So FRUSRATED!!!!

So, the baby's born, what comes next? Discuss your postpartum and parenting concerns here.
kellyo19
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Re : So FRUSRATED!!!!

Postby kellyo19 » Fri Oct 09, 2009 10:18 pm

I'm also a federal employee, with USDA. I don't know which dept you work for - but are you eligible for Voluntary Leave Transfer/Donor Program? Its where if you have a medical emergency, you can put a request in, if you're approved other employees can donate leave to you, for as long as you need it. I have co-workers who have cancer and been on donor program for over a yr. See the link below for info. The lower link is for fact sheets on different leave options. HOpe this helps.
http://www.opm.gov/oca/leave/HTML/formindx.asp
http://www.opm.gov/oca/leave/HTML/factindx.asp

You can check with your HR staff or supervisor for info on this, if its available for your dept.

missgamecock
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Re : So FRUSRATED!!!!

Postby missgamecock » Wed Oct 07, 2009 07:25 am

Thanks Audrey. Kind of thought that was the situtation. It still SUCKS!

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audrey s.
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Re : So FRUSRATED!!!!

Postby audrey s. » Wed Oct 07, 2009 03:03 am

quote:
Originally posted by missgamecock

Thanks Robyn, I appreciate the help. I have considered Lupron. It is not for me. Too many side effects and once you get it, you can't take a shot back. Mainly the issue is too much bleeding. Most of the pain was taken care of with my lap in May and is tolerable. It's just the bleeding is driving me crazy. I have been wondering if that is one of the reasons why I am so tired all the time. I think I will be getting me some blood tests done. I think I have a hormone issue as well.



Sabrina, this is what adenomyosis does. Honestly, although it's difficult to diagnose, I think you've referred to it before in your situation. Ablation or embolization do not work with adeno, and it may well affect your ability to conceive or carry that final pregnancy you've said you want.

I'd never heard of it when I had my hysterectomy for my ovarian mass (and stage IV endo, but that's a whole 'nother story). However, I had severe adeno and severe anemia, with my hemoglobin hovering in the 7.5 range without me realizing it. I know you've wanted to try again, but maybe your body is saying, "it's time" with this. The IUD can exacerbate it, too, and it does not respond to hormone therapy.

There's a lot of info on adeno on www.hystersisters.com/vb2 and you might want to check out the "Options" forum for more information. But if adeno is the issue, there just aren't a lot of good alternative treatments out there. Unfortunately. :(

missgamecock
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Re : So FRUSRATED!!!!

Postby missgamecock » Tue Oct 06, 2009 09:32 pm

Thanks Robyn, I appreciate the help. I have considered Lupron. It is not for me. Too many side effects and once you get it, you can't take a shot back. Mainly the issue is too much bleeding. Most of the pain was taken care of with my lap in May and is tolerable. It's just the bleeding is driving me crazy. I have been wondering if that is one of the reasons why I am so tired all the time. I think I will be getting me some blood tests done. I think I have a hormone issue as well.

ladybug76135
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Re : So FRUSRATED!!!!

Postby ladybug76135 » Tue Oct 06, 2009 08:48 am

Sabrina,
My sympathies. I cannot imagine what you're going through. I have a mild case and I'm miserable. You must be in living *.

Can you do anything temporary like Lupron? My best friend took it to stop her severe, constant bleeding from endo. I know it puts you into temporary menopause. I'm just not sure about the return of fertility. I know it helped her delay the necessary hysterectomy a couple of years. I'm not a doc, of course, just offering a suggestion from a friend's experience (just putting the disclaimer in so I don't get in trouble).

Hopefully they can find something that helps you but will allow you opportunity to have one more.

Good luck.

mikeys mom
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Re : So FRUSRATED!!!!

Postby mikeys mom » Tue Oct 06, 2009 04:40 am

Okay I am so off the pregnancy thing... I know what my decision would be.. Sorry you are going through this though.

Take care,

missgamecock
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Re : So FRUSRATED!!!!

Postby missgamecock » Mon Oct 05, 2009 10:25 pm

I broke down and called today for an appt. Poor receptionist thought I was calling because I was pregnant! I said UM GYN appt please. So I see him on the 16th at 930am. I am kind of worried he is going to say my hand is forced in this. A friend of mine had very similar issues (without the pe). She just had a hysterectomy 4-5 mos ago. She said they upped her to 4 BCP a day!!! She still had the bleeding. I just want to get through 2 years and if we want to try again then, we can and be done with it all. I don't want to give up and then always regret never having that last baby! I know I will regret it the rest of my life. I do know if I did have another one, without a doubt, I will be signing a csection/hysterectomy paperwork as soon as my obgyn allows. He has already agreed it was a good idea in my position. I know I wouldn't regret another one, although everyone arounds me thinks I am completely nuts with my history. You try to explain to them and they don't get it. I don't know anything BUT a pe/pih high risk pregnancy. I think I would be scared and worried to death if I had a normal one. I feel like I have a pretty good dr team that will not take chances. My ob pretty much knows how to lay down the law with me like he did with Cate. We have two regional perinatal centers with level 3 nicus that my insurance does cover. It used to only be one, but now they cover both. Ugh I hate this.

mommy1st
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Re : So FRUSRATED!!!!

Postby mommy1st » Mon Oct 05, 2009 05:43 pm

Sabrina,

Í'm so sorry!! I too have always felt like I got the bad women genes in the family because my sister just has to blink and she gets pregnant! Me, COMPLETE OPPOSTITE!!
Have you called the dr. yet, what have they said? When are you going to see them?
Keep us updated and hope you feel better!

cheleandcallidora
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Re : So FRUSRATED!!!!

Postby cheleandcallidora » Mon Oct 05, 2009 12:44 am

I am so sorry to hear you are going through all of this. I really feel for you. I hope things clear up soon! HUGS!

tree
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Re : So FRUSRATED!!!!

Postby tree » Sun Oct 04, 2009 06:50 pm

This sounds like it totally sucks. I bled for eight weeks after Mary Beth was born, but at least a D&C and a round of nasty drugs cleared it up. I would be pulling my hair out in your situation. I hope you are able to resolve it somehow.
It does stink to get all of the bad genes in the family. I did actually yell at my Mom once for all of the wonderful things I inherited... She laughed, which helped.


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