calendar to attend. And even if you can't be with us at the Chicago Renaissance Hotel, your story still matters.

2. An elegant program book is being produced, full of powerful stories of survival, loss, courage, devastation, hurting, healing and hope. Include your story, sponsored by your friends and family. Deadline for submissions is August 15, 2009. Application is here: http://www.preeclampsia.org/pdf/story-sponsorship.pdf

3. Survivors also have a unique opportunity to participate in art-making workshops. A HELLP Syndrome survivor, who is also an art therapist, will lead the workshops in Chicago and online. Art therapy uses art materials, combining traditional psychotherapeutic techniques with an understanding of the psychological aspects of the creative process. The process and the results will be a healing journey for all; artistic talent NOT required! For more information or to sign up, please contact Amy Lynn. The finished pieces will be on display during the reception.

ok, I lied. Here's a 4th thing...

4. Contact Event Chair Jill Siegel ([email protected]) if you can help in any way... auction items, sponsorships, or just getting a table full of friends to attend with you.

How can you impact preeclampsia research without giving a drop of blood?
The Preeclampsia Foundation is partnering with several researchers to advance our understanding of hypertensive disorders of pregnancy. Please take no more than 15 minutes to participate in one research survey that looks at emotional well-being in pregnancy http://www.zoomerang.com/Survey/?p=WEB22953EMCULU. Although we are especially interested in feedback from preeclampsia and HELLP Syndrome survivors, anybody who has had a baby since 1990 may participate, so feel free to forward the link, as well. More research studies will be announced soon so keep checking back to the website for updates.

You wanted new information, we're providing it.
Based on your survey responses, a Patient Symposium will be held in downtown Chicago on Friday, October 23, filled with the latest information about preeclampsia, HELLP Syndrome, and the long-term implications of surviving a hypertensive disorder of pregnancy. Our speakers are world class physicians and scientists in the field, but don't be put off by their titles. We'll make sure they leave the jargon in the lab. Registration will begin in July, but mark your calendars now. Attendance, unfortunately, will be limited to the first 70 registrants.

And finally, a big THANK YOU to all the Awareness Walk coordinators and participants --- all 5,000 of you --- that helped raise over $73,500 thus far to fund the programs and advance the life-saving mission of the Preeclampsia Foundation. And we're not done yet! Several more walks are scheduled in the coming months. It's not too late to support one of those walks or make a pledge to the Virtual Walk http://www.preeclampsia.org/pfwat/pfwalk.asp?WID=25.

If you haven't given to the Foundation recently and would like to fuel our progress, please consider making your biggest impact now with a secure online donation https://www.preeclampsia.org/Donation.aspx. For every $40, another woman can be reached with life-saving information. For every $400, another hospital can be reached.

Many thanks for your support!

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