Postpartum Preeclampsia Anyone?

So, the baby's born, what comes next? Discuss your postpartum and parenting concerns here.
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celticepona
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Re : Postpartum Preeclampsia Anyone?

Postby celticepona » Fri Jun 11, 2004 11:25 am

I just visited my doctor for my 10 week postpartum checkup. She says I look much better, and am less puffy. I still need to stay on all of my medication for another 6 weeks and get checked again. She says the bp is better, was 130/74 today[:D], but it is still not low relatively speaking, after looking at my bp log. She says I am getting better and am not 100 percent yet. I still have hyperreflexia in my legs, but the arms are better. I still twitch and jerk when I get tired, but I am starting to feel like I am getting better control of my movements 75 percent of the time. I go back to work at my summer job on Sunday, I work at a National Park as a seasonal ranger, and will be spending alot of time outside...I Am looking forward to a little normalcy after this ordeal. a coworker of mine there had preeclampsia, delivered at 36 weeks, but she was cleared at 3 weeks postpartum...(THAnk god!) so we have some stories to share. Anyway, for those who are battling this postpartum nightmare....HANG IN THERE!!!!!!!! There is light at the end of the tunnel. A friend of my mother's is 5 mos postpartum, and is just starting to get over preeclampsia herself. For some of us it is a long road to recovery, but we have each other here to help us along.

God Bless.....[:I]

DD Emily born 4-01-04 at 37 weeks due to severe PE/Eclampsia. Currently postpartum.
preeclampsic/hyperreflexic. On medication.

http://www.babiesonline.com/babies/e/emilyfionaspage/

arj
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Re : Postpartum Preeclampsia Anyone?

Postby arj » Fri Jun 04, 2004 11:35 am

I'm so sorry that happened to your sister. They shouldn't have sent her home with a BP of 150/100!!! I continued my bout with PE after having my son and spent almost a week in the hospital with BPs close to hers. I was mad that they wouldn't let me just go home because I felt fine, but now that I look back on it, I'm glad that they kept me. You just never know what can happen! I hope your sister gets better soon. The post-partum period is hard enough to deal with, let alone with complications.

Allison (28)
DS-Evan, 7/19/2003. PE at 40 weeks

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kdreher
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Re : Postpartum Preeclampsia Anyone?

Postby kdreher » Fri Jun 04, 2004 11:23 am

Well, I never would have thought of postpartum eclampsia, but my sister has it right now. (I keep reading PE, but he docs said E). She delivered at full term, had excellent b/p during her pregnancy. She did had toxemia 11 yrs ago with her son. On Wednesday, she complained of having a migrane, trouble breathing, and a rapid heartbeat. She had gone into the docs office for Zoloft (getting the "blues") so I babysat for a few hours. Her b/p was 150/100 but the nurse sent her home. At 4:30pm, I was back at her house an her dh took her to the walk-in clinic. Long story short, by 8pm she was transported via ambulance to the hospital she gave birth at, back to the maternity ward. Her b/p was as high as 210/105, heart rate dropped to 35 (very low), swollen liver, protein in urine. This was exactly 1 week after her daughter's birth. She will be in the hospital for a few more days. Currently on magnesium sulfate and demoral. B/P is good, urine still showing, and still nursing a headache. Saturation was low so she is on oxygen.

I am so sad for her, and shocked. I knew something was wrong that day though. As you may or may not know, I had eclampsia and HELLP at 26 +1 day, in 1995. I know she will make a full recovery.

Kris (34)
DH, Tom (33)
Tyler 3-9-95 to 3-23-95 (26 wks pe/HELLP)


tkstevens@sbcglobal.net or kstevens@cga.uscg.mil

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celticepona
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Re : Postpartum Preeclampsia Anyone?

Postby celticepona » Wed Jun 02, 2004 11:01 am

Valchemist...I am still on meds, it controls my bp, but mine still shoots waaayyy up there when I am stressed. My doc still believes that my bp probs are preeclampsia to this date, perhaps this disease makes us more prone to high pressure spikes when we stress?

DD Emily born 4-01-04 at 37 weeks due to severe PE/Eclampsia. Currently postpartum.
preeclampsic/hyperreflexic. On medication.

http://www.babiesonline.com/babies/e/emilyfionaspage/

jenny
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Re : Postpartum Preeclampsia Anyone?

Postby jenny » Fri May 21, 2004 01:42 am

I ended up in the ER 7 days after giving birth. I had severe pre-e before the delivery but my pressures spiked again at 7 days PP, and did not go down to an acceptable level without meds, until about 6-7 weeks PP.

Jenny(30)
Mommy to Zarse (fullterm)
Holly(fullterm;V.B.A.C.,posterier position)
and Christian ( blood clot at 13 weeks and born at 34+ weeks due to severe P.E. 4.lbs. 4 and 1/4 oz.)

valchemist
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Re : Postpartum Preeclampsia Anyone?

Postby valchemist » Fri May 14, 2004 01:45 pm

At my 40th week check up, my blood pressure read 180/110 and protein was detected in my urine. My ob sent me straight to the hospital to induce. Prior bps and urine analyses were normal. I was put on magnesium sulfate and after 14 hours of laboring delivered a beautiful baby girl under general anethesia. My bps never went down after delivery. I ended up in the hospital for two weeks (my baby and husband stayed with me too, except when I was in ICU for a few days). About six different medications and serveral combinations were tired to bring my bp down. I am greatful for the many doctors that took care of me: OB, Periantologist, cardiologist, neurologist, and endrocronologist. I had CT and MRI scans of my brain and abdomen; ultrasounds of my heart and kidneys and blood/urine tests for adrenaline tumors (pheochromocytoma). Everything negative. Couple of months after my release an MRA was performed on my kidneys. Its been seven months now, my bp is under control and I am almost off all medication. I am now under the care of a hypertension specialist. He feels that my high bp is stress related. Some of my other doctors don't completely agree. However at the moment he feels that when my bp is high it is stress related and that I need to work on my biofeedback control. It is amazing how sensitive my bp is to my biofeedback. I will be seeing a periantologist in a couple of months to discuss the possibility of having another baby. I do want another baby; however I am scared.

tracyremax@charter.net
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Re : Postpartum Preeclampsia Anyone?

Postby tracyremax@charter.net » Sun May 09, 2004 08:57 am

Montey, I wish you well in your healing. Your loss is unspeakable and will take a long time to mend your heart. But as you heal over time I found that taking proactive steps helped me to let go of the anger although justified it can consume you. I am thankful my son survived and I took the brunt of PE. I am very sad that you and any other parent had to suffer such a loss at the hands of this devastating illness. Keep us posted on your healing and when you are ready it took me over 2 years we can work on getting the word out to other people.

Wishing you well
Tracy in Mass
Mom to Bill 9/01 severe PE

montey
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Re : Postpartum Preeclampsia Anyone?

Postby montey » Thu May 06, 2004 02:16 pm

Thank you Tracy-
Good suggestions about reporting to Board-never occurred to me to do that but would like to get rid of the anger-(I do believe somewhat justified anger). Would like to get the word out too but not quite healed emotionally as need to be but will be active when ready. Still dealing with the loss aspect as well but on the mend...thank you again.....m

tracyremax@charter.net
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Re : Postpartum Preeclampsia Anyone?

Postby tracyremax@charter.net » Wed May 05, 2004 05:08 pm

Hi Montey. I am so sorry to hear of your loss. I am definatly not a doctor but was told by my doctor that you can have severe preeclampsia/seizures up to 10 days post partum. For me the treatment was Mag plus hydralazine and labaetol both blood pressure drugs. they started at very high doses and slowly dropped over the 3 months it took my BP to stabalize. I to am in MA (you mentioned a Boston hospital. I know my OBGYN could not wait to get rid of me as I am sure she was afraid of a lawsuit. She referred me to a primary care, cardiologist and neurologist. She was sure there were underlying condition of which none were found. WE did not sue anyone but it did feel good to report her to the Board of medicine and her superiors. It helped me deal with the anger. This site has helped me tremendously. But I feel sick to my stomach as I read the stories of all these women and men. I was thinking of becoming more active maybe we could do something in NE to get the word out.

Wishing you well in your healing

Tracy in Massachusetts
mom to Bill 9/01
TTC #2

montey
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Re : Postpartum Preeclampsia Anyone?

Postby montey » Wed May 05, 2004 03:16 pm

HI-
This is my 1st post-Just found this site and wish I had sooner-I too am lucky to be alive after my ordeal. Still dealing with the anger.
My daughter was born at 29 weeks by emergency c-section. She had severe hydrops and passed away 9hrs. after she was born-I never got to hold her and don't remember what she looked like-it crushed me. I gained 17lbs in 3 weeks-all fluid but bp seemed ok. Was contracting and seemed having an placental abruption so had c-section-no time to rush me into Boston. After delivery was having palpations and on/off protein in urine; lots of edema. When let out of hospital my pressure was 140/90-it had not been that high during delivery or previous. My liver function tests had not normalized. The next day I had the worst headache-I took pressure with home monitor best I could and said 200/110. Went to ER and told by ER doc IMPOSSIBLE to be preeclampsia-I specifically asked if it could be-told no way. They were mad when I refused spinal tap looking for brain bleed. CT was negative. Shots of pain med did nothing-pressure came down a bit and I went to ICU. OB consult stated possible resolving pre-eclampsia or related to thyroid problem..RESOLVING-obviously not. I had a seizure in ICU was then given a spinal tap looking for meningitis or brain bleed and then put on Magnesium. I developed sepsis in the hospital due to untreated uti. After release I bled a long time and just brushed off. My daughter was delivered 5/28/03-in 8/03 a small clump of tissue showed up-I insisted on having it looked at by pathology-it was placental tissue. Then the bleeding stopped-I was told the tissue was not significant enough to cause anything and was lucky did not need a d& c-mine was an unusual case. During pregnancy my baby was found to have cystic hygroma (it resolved) but was told after it all- that put me at risk for all the complications that followed: polyhydraminos, placental abruption, hydrops, preterm labor, neonatal death, pre-eclampsia. I am so angry about what happened to me. I have come to terms with what happened to my daughter but not with what I think was avoidable.

Questions -anyone know:

WHAT IS THE STANDARD OF CARE FOR POSTPARTUM HYPERTENSION ETC.? I can't get straight answers-everyone is afraid of lawsuit.

Thank you-sorry long post..


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