Originally posted by missgamecock
Thanks Robyn, I appreciate the help. I have considered Lupron. It is not for me. Too many side effects and once you get it, you can't take a shot back. Mainly the issue is too much bleeding. Most of the pain was taken care of with my lap in May and is tolerable. It's just the bleeding is driving me crazy. I have been wondering if that is one of the reasons why I am so tired all the time. I think I will be getting me some blood tests done. I think I have a hormone issue as well.
Sabrina, this is what adenomyosis does. Honestly, although it's difficult to diagnose, I think you've referred to it before in your situation. Ablation or embolization do not work with adeno, and it may well affect your ability to conceive or carry that final pregnancy you've said you want.
I'd never heard of it when I had my hysterectomy for my ovarian mass (and stage IV endo, but that's a whole 'nother story). However, I had severe adeno and severe anemia, with my hemoglobin hovering in the 7.5 range without me realizing it. I know you've wanted to try again, but maybe your body is saying, "it's time" with this. The IUD can exacerbate it, too, and it does not respond to hormone therapy.
There's a lot of info on adeno on www.hystersisters.com/vb2 and you might want to check out the "Options" forum for more information. But if adeno is the issue, there just aren't a lot of good alternative treatments out there. Unfortunately. :(