Struggling to move on after PE

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sarah.kitchener
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Re: Struggling to move on after PE

Postby sarah.kitchener » Sat Nov 14, 2015 07:35 am

Hi Carolann,
I'm sorry to hear you are going through a similar experience to me. It is very scary. I was able to come off all bp medication when my daughter was almost 4 weeks old and it just dropped back to a normal range. They will control it for you with the right medication. My daughter is now 4 and half months old and I feel I am coping much better even though I still have tough days. I think you are in the UK too - you could speak to the charity here APEC for preeclampsia they have a helpline if you google it. I found them helpful. I hope you get sorted. How is your baby?

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carolanne.mcfadyen
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Re: Struggling to move on after PE

Postby carolanne.mcfadyen » Fri Nov 13, 2015 01:27 pm

hi Lainey

I am feeling the same, I was considered low risk however at 30 weeks my bp started to increase and was constantly monitored for it, swelling became really bad at 36 weeks But alway just very small traces of protein. At 38 weeks I had sever headache all day and called NHS24 and was sent an ambulance my bp was 244/128 I was then sectioned within 5 hours. After this I was in high dependancy for 48 hours, put on the ward and then the BP started peaking again I was kept in for 9 days and left only to start working with my GP to reduce my bp. Now 8 weekspp and still managing very high BP sometimes 220/120 and gp is changing meds to help. All tests are clear so no clue how to reduce BP and very worrying as everyone just says it will come down but I feel it's worse than it was and its scary c

laney_p
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Re: Struggling to move on after PE

Postby laney_p » Mon Oct 05, 2015 02:21 pm

Hey Sarah,

So sorry for all that you have been through. Preeclampsia/HELLP survivors are at higher risk for psychological conditions like postpartum depression/anxiety and posttraumatic stress disorder. You have been through an incredibly traumatic experience, and it may take some time to get feeling better.

Research suggests the risk of having preeclampsia again is approximately 20%, however experts cite a range from 5-80% depending on when you had it in a prior pregnancy and how severe it was. If you had preeclampsia during your first pregnancy, you may get it again but it's not definite. Repeat occurrence is often less severe, but you can also go have your own risk analysis done by a high-risk specialist which will help tell you more. Since you are in the UK, I'm less certain how you go about that, but your general Ob should be able to give you a reference if you need it.

The good news is, there are SO many women who do go on to have other pregnancies after preeclampsia, and with careful monitoring, they make it through safely. I know that it can be so scary to contemplate, but you are definitely not alone.
Director of Community Relations for the Preeclampsia Foundation
*does not provide any medical advice*
for more information, please visit www.preeclampsia.org

La Directora de las Relaciones con la Comunidad
*no ofrece consejo médico*
Se habla español
Para mas información, por favor visite: www.preeclampsia.org/es

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sarah.kitchener
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Struggling to move on after PE

Postby sarah.kitchener » Tue Sep 29, 2015 08:31 pm

Hi Ladies,

I'm so glad to have found this forum as I am desperate to talk to others who have experienced PE. I feel there are so many unanswered questions for me and this is one of the biggest problems. Here's my story (apologies if it goes on a bit!)

First of all I'm based in the UK. This was my first pregnancy and I was considered low risk and was receiving purely midwife care. At 28 weeks I developed some swelling and this got progressively worse. It wasn't until 34 weeks at a routine appointment my BP was 149/100 and I had 2++ protein. I was sent straight to hospital for monitoring and was kept in for 2 nights BP settled down and I was discharged. I was then rushed back in by ambulance 2 days later with very high BP and 4++++ protein. I was taken straight to delivery suite but again BP settled and was back down to the ward. The next day BP up again and started getting visuals so they tried to induce me and ended up having a c section at 35 weeks and 1 day (was treated with mag). My beautuful Amelie was born at 4lb 4oz and she has done so well not needing to go to neo natal. I was discharged home 4 days pp even though BP was creeping up again (with no meds) Was readmitted 6days pp with high BP and abnormal liver function (normal before delivery) They then struggled for 5 days to get BP under control and at one point BP was 200/110. I was discharged and taken off meds at 3 weeks pp. I'm now 12 weeks pp and really struggling to move on. I am constantly worrying about my health now worried I'm going to die and also I can't stop thinking about everything that happened. I feel there are so many unanswered questions and I saw so many different doctors. At my post natal check the doctor told my husband there were no long term health risks (I now know differently) I would love another child but feel too terrified to go through it all again. Please can someone tell me there is light at the end of the tunnel. Has anyone else had a similar experience. Thanks Sarah ( sorry for the super long post!)


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