Automimmune tests are back

So, the baby's born, what comes next? Discuss your postpartum and parenting concerns here.
izabel
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Re : Automimmune tests are back

Postby izabel » Fri Jan 15, 2010 08:32 am

I have never felt sick until I had my son at 26 weeks due to severe PE and HELLP. That was the first time I had a positive ANA test (first time ever tested). Nobody cared about it. Two years later I asked for another ANA test. It was positive again and nobody cared. In top on that I had 680 mg of proteins in my urine, a normal BP and no doctors were able to put everything together and diagnosed me with anything.
It was later on when I got a rash on my skin that I knew I have lupus. I went to the rheumatologist and got more test done (lupus related) together with a full examination. The rheumatologist told me that he can't believe I was never referred to a rheumatologist. He diagnosed me right away. I would go for a rheumatologist if I were you.

missgamecock
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Re : Automimmune tests are back

Postby missgamecock » Thu Jan 14, 2010 10:03 pm

I kind of agree with Amanda. There's enough there that something is not right and it is leaning to RA. My joints swell up and hurt. The voltaren helps (she increased the dose awhile back). I missed two days of doses last week due to not being able to find the rx. There was a marked difference. Well see when I do blood tests again if something comes up. I have enough of the symptoms there to suggest something. As you can see, mine isn't a neat little package either.

amanda
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Re : Automimmune tests are back

Postby amanda » Thu Jan 14, 2010 04:49 pm

Alysha -
It wasn't until my pregnancy that my ANA for lupus finally showed positive for the multiple times that they took it. PE has the ability to 'turn on' all sorts of inflamatory issues for some of us. Like Trish I initially went in for this horrid rash and a problem walking - it would seem like I was always 1/2 of a step behind - it was so bad that I was scared to carry Anna Grace for a while - I would just sit and hold her.

When the rhemuy did all the test my titers came back positive with a pattern that suggested lupus. It wasn't until several more tests that they officially said that I had it. That said, they indicated that autoimmune issues a lot of time don't fall into nice neat packages.

Anyway, just wanted to tell you that I also had some crazy results. Do I have lupus? The tests seem to think so and I certainly have a lot of the symptoms but who really knows? I decided that my medical history was enough vague so I decided that I would go with what they said...LOL

jmom08
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Re : Automimmune tests are back

Postby jmom08 » Wed Jan 13, 2010 11:59 pm

I am so sorry you are going through so much!! I hope they can find some answers soon and get you some relief. Hugs and hopes you are feeling better soon!!

new_mom1214
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Re : Automimmune tests are back

Postby new_mom1214 » Wed Jan 13, 2010 07:38 pm

Was it the Mirena IUD?

tree
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Re : Automimmune tests are back

Postby tree » Thu Nov 26, 2009 10:08 pm

I am sorry you didn't get any answers from the bloodwork - sometimes it sucks to be normal! I am in a similar boat. I just got the call from the nurse that, "hooray, everything looks normal" last night. While not having lupus, RA, etc is good, not knowing is terribly frustrating. All I have is a slightly elevated sedimentation rate, which is another indicator of inflammation. I guess I am an inflammatory person.... My Mom has similar issues and has benefited from consults with Rheumatologists over the years. She swears they are smarter than most doctors and well versed in weird issues. She has never gotten a diagnosis, but they have occasionally at least reassured her that she isn't nuts. Sometimes that helps.

trish
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Re : Automimmune tests are back

Postby trish » Thu Nov 26, 2009 10:11 am

Alysha - my rash did go away after about 6 weeks & it was only ever on my lower legs. It just slowly faded. It was like small, flat hives/light redish bruises almost (like 1 cm or less each) not bright red bumps or anything. But what was weird (IMO) was that it was the same spots/splotches in the same place for the whole 6 weeks - not like a rash that came & went from place to place. Thanks for thinking of me!!

aggie95mom
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Re : Automimmune tests are back

Postby aggie95mom » Thu Nov 26, 2009 09:13 am

Sorry Sabrina for hijacking your post (though I do hope you feel better soon ... has to be scary and annoying to be in pain while breathing and going about your everyday life), but I was just wondering about Trish and whether or not your rash when away.

While I was pregnant, I developed some small red spots on part of my cheek, one on my scalp and one on my arm. After a biopsy, turned out to be discoid lupus (basically lupus on your skin). I do have a very high positive ANA, LA, RA factor, etc, so my situation may be a bit different, but I just wanted to mention it in case you are still bothered by them.

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tracym
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Re : Automimmune tests are back

Postby tracym » Wed Nov 25, 2009 07:58 pm

A CRP of 16 is elevated but certainly not crazy high. I've had a level of 90 a couple of weeks out from an emergency surgery. It still could be related to your surgery or the onset of pleurisy. I'm surprised she didn't take blood to check it again now.

Keep a close eye on your asthma whilst taking an anti-inflammatory.

trish
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Re : Automimmune tests are back

Postby trish » Wed Nov 25, 2009 02:09 pm

That's exactly how I felt after my testing! I had it done about 5 months ago my ANA screen found "antibodies present" with a titer of 1:80 & a "speckled" ANA pattern. But I wasn't diagnosed with lupus (or anything). The other tests they ran said I didn't fall "neatly" into any auto immune category but that it indicated I'd have arthritis later on (but not currently). I went in with a weird rash/hives on my lower legs (that I had for over a month that cream didn't help) & with really bad hip pain that nothing showed up on an x-ray.

I'm not on any meds for auto immune stuff & I still need/plan to see a rheumatoligist one of these days. I hope you feel better soon.


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