by annegarrett (2525 Posts), Tue Feb 22, 2005 01:48 am
As many of you know, the Preeclampsia Foundation received a $90,000 grant to manage the National Institutes of Health, National Institute of Child Health and Human Development Family Study (phew) for preeclampsia. The study was FINALLY approved (two years of red-tape) last summer and the study manager (Maria "Carrie" Barrion, our loyal Bellevue, Washington based volunteer) and I have been handling the details. The selection process has been completed--100 members were randomly selected and solicited to participate. Of those, approximately 60 will be be in the final pool. The study involves a questionaire, and providing a saliva sample from each "proband" which is the research term for an extended biological family. For ex: a typical proband might have a wife, husband and living child, her parents, his parents, her siblings, their spouses and their first born; his siblings, their spouses and their first born. Each of these will be asked to send in a saliva sample and answer a confidential questionaire. The results of both will be analyzed by laboratories with the NIH. We hope to have the study completed by the summer but realistically--it may take a bit longer. When the research is complete--we will share the results with our members. Should it prove promising--the NIH may choose to expand this study into a larger study. If you have been selected--please make every effort to follow the directions carefully. We want to be sure every sample counts.
If you were not selected--there will be other opportunities. We are committed to providing researchers access to important data that will one day mean a cure for preeclampsia.
Thanks for all your efforts and support.